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AVR1962

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AVR1962

  1. AVR1962
    I know what you are saying. I have been invited to functions and gone out to buffet dinners only to learn that I pretty much can't eat anything and at first it really got me down. I had to realize that they might not understand but I know what my sitaution is and I know that I cannot have certain foods or even chance CC so make it fun for yourself. Don't...
  2. AVR1962
    Your bewilderment as far as being told you had GERD was my own thoughts several months ago. I had never had acid reflux issues, like you occasional heartburn. The GERD was definately connected to the celiac for me. Doc gave me a prescript to take once a day but my stomach was so bad I ened up taking 2 and 2 doses of Pepto in between. I went off dairy as dairy...
  3. AVR1962

    ARCHIVED Magnesium

    AVR1962 replied to bny06's topic in Coping with Celiac Disease

    BNY06, at 4 weeks on a gluten-free diet and still making 8-10 trips to the bathroom, I am wondering if it is not just gluten effecting you. If your diet has been tight you might want to explore going off dairy as well just to see if it too could be causing you issues.
  4. AVR1962
    I personally have had alot of nerve issues. I contribute it to my back and have no doubt the malabsortion is part of it. Yoga and strething are great, stretching & exercise is how I work my issues out. Be real careful how you position yourself to sleep (Mayo clinic site has great info on this), and while exercising make sure you have no pressure on your...
  5. AVR1962
    It is hard when we don't have the support from the ones we love. However, we also have to do what is best for ourselves at the same time. I also have a teen at home and wondered how I was going to change things so that the family wasn't inconvenienced but it never became an issue. They eat my gluten-free pasta and cannot tell the difference. If I make a gluten...
  6. AVR1962
    The label says it is an internal cleaner not to be used in the case of poisoning and that combined with meds it can lessen the effectiveness of medications. Basically what it does is it absorbs and then it carries what it absorbs out of the body. It isn't able to just attack the gluten (unfortunately), it takes everything so I only use it when I have to as...
  7. AVR1962
    Don't feel dumb. At first I wanted to figure out just how sensative I was, I also wanted to make sure of what I was delaing with and reacting to so I did the same and every single time I had a reaction and the more you stay gluten-free you will probably find your reactions to be worse with time, at least I have.
  8. AVR1962
    You could very well could be reactioning to something else besides glutens, common reactions are to dairy, high fructose, soy, and some can't have other grains. I would suggest you keep a journal, go to a raw/natural diet as much as possible trying to get nutrients into your system. Being so sensative right now it is important that you focus on healing. You...
  9. AVR1962
    Activated charocoal and I do not even wait anymore to see if I am going to have a reaction. If I question something, like in your situation, I will take 6 tablets, each have 280 mg of charcoal. The bottle says 2 but I take 6, and it works wonders!
  10. AVR1962
    I will get glutened symptoms from high fructose.
  11. AVR1962
    I eliminated all boxed, canned, frozen, mixed anything, and dairy. Anything that had a long list of perservatives like candies, soda, etc. I took chips out of my diet, and ate no fast food. Too much junk in all of that. Because I had bone loss I went to a low acidic diet which you can google and find easy enough. Basically I went natural as much as possible...
  12. AVR1962
    Having a negative test doesn't mean you don't have celiac, tests for this are not reliable unfortunately. If I had tested 2 years ago I seriously doubt that tests would have came back postive and I am pretty sure I have this all my life. My advise, as hard as this my sound, is go off gluten (read labels) and dairy for 2 months. I know that sounds like...
  13. AVR1962
    Don't get discouraged. Tests are not accurate. Most of all you have to do what you can to protect your health. Don't give up and consider this not either Celiac or a gluten-intolerance. I know what you mean about questioning yourself, I did it too. I really thought I just had a gluten intolerance. I could not go thru for the testing for celiac as it made...
  14. AVR1962
    Mandopicker7, more than likely your body is defiecient in magnesium. Look up a list of high magnesium fruits and foods and try to incorporate them into your diet. Suppelemnts help as well. Try to stay as natural as possible, meds can have side-effects. Docs will hand out prescripts in a heart-beat. I stay away from perscription meds as they can polute the...
  15. AVR1962
    Marilyn, drat a hematoma. I am assuming you are on meds to dissolve it? I have had them, they slowly dissolve. I am doing much much better. 5 months now into my gluten-free diet, supplementing and changes in my diet have made a world of difference for me. I can look back now and see how awfully sick I was and in some ways very frightening. When my calcium...
  16. AVR1962

    ARCHIVED Magnesium

    AVR1962 replied to bny06's topic in Coping with Celiac Disease

    Yep, we generally are low in the magnesium department. You can take supplements and may have to to start with until you can get your diet figured out. Look up magnesium rich fruits and foods and try to incorporate them into your diet and you'll find the twitches will go away completely!
  17. AVR1962
    It is so good to find someone who has been dealing with the same issues. Yes, you can join the group and your posts will not go out to your friends' pages. It will show on your page that you visited so if you do not want that to be seen just delete it from your page, that's what I do. There are several in that group whose docs have said their situation my...
  18. AVR1962

    ARCHIVED Bone Pain

    AVR1962 replied to pondy's topic in Coping with Celiac Disease

    Cougie23, hang in there. I do so know what you are saying about the support from family and friends, and I too have been to the docs repeatedly and feel I am not being heard. I have veen questioned my own sanity at times but what is going on is very real and there is a reason for all of it. I know someone who is celiac and we can chit chat forever and we...
  19. AVR1962
    Yes, you can regain your energy and the symptoms mentioned will go away if you keep a real strict gluten-free diet and get all the nutrients your body needs. You could easily be deficient in some vitamins and minerals which are causing part of your issues. Celiacs typically have problems enough B12, iron, calcium, magnesium and vit D. I basically had to relearn...
  20. AVR1962
    It sure does feel great to be feeling near normal again. It was a short jog and I can tell I still have some ataxia going on still. Did an hour walk yesterday and hoping to continue to move forward from here!
  21. AVR1962
    You have received some wonderful advise here. I cannot emphasize enough the importance of proper nutrients and if you cannot get it all thru food I am a full believer in supplements. Sounds like you need more nutrients.
  22. AVR1962
    A prick test puts the allergins into your body and you definately would have a reaction to anything that you were intolerant/allergic to. If you think you could tolerate the glutens as long as docs wants to get your test it is worth it BUT the thing with that it is not always conclusive and the testing is not real realiable. You could very well have celiac...
  23. AVR1962
    This is the tricky thing, without looking at everything you have been consuming it is hard to say. Assuming your gluten free diet is tight and you have read all your labels (only gluten-free chapstick, cooking spray, etc), your household is clean (meaning no crumbs), and you have been avoiding fast foods, canned, frozen and boxed foods then I would look at...
  24. AVR1962
    I didn't know that anything like that even existed. Yeah, definately no bargain but did you like the magazine and find it informative??
  25. AVR1962
    Thanks for all the ideas, I'll give it a try!
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