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Latest Celiac Disease News & Research:
Everything posted by gf4life
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ARCHIVED Endoscopy This Morning
gf4life replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Stacie, I'm so sorry for you to have had to go through all that. I would fire the doctor as well! I agree with Dessa. My main gallbladder disease symptom was nausea, every day, no matter what I ate. And then occasionally I would have horrible pain. I had my gallbladder out 5 years ago, and I was happy with the results. I don't know if getting diagnosed... -
ARCHIVED What Is The Endoscopy Like?
gf4life replied to Killarney's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Technically you are awake, but you will be so out of it that you won't really be aware of what is going on and most people don't remember it once they come out of the medicated state. It shouldn't hurt, and usually the only people who have problems are those with a very bad gag reflex. Some people experience a bit of a sore throat afterwards, but... -
ARCHIVED Endoscopy This Morning
gf4life replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was just wondering if there are fold through out the entire duodenum? I ask this because in my first endoscopy (when the doctor did not see any reason to take even one tissue sample even though I told him I wanted him to test for Celiac) I received a copy of the pictures. There were NO folds anywhere and when I went back for the results the phys. assistant... -
I don't know that gluten intolerance "causes" other intolerances, but I do know that if you are intolerant to one food you are more likely to be intolerant to others. What tends to happen to alot of us is that once we are gluten-free and start feeling better our bodies are able to point out the other intolerances that were always there, but the symptoms...
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ARCHIVED Progresso Soups
gf4life replied to jaycee30's topic in Gluten-Free Foods, Products, Shopping & Medications
There are 5 Progresso soups that my daughter and I occasionally eat for lunch. They are: Progresso Traditional Chicken Rice with Vegetables (good) Progresso Traditional Chicken and Wild Rice (good) Progresso Vegetable Classics Lentil (our favorite) Progresso Vegetable Classics Split Pea (a little on the runny side, but tastes good) Progresso... -
ARCHIVED James Blood Work As Of Now
gf4life replied to Jamesmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have found that they don't always give you the instructions about the biopsy procedure until they day or two before, at least that has been my experience. You should call the doctor or the place where the procedure will be done and speak to someone who can answer your questions. The fact that he is diabetic could affect the prep for the test and... -
ARCHIVED Enterolab Vs Gi Test
gf4life replied to christtheking's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
David, That is a good sign. I'm not sure if it is a good idea to be gluten-free before the testing. The doctors will probably want to run the blood tests and it might affect them. Everyone's body handles gluten differently. If you have had lots of intestinal damage and there are lots of antibodies in your blood then a week probably woundn't hurt... -
ARCHIVED James Blood Work As Of Now
gf4life replied to Jamesmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The biopsy is done by endoscopy and the procedure only takes about two hours total, counting the prep and the recovery time. You shouldn't need to stay overnight. They should sedate him for the procedure, but he will not be totally asleep, only drugged to the point of not really rememberign what is happening and really, really relaxed. He may have... -
ARCHIVED Enterolab Vs Gi Test
gf4life replied to christtheking's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi David, I hope the doctor you are seeing is knowledgable about Celiac Disease. I would have to say that most GI doctor are not open to accepting the Enterolab results. Every other doctor we see in my family has accepted them, only my GI refused to accept the results outright, and my kids pediGI was at least willing to monitor their progress on the... -
ARCHIVED James Blood Work As Of Now
gf4life replied to Jamesmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Jamesmommy, If his bloodwork came back last week then I assume he is still on a gluten diet. Keep him on the gluten diet and get him scheduled for a biopsy right away. 210 is a high ttg level and could indicate a lot of intestinal damage. It would be better for him to have a clear diagnosis with the biospy. And there is a connection to diabetes and... -
ARCHIVED Blood Tests And Gluten Challenge
gf4life replied to Elsie L's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Different labs use a different reference range. For the Tissue Transglutaminase test most labs say under 20 is negative, a few use under 10 as negative. It is the most specific bloodtest for Celiac. ARA is Anti-Reticulin Antibody. It is as far as I can tell an outdated bloodtest that very few doctors or labs rely on anymore for Celiac testing. It is... -
ARCHIVED Endoscopy This Morning
gf4life replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had to wait over a month for my biopsy results, only because the doctor wouldn't see me sooner and they refused to give me my results over the phone or through the mail until I had seen the doctor! Stacie, I am glad they moved your appointment up. I hope the doctor can help you figure out what needs to be done to get you feeling better. I looked... -
ARCHIVED Enzymes
gf4life replied to BRCoats's topic in Gluten-Free Foods, Products, Shopping & Medications
What does gastroparesis cause? It is like a very slow digestion right? Are there other symptoms or complications from it? That is weird that taking the enzymes would cause you to feel sleepy. Maybe your body was telling you that you need to rest. We need rest while our bodies heal, and if it is helping you to heal that might explain why you would... -
I think sticking to basic, less processed foods is a good idea. The bacon and eggs shouldn't hurt you as long as the bacon is gluten-free. I have heard that some bacon is not, so find a good brand that is safe and stick with it. I find that I am no longer comfortable just buying whatever is on sale anymore. I stick to certain brands that I know won't...
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ARCHIVED James Blood Work As Of Now
gf4life replied to Jamesmommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Gay, I'm a bit confused. Was he diagnosed with juvenile diabetes at age 4 or Celiac. And has he been on a gluten free diet? I'll wait for your answers before attempting to answer your questions, so I don't give you the wrong advice. God bless, Mariann -
ARCHIVED Change Of Diagnosis
gf4life replied to caweismann's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is possible to have a delayed reaction, or a different symptom occur after being gluten-free for a while. I had something similar happen to me. I had been gluten free and needed to go back on gluten for a biopsy. (This is not the recommended way to do accurate testing by the way. It can take 6 months or longer back on gluten to damage the intestines... -
ARCHIVED Enzymes
gf4life replied to BRCoats's topic in Gluten-Free Foods, Products, Shopping & Medications
Brenda, What kind of enzymes were they? Can you post the information from the label? I would be interested in helping you figure out why they make you feel this bad. I use Pioneer brand Digestive Enzymes and Herbs. I have also used Garden of Life brand Omega Zyme blend, but I got the powder thinking I could mix it with food and I didn't like the... -
Brenda, Whole foods would be foods in their most natural state as possible. No processed foods. Meat, poultry and fish are okay, grilled and such. Veggies either raw or steamed are good. Fresh fruits, but go easy on them if you are having delayed digestion since they could be fermenting in your intestines. Rice and potatoes, but not all the processed...
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ARCHIVED Play Dough Recipe
gf4life replied to SofiEmiMom's topic in Gluten-Free Recipes & Cooking Tips
I tripled this recipe to make enough for my daughter's kindergarten class and it came out fine, but I did need to cook it a bit longer until it was more firm and not so sticky. Here is my recipe (altered by combining a recipe out of Incredible Edible Gluten-Free Foods for Kids by Shari L. Sanderson and a very old book called Caring and Cooking for the Allergic... -
You could also have inflammation in your intestines without gas. I would try a very basic whole food diet for a while and see if it helps. I know it seems like you can't eat anything, but I really felt like that after I went gluten-free. I had been so sick and it seemed like nothing would digest for a while. The probiotics I tried made me feel worse...
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Sorry if I get a little personal here, but could you be bloated with gas? I ask this because this happens to me a lot. There are a lot of other foods that I am having problems digesting and I notice that with certain foods they seem to cause me to be very gassy and my intestines are almost inflated to the point of being painful. This makes my belly and...
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ARCHIVED Gluten Free, Casein Free Coffee Creamer
gf4life replied to HAPPY DOG SUZ's topic in Gluten-Free Foods, Products, Shopping & Medications
Many coffee's are gluten-free. I don't drink it anymore, so I don't want to list brands without being sure. Coffee bothers me even if it is gluten free. Mocha Mix Creamer is gluten free and casein free. I do use this, but as a milk substitute for cooking. It leaves the least noticable aftertaste. I water it down to a milky consistancy (about ... -
ARCHIVED Coffee Creamers,butter, Yogurt, Ice Cream
gf4life replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
Coffee Mate Creamers are gluten free. I don't know about International Delight. I can't use any of them anymore, since the dairy really bothers me a lot. Real butter should be fine and I believe Breyers does have many gluten-free flavors. You would need to read the labels or wait for someone who eats dairy to reply. If you continue to have problems with... -
Hi celiac3270. Thanks so much for the update. I sure hope you start feeling better soon, you should feel back to "normal" by tomorrow, but your "normal" has not been that great. We all want to see you feeling great. Certainly something is causing the irritation in your stomach. Hopefully the doctor can help you figure out what it is. Get some...
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I do tend to gain about 5 lbs or so when I accidently get some gluten. But when I have an "accident", the least important thing on my mind is my weight! I suffer so darn bad from just the tiniest amount of gluten... Now when I am gluten free I lose weight. I've lost about 25 lbs since January! Which is a big accomplishment for me. I still have about...