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gf4life

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Everything posted by gf4life

  1. gf4life
    I have been gluten free now for 18 days. I have just had an awful time. The first two times on the gluten-free diet (before testing) I felt relief of symptoms within a few days. After the two months of gluten loading for the biopsy, I am now gluten free forever, but not finding the relief, yet. I figure since I was consuming more gluten than I usually...
  2. gf4life
    Hi Cindy, Yes, it is common for Celiacs to have gallbladder disease and have their gallbladders removed. Soem doctors, if they find the celiac disease before they diagnose gallbladder disease, will wait a while before removing it to see if the gluten-free diet will help the gallbladder fix itself. Unfortunately for most of us, the gallbladder was removed...
  3. gf4life
    I was wondering where you guys live? $1400 and $2500! The copy of the bill I got from my insurance asking if I had any other insurance that could share the cost of the endoscopic test was $6500! This was 2 years ago and that stupid doctor didn't even take any biopsies, so I had to have another biopsy done, just last month, when I finally got another doctor...
  4. gf4life
    Hi, I think I can answer your question a bit. I'm not sure how new the gene testing is, but yes any doctor can order the test. They just have to know what to order. Your best bet is to get your doctor to order the test through Prometheus Labs. They are one of the most skilled and highly respected labs in regards to Celiac. If they won't order through...
  5. gf4life
    Hi Patty, Some doctors will tell you that they get many false positives, but they are wrong. You are more likely to get a false negative in regards to both the blood test and the biopsy. What a doctor refers to as a fasle positive is a positive blood test followed by a negative biopsy. There are many reasons for a false negative in the biopsy. First...
  6. gf4life
    I'm not sure how much of this I believe, but it is interesting to note, that I have a lot of health problems, and I was born in March. My son born in October, does in fact have Asthma, and my son born in June has the most symptoms of Celiac of all my children (still being tested). My husband , born in December has had problems with lung infections. My...
  7. gf4life
    Carrie, If your son is wheat free, then that means he is on a reduced gluten diet. He is probably still getting a little bit of gluten from other sources. You said you might be taking him in for a biopsy in a few months, and you need to know that a reduced gluten diet could cause a false negative biopsy when testing for Celiac Disease. You would have...
  8. gf4life
    I haven't been around much the past few weeks, for a few reasons. I mentioned above that my son was having surgery. His surgery went great, but we have been having to go out of town practically every other day for doctors appointments and have had to eat out a lot. It seems like I get contaminated everytime (except the one time at Mimi's Cafe). I have...
  9. gf4life
    VAGuy, Some people are also intolerant of corn, whether permanently or temporarily depends on the person, but you may want to eliminate it for a while and then try it again later. Unfortunately, like wheat and barley, corn can be found in a lot of different foods. I hope you figure out what is bothering you. I am thinking about removing potatos from...
  10. gf4life

    ARCHIVED Obesity

    gf4life replied to gf4life's topic in Related Issues & Disorders

    Nin, I am also gluten/casein sensitive. It makes the diet a little trickier, but I feel better off dairy. I was wondering how you found out about the yeast. I have tried making gluten-free breads with yeast and I always get very bloated. Is there a test available, or was it just a process of elimination? I am currently avoiding yeast right now. ...
  11. gf4life

    ARCHIVED Obesity

    gf4life replied to gf4life's topic in Related Issues & Disorders

    Laurie Anne, You could very well have put your body into a starvation mode. It will then hold on to every bit of food you eat, saving it for later, since it doesn't know when it will eat again. This can be overcome by eating 5-6 small meals a day, one every 3 hours. You need to make sure that you eat enough calories to feed your body, but if you want...
  12. gf4life
    I just want to get everyones opinion here. My opinion is that if you have any level of gluten intolerance then you have Celiac Disease. It is like saying that a pregnancy is not called a pregnancy until the ninth month! Isn't it still a pregnancy for the first 8 months! Celiac Disease has many stages, but most doctors will not call it celiac disease until...
  13. gf4life
    Shirley- Thanks for pointing out that article. I read it and was very glad to see that more researchers are picking up on the fact that the intestines is the place to test for antibodies! Again, thanks. Corryne- You certainly do not have to live without your sweets. You just need to make your own gluten free ones. My kids love the gluten-free brownies...
  14. gf4life
    Hi Tracy, I have not found two doctors in my area who agree on anything in regards to Celiac Disease. I have found many people on this site who have gotten their antibody levels down to zero, but most doctors are happy to have them below 20! I personally never showed positive on the bloodtests, even though I do have the disease. There are just too...
  15. gf4life
    Cocoa is gluten-free, as long as the manufacturer doesn't add anything to it that may contain gluten. Most chocolate on the market is gluten free. Mariann
  16. gf4life
    Alfalfa is listed on the safe ingredients list here at Celiac.com. I would assume the sprouts are also okay. Mariann
  17. gf4life
    I was just wondering if this is his total serum IgA? If it is, then he is very low and the regular blood tests for Celiac would not be accurate. If you can not get a doctor in your area to find the right tests to do on your son, you may want to conscider Open Original Shared Link . They offer a stool test and a gene test for Celiac Disease that can be...
  18. gf4life
    Freeda's are supposed to be gluten-free, and a lot of GNC brand are also gluten-free. Read all the labels. If it is a good company they will list if it is free of glutens on the labels. Mariann
  19. gf4life
    Bella, They start with the blood test, and then do a small intestinal biopsy. It is not as bad as it sounds. You are asleep for it, and they put a small tube down your throat, into your stomach and look at the upper part of your small intestine. They take a few small tissue samples. It usually doesn't hurt at all, some people have a little bit of a...
  20. gf4life
    Lee, You are right that you are probably getting hidden gluten somewhere on a regular basis. After two years your antibody levels should really be at zero. If you are still producing antibodies, then you are still getting into some gluten. That is really neat about the Christmas party. It sounds like you had a lot of fun. Many people have...
  21. gf4life
    ksccurrin, I was wondering if you have celiac disease, as well? Diabetes is a related disease to Celiac, and since Celiac is genetic I was wondering if have it too. I do hope your daughter will start eating right, but please do not force her too much. You don't want it to damage your relationship. She is almost an adult and she needs to learn to...
  22. gf4life
    Sylvia, I'm not sure about how to answer your questions. They seem reasonable ones to ask, but I'm not sure anyone will have the answers. My heart goes out to you right now, and please know that you are now in my prayers. I do have one suggestion about the food issue. If you know what hospital you will be at, please get together with their staff...
  23. gf4life
    I have this problem right now with myself! I am not really very hungry, plus I am frustrated with having to work so hard to provide food for myself! I can't just open up the cupboard or fridge and eat something! I have to practically force myself to eat and I am sort of grieving the loss of convenience foods. I am sitting here at 10:30 am, and still...
  24. gf4life
    Hi AntiGluten, It is quite possible that you are getting some gluten on a regular basis. I would suspect the meat as well. You may also want to have some carbohydrates in your diet, other that just fruits and veggies. Brown rice, white rice, maybe some corn bread (homemade so you know it is gluten-free). Have you had any follow up testing since...
  25. gf4life
    YankeeDB, here is the link directly to the lists if you have trouble finding them. https://www.celiac.com/cgi-bin/webc.cgi/st_...-03104570713.e4 I've noticed some conflicting into on maltodextrin, but it must depend on the source. This is what is said in the botton of the forbidden list about maltodextrin: I hope this helps. God bless...
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