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Jenniferxgfx

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Latest Celiac Disease News & Research:

Everything posted by Jenniferxgfx

  1. Jenniferxgfx
    That must have been like watching a car crash in slow motion-- a glutening was inevitable! My right hand tingles when ive been glutened! It used to just be a twinge, but now it's all out numbness. (I wish I knew what was going on. Does anyone know?) as soon as that starts, I pop a pepto, and drain a bottle of water, and repeat in an hour. It seems to...
  2. Jenniferxgfx
    I know I'm probably in the minority here, and I support the science, but I just wanted to clarify that the biochemistry also explains why we have an overeating or junk food obsession in this country, not specifically an obesity "problem." I'm an obese person who was never an overeater but I wa constantly being accused of such, and my sized caused doctors...
  3. Jenniferxgfx
    I definitely get chest pain. Usually it resolves with anxiety meds but not always. If I also have rib pain, it's usually costochondritis. Not much I can do with that. I totally sympathize. Remember that it will pass.
  4. Jenniferxgfx
    French fries from restaurants are likely cc'd. And sharing pb is a big source of cc. DH can be really sensitive to trace gluten. Time for your own pb. Iodine can make it worse, while healing. Stuff like iodized salt.
  5. Jenniferxgfx
    I've been vegan for years and one reason is that meat makes me sick. Gut pain and bloating, headaches, just general misery. I feel like I'm just not meant to eat meat, and I definitely don't need it. But I've never gotten a good explanation for it.
  6. Jenniferxgfx
    Thanks for this! It makes me sad how ignorant these companies can be.
  7. Jenniferxgfx
    Oops I prematurely sent But seriously I'd give the gluten-free diet a little time to see how you do and remember it'll take time to heal. But if you worsen with that right side pain, it may be gb troubles. Good luck!
  8. Jenniferxgfx
    I've had reflux for years, and what I thought was a fatty food intolerance. I ate very low fat food to get by. Eventually my gall bladder really started hurting after I ate, and went thru all kindsa hellish testing. (the hida scan sucked with my back!) everything was too close to normal to justify surgery, which I'm thankful for now! Now that I'm gluten-free...
  9. Jenniferxgfx
    I thought I was losing my mind with hunger at first when I went gluten-free. Healthy fats and proteins are the trick, I think! I started using more coconut oil and olive oil (after years of low fat cooking because I thought I just had a fatty food intolerance!), and eating lots of nuts, peanut butter, beans, and hummus, and it helped tremendously. I also...
  10. Jenniferxgfx
    I love sleep! It's so nice to sleep restfully again! I may not need as much as I used to, but my 8 hours now is way more restful than the 12-14 I used to get.
  11. Jenniferxgfx
    Thank you. Fermented! That makes sense. I don't know a lot about soy sauce manufacturing but I didn't think distillation sounded right.
  12. Jenniferxgfx
    I saw a thread on another site about some celiac specialist who believes standard soy sauce does not contain any actual gluten because it's supposedly destroyed in the distillation process. As a chemist, this makes zero sense to me and I don't believe it. As a celiac, I react to soy sauce that's not gluten-free. This specialist is in Finland, and supposedly...
  13. Jenniferxgfx
    With pasta, I'd cut a piece on a plate and see how it looks inside. For soup, I'd have a colleague do it, or make friends with a few nurses aides and see if you can get one to pop into the kitchen on their break for a free bowl of soup or bring out a few samples for them to taste. Really, I think this is a good reason to have very specific recipes and stick...
  14. Jenniferxgfx
    I wish I had good advice except to encourage you to stand up for yourself and your baby. YOU deserve the best health possible, and your son deserves to have someone stand up for him. I was a sick baby and grew up to be a sick adult, and my parents were just unaware of what was making me sick. You've got a huge advantage knowing what's making your son unwell...
  15. Jenniferxgfx
    A whole package of gluten-free cookies could have enough gluten in them to cause a reaction. I recently discovered the deliciousness that is Snyder's gluten-free pretzel sticks and OMG THEY ARE SO DELICIOUS... but after a half a bag (don't judge me, please! Lol), I had a bad bellyache. Now if I eat more than what fits in one hand, I feel glutened. Also...
  16. Jenniferxgfx
    It could be gluten-free processed foods, or it could be that you were a little underweight for your own personal body's setpoint, and this is your "normal." Our culture has a really skewed view on weight, and BMI is bunk anyway. As long as your numbers are good (BP, cholesterol, triglycerides, and A1c to start), I wouldnt stress too much.
  17. Jenniferxgfx
    Dairy can cause these problems too and a lot of celiacs can't (at least temporarily) digest dairy until they heal up. Dairy makes me all kindsa miserable though. Lactose, casein, and whey, no part of milk is safe for me and they sneak it into all kinds of foods. It could definitely be dye though. Too much colored food makes me feel BLEH. But who really...
  18. Jenniferxgfx
    Have you checked your iron? That sounds a lot like me when my iron is low. Good luck!
  19. Jenniferxgfx
    Before I knew I had celiac, I knew I had really sensitive skin. If I touched anything and touched my face, I'd break out. Or if I wore short sleeves and had a meeting where I leaned on a table, my arms would break out. If i used a communal phone, I'd break out. Etc, etc, etc. If I knew then what I know now.... I HATE shopping carts. And I hate that...
  20. Jenniferxgfx
    I know this is a depressing topic, but I'm glad I'm not alone in these thoughts. I'm afraid it's too late, too. I try to be optimistic, but the scientist in me can't really see how we can pull out of it, at the rate we're going.
  21. Jenniferxgfx
    There really is that little research I've been trying to find research and it's just not there. I'm curious to know if it's a bit insidious why: the treatment for enteropathy is simple compared to other diseases. Avoid triggers! There's no Pharma profits to be made, medical treatments (except diagnostics) for hospitals to push, and doctors are pretty...
  22. Jenniferxgfx
    Two words: snake oil. There are NO treatments for preventing a gluten reaction except avoiding gluten.
  23. Jenniferxgfx
    Gluten can affect the thyroid--- being gluten free (avoiding cc from eating out) may resolve it, if you can avoid te gluten-containing synthroid. Usually for anemia you'll get supplements (just read labels, because every brand is different), but if it's bad, they'll want to give IV iron. I tried to eat a plain meatless salad at subway and had a bad reaction...
  24. Jenniferxgfx
    I'm pretty sure rice is (generally) processed in totally different ways than corn, oats, and wheat--- all those non-rice grains seem to have a lot of overlap and contamination in the fields, but rice is grown in paddies and in a completely different manner. Corn won't be grown anywhere near where rice is, but wheat might be nearby. My botany/agriculture...
  25. Jenniferxgfx
    I think about this a lot, actually. I'm sure 99% of my health problems were gluten-related. By 6 months old I was having asthma attacks. My childhood pictured make me look like I had rickets but no one thought a fat baby who drank formula mixed with full fat milk could have nutritional deficiencies. It worsened from there. I made it through school, made it...
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