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blueshabooMoon

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Latest Celiac Disease News & Research:

Everything posted by blueshabooMoon

  1. blueshabooMoon
    Thanksfoe posting about this, I follow strictest gluten free eating and I know I have been gluttened somehow, had 13 days chronic Diarhea, cannot leave house, cannot go up to hospital see my new born grandson, am reduced tears and I never cry. Feels like 7 months ago before celiac diagnosis, scares me that I will relaspe get wrdsw worse again.I am going to...
  2. blueshabooMoon
    Wow..I am desperate also vision screwy issues eyes tests perfect, I am going to try cod liver oil also.Thanks for sharing, Terrilynne
  3. blueshabooMoon

    a month into Gluten free, using great food/symptom diary with Charting graphs, clearly see on rise of Feeling good Active time each day & the bad are on the decline Whoop Whoop, Ataxia is 50-90% better amenh

  4. blueshabooMoon
  5. blueshabooMoon
    Hi, searched lot sites concerning Maalox, on Living strong Gluten free Medications it shows Maalox as safe.Did you find out anything more about it.Been Gluten free 3-4 weeks and taking Maalox every day, hope safe and not what is making me still feel like crud. Over-the-Counter Gastrointestinal Medications The list of gluten-free over-the-counter gastrointestinal...
  6. blueshabooMoon
    omg I have been taking Maalox everyday, been gluten free for 3 weeks aprox, I don`t want to take Pepto people mention, constipated enough,ugh.Terri
  7. blueshabooMoon
    Ugh! Been gluten-free about 2 weeks, Monday & Tuesday felt great like Super-Woman,loads energy did lot long neglected chores at home,then wednesday through today feel so sick,worse,like flu.Dizzy-off balance, digestion big `D`,woozy,had headache yesterday which is rare for me,drinking maalox,woke up shakes & trips to bathroom today,keep feeling balance...
  8. blueshabooMoon
    If you look in "Cecelia`s Gluten-free Grocery Shopping Guide"[they adhere to uber-strict gluten free , there is loads gluten free chocolate safe,M7M`s[not pretzel ones], Rescee`s peanut butter cups original,Hershey`s Heath Bars & Chocolate Kisses, Brachs chocolate Stars,Payday candy bars, Skor,York Peppermint Patty,Plain Hershey Chocolate bars,Andes thin...
  9. blueshabooMoon
    So excited that you shared this, can`t wait to make this crock-pot yogurt~You are a wish come true to post this, Terri
  10. blueshabooMoon
    Hi, It`s not just you, I cannot make myself fimish a bar either,waste of money, Blah! try find different snack goodie.Terri
  11. blueshabooMoon
    Big Mistake, didn`t have my `Cecelia`s Grocery market Gluten free Guide` on me and purchased Dannon Frusion smoothies banana strawberry. I had just left doctor`s office from having a fasting bloodwork and here it was 1pm needed something drink fast, so downed half in car.Got home put away groceries and Wham, dizzy, nauseous,feel like flu,run to bathroom,...
  12. blueshabooMoon
    Sam & Louie`s Pizza & Godfather`s Pizza both have Gluten free pizzas now. Sam & louie`s has all pizza toppings available Except meatballs & alfredo sauce, they have a grilled chicken gluten free salad also. Godfathers can order hot baked gluten free pizzas available or fronzen to bake at home later. Terri
  13. blueshabooMoon
    Thanks for load of info on ataxia above post, neurologists have worse bedside manner of any Docs [downright mean, arrogant, condenscending, belittle you],, brings to mind an episode of the Golden Girls when Dorothy finally gets diagnosed with Epstein Barr Virus and tells off her original doctor who said she was nuts and wanted to find something wrong and...
  14. blueshabooMoon
    Wow, a Celiac Center, Where at? If only we could all be so lucky to have a celiac center,Terri
  15. blueshabooMoon
    Yes , you are so right that they are or need to recognize `gluten-sensitivity` especially if had bloodwork show strong-high-positive. The experts say the following "Clinically pertinent coeliac disease exists despite normal small-bowel mucosal villous architecture. Mucosal transglutaminase 2-specific IgA deposits can be utilized in detecting such patients...
  16. blueshabooMoon
    Like you quote I am not a Celiac, i have celiac disease but that is not who I am. Well dang it I am going through rough patch again [newly diagosed], and I feel like I am the celiac disease, want to get a handle on this and live life outside the house & restroom again like a `hermit`as you so perfectly coined it.Bad days put in in panic mode, so afraid...
  17. blueshabooMoon

    What experiences do we have in common in our parallel universe? Lots. We often feel that it’s our fault we got sick – as if we’ve let our family and friends down. We know the challenges of adjusting to a life of relative social isolation. We know the experience of people not wanting to be near us, even though we’re not contagious. We get frustrated by the lack of understanding in the general public (and often the medical community) about the nature of chronic illness. ...

  18. blueshabooMoon
    Wow Skylark, thanks for sharing this info, these were thoughts I have tossed around in my head and concluded much the same that you confirmed and articulated so well for me and others. Terri
  19. blueshabooMoon
    Hi, I have read that there is Celiac Sprue [celiac Didease] & Celiac sensitivity [when all blood work positve but biopsy normal] & Gluten intolerance [allergy testing]. It has been said that a confirmed biospy diagnosis can only Rule celiac In, it cannot rule it out [ Clinically pertinent coeliac disease exists despite normal small-bowel mucosal villous...
  20. blueshabooMoon
    You are on the right site, learned more here than from all my doctors. google and check forums here especially about " celiac Ataxia" people suffer pre-syncope, fainting, balance coordination, anxiety,Terri
  21. blueshabooMoon
  22. blueshabooMoon
    Hello, almost every medical site you read frpm the Chicago Med Center who are top of field in Specialized Celiac Dr.`s to Columbia University, all state why it is important if diagnosed to follow life-time strict gluten free diet. Left untreated or by ignoring confirmed celiac disease could be life threatening for you. We celiacs are prone to be afflicted...
  23. blueshabooMoon
    Hi, where do you find-get `Schar` Crackers...I need crackers, so far on my own I cut slices Udi`s bread into 1/4`s and toast with olive oil & seasoning on cookie sheet [similiar to how make croutons], and have littel toastettes to put meat spreads, cheese etc on.Thanks ever so much for tip, Terri
  24. blueshabooMoon

    Glad to hear you endo was a breeze! Looking forward to sharing lots of great ideas!

  25. blueshabooMoon
    Hi Peg, you found the right place, I have conversed with some of most genuine kindest people on the planet here. The ear thing is common symptom and so is vertigo also balance issues with celiac are called Ataxia, google it and see if fits what you are experiencing. I too am suffering being off balance, unsteady gait when walking, very frightening. I posted...
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