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AVR1962

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AVR1962

  1. AVR1962
    Welcome! In the blood work, do you know if they actually tested for Celiac? If they did not, they might want you to do that and you ahve to be eating glutens in order to have any chance for an accurate test. Heads up on all this testing though, is none of it is real accurate. You could easy have Celiac and test now and results comne back negative, retest...
  2. AVR1962
    Sorry to hear, this has to be hard for you both. I agree with your doc, it is probabaly nerve damage as far as his pains are concerned. If he is not absorbing enough nutrients it will effect many part of the body but one of them is nerves. B12 helps and there are homeopathic products on the market as well. Nose bleeds can mean a lack of vit K Open Original...
  3. AVR1962
    I hadn't checked this post in awhile. Good to see someone else here from Germany. I'm located more mid-country, about an hour from Frankfurt. We are here due to my husband's job position. You'd think after 10 years I'd know more German but we live in a very large American community which many of the Germans speak English so thre has not been much chance for...
  4. AVR1962
  5. AVR1962
    Unfortunately testing is not real dependable. You could go back on gluten, retest, results could go either way.....a year later try it again and result may go the opposite direction. You have the answer. Keep your health and save yourself the agony!
  6. AVR1962
    To really give this a good test, I'll give you the advise my gastro gave me......go off glutens and dairy for two months. Gluten and dairy intolerance many times walk hand in hand because of the damage it does to the villa in the intestines. Once damaged you have to repair your system in order to tolerate dairy again. Read labels, go whole foods, natural...
  7. AVR1962
    This is all very confusing at first trying to figure which symptoms is linked to what, what is safe and what is not. I hear you loud and clear on that one. Here is a link that might help you relate the symptoms Open Original Shared Link jump down to the symptoms.
  8. AVR1962
    Welcome! Like you, my symptoms also were nuero and I was sent thru a battery of tests. At first it looked like something else and thought I was heading to surgery but then goping gluten-free changed everything. Good thing when I reflect is not only were they able to eliminate but in the process of testing they were able to link all the tests together and...
  9. AVR1962
    Gluten reaction for me is 24 hours after consumption, and these are some of the symptoms.
  10. AVR1962
    Did your dizziness go away with your other symptoms? The brain fog will go away too, it just takes awhile.
  11. AVR1962
    Going off dairy is a very good idea for now while your body heals. Sound like you have some vitamin and mineral deficiencies. Cramps & spasms in the muscles indicate your magnesium, and possibly potassium, is low. Insomnia is also an indicator that your body isn't getting enough nutrients. More than likely the villa in the intestines is damaged and not...
  12. AVR1962
    I am also sensative to salicylates. By going off I felt better in just a few days. Personally, I was having an itching reaction.....no bumps, just itchy everywhere. What I did may or may not work for you, I do not think I am as sensative as some. I eliminated the high sal group plus canned green olives (something I was eating a bit of), olive oil (again eating...
  13. AVR1962
    Sanaa, the stomach issue sounds like GERD. You said you stomach felt like it was on fire. Eventhought you may have never had acid reflux issues before I would guess the acid in your stomach is causing your pain. You will need to go to steps to protect your stomach: take an antacid 30 minutes before a meal and you may have to supplement with Pepto inbetween...
  14. AVR1962
    Skincrawling.....does it feel like you have something under the skin that might be moving or hairs on top of the skins that are really not there? That is from a lack of vit D, numbness/tingling you described could easily be a B12 deficiency. Are you also having Charlie Horses, restless leg, or muscle spasms? Potassium and magnesium can help these. Fish...
  15. AVR1962
    I found, for me, it helped with the intestinal yuck stuff but it did not help me with the dizziness. For me, being dizzy is my biggest symptom when I get glutened. You do take it before eating gluten like you would a lactose aide. It may work different for different people and I definately would not see it as a solution or a reason to be able to eat glutens...
  16. AVR1962
    Several things can make you itch and you will have to look at various things to figure it out. Take a look at 'high salicylate' foods. If this is what you are eatng, eliminate it for now. Caesins (dairy protein) can cause itching/hives. Look at your detergent, some scented detergents & fabric softeners cause problems. Check you lotion, they can also cause...
  17. AVR1962
    Did you get enough water? You really have to make sure of your water intake. Itchy is something I did not have in the detox phase but I did get it afterwards from eating tomatoes, cucumbers, green olives, raspberrries, zucchini.....which are all high salicylate foods. You can look that up easy enough and see if that could be a possible connection to the itching...
  18. AVR1962
    Fluids w/o caffeine- juice, Gatorade, ginger ale, room temp water with lemon.....lemon will help settle the stomach. Honey if you have a dry throat, dry toast which is also settling to the stomach. Fruit to help restore your vitamins. Pain reliever, warm wash cloth to the head, and some extra sleep.
  19. AVR1962
    Yes, and they have been okayed by my doc. The vits you mentioned are a good start. And I have to apologize, I mentioned potato skins for more zinc intake, got my minerals mixed up. They have copper in them Open Original Shared Link Great food source as they also have magnesium, vit c, potassium and B6 which are all vits your body is probably really needing...
  20. AVR1962
    Are you at a normal weight now or underweight?
  21. AVR1962
    Add some bananas into your diet and some zinc, good for your hair which you can get thru skins in potatoes if you don't wan tot take the supplement. You mentioned these bumps came and went and I had a lightbulb moment.....I had the same thing on my back. They itched, I thought they were moles. Went to GP and was told to set up with derm doc but by the time...
  22. AVR1962
    Yes, and again read labels as there is dairy in alot of things as well. Hard cheeses should be fine as the longer the aging process the more lactose goes out of the cheese but for now it might be worth trying. There are butters on the market that are lactose free.
  23. AVR1962
    Not a bad idea. I actually had a growth on my thyroid which was found during a scan.....I was having a very odd cough that I could not relate to anything, terrible time regulating body heat and would have to climb into bed under lots of blankets with socks on with flannels for hours to get warm. I would choke easily, swollowing was hard for soups, of all...
  24. AVR1962
    You mentioned being dizyy and I just wanted to add that you might read about "axatia" and see if that sounds like what you are dealing with. I have it too and that has been the last symptom, along with vertigo, that I have yet to completely get rid of. I recently added copper into my diet as this is one thing that I have read can help. Right now I am taking...
  25. AVR1962
    The tongue pic looks like you are having a reaction to something. I have family members who have these issue and theere is a whole list of fruits that have caused their issues, bananas and pears included. I have a grand daughter right now undergoing testing for what you showed in your pic, she ate a pear and this happened to her. It sounds like you really...
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