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Mdhriggin

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mdhriggin

  1. I am the wife and mother of three with celiac, and we have a gluten free home (I only eat gluten at restaurants). So I have a sense of your dilemma. Sometime my husband orders things fried with gluten, and he ends up payin the price later. The part that might be helpful in terms of a reframe was that If you wanted him to be weak you would have him eat gluten...
  2. My pediatrician does do a blood test every year just to make sure the kids aren't getting gluten from someplace - but we don't do it to confirm celiac but to make sure they aren't having any antibodies from food we may not realize has gluten. This is important for my son, who has few gastrointestinal reactions to consuming gluten even though he has celiac...
  3. Both of my children had similar blood test results. My daughter did have the endoscopy to confirm because he was the first in the family to show signs. But my son did not because by then we knew his sister and father were celiac. The pediatrician was okay diagnosin him without given the family history. We have not had problems with schools or anything the...
  4. My daughter was diagnosed at 21 months, and so we kept my son gluten free until he was 12 months. We started him on gluten and within two months he was showing celiac signs, so he was diagnosed then. It is definitely possible especially with the family history and those symptoms
  5. Amy's makes a pretty good gluten-free Mac and cheese, and there are a number of good gluten-free pizzas out there. My daughter really like the Rudi's multigrain bread, although we make our own as well using bob's red mill flours. Betty crocker had gluten-free Cake and cookie mixes, which my kids make with me. Ian's has a decent chicken nugget (although pricy...
  6. The smoothie ingredients could be getting cross contaminated at the plant. Are you using a shared blender? That could do it too. Also, many people with gluten issues have trouble with casein, whether permanent or temporary. Maybe try no smoothies for a few days, them try some without the possibility of cross contamination.
  7. It doesn't sound unreasonable that you could have been glutened. It sounds like how my daughter reacts to even just a little cross contamination.
  8. Me and my family are going to be in the Fort Myers area for Thanksgiving. Which are the best grocery stores for gluten free shopping? We're staying in a condo so will be able to do much of our own cooking.
  9. My 4 yr old daughter is pretty good about recognizing what she can't have, and then we swap gluten-treats with safe treats and I bring the gluten treats to work. I live in a small town and most of our neighbors know us and and the kids gluten issues, so they look out for them.
  10. Both my kids were really young when diagnosed (<2) but my daughter especially was STARVING when eating gluten. Used to wake up at 3 am to have a full meal because she wasn't absorbing nutrients. Now that she is 2 1/2 years gluten free, she eats about normal. While his behavior maybe reinforced by his peers and his age probably contributes, I would bet...
  11. As the only member of my house who can eat gluten, I am saddened by your husband's response. It did take us a while to figure out what he and the kids could and couldn't eat, as well as how to avoid cross contamination when we were eating out. I have found that honest communication (honey, I feel frustrated when you point out foods I like but THAT WILL CAUSE...
  12. @nvsmon - thanks for the reply. While I am disappointed that he is going to struggle to with celiac, my daughter seems to be living with it extremely well and I hope my son follows suit. We are so lucky that we have good doctors (their pediatrician is great) and a really great daycare (they actually noticed and suggested the testing because they had seen...
  13. I strongly recommend Quinoa pasta - we live on the Ancient Harvest brand
  14. That is what I was thinking - we'll see if the pediatrician is on board tomorrow. My thought would be I would rather do a genetic blood test first at this age given how unreliable they are with kids so young. My daughter has a violent reaction to being glutened, and my son seems to be developing a similar reaction.
  15. Are you anemic? Low iron has caused severe fatigue in my husband who has celiac
  16. Okay, so I need some advice. My daughter was diagnosed with celiac disease at 21 months via blood test and endoscopy to confirm. That was 2.5 years ago. My husband also has celiac (found out after my daughter was diagnosed). Now my almost 15 month old son was showing symptoms, so I had them do the IGA and IGG tests - came back positive. We had switched him...
  17. Given your symptoms (celiac, lack of menstruation, shorterned stature) you may want to look into getting tested for Turner's syndrome. One of my students wrote her Master's thesis on the topic (asked me to be on it because of my experience with celiac). It is when you have a missing x chromosome and it is only in women. Other symptoms include a large number...
  18. If you don't already, the subscribe and save from amazon for things like quinoa pasta, gluten-free crackers and animal crackers, gluten-free cereal, etc is a life saver! And it does get easier, once you get down which ingredients are gluten-free and which aren't. Shopping actually takes me less time now since we can't just throw anything in the cart. While...
  19. My daughter who is celiac had a gluten reaction after eating nuts because of cross-contamination. Check the label - some nuts are often packaged on lines that also package wheat.
  20. Sounds a lot like what my daughter experienced before getting the diagnosis at around the same age. Start with the blood test. If nothing else the smelly diarrhea is a malabsorption of some kind.
  21. Trust your gut and get them tested! All first degree relatives should be tested - that's how we found out my husband had celiac after my daughter was diagnosed. Although I respect doctors and know they do not want to run extra tests, this is a simple blood test that can provide so much information. I think as mothers we often question ourselves as to whether...
  22. First of all, congratulations on the engagement and upcoming marriage! I can understand where you are coming from. Our daughter was diagnosed when she was 21 months old, and my husband and I were deciding whether or not to have a second child - especially when we found out my husband also has the disease. In the end we decided that the joys of having a...
  23. My daughter's was not that high when she was diagnosed at 21 months, but it was up there. It was through the classical presentation of celiac disease in my daughter that we realized it was present in my husband's family line. Once she was diagnosed he went through the testing and found out he also has celiac disease. One thing to think about (if you live...
  24. Great question - one I had too. My 4 year old daughter and husband both have celiac, and when my infant son was two months old he started having serious skin issues. The nurse at their daycare suspected ichthyiosis, so I started doing some research. There are a lot of different forms of ichthyiosis, the most common form (according to the pediatric dermitologist...
  25. I feel for you! My husband (who also has celiac as does my 3-year-olds daughter) is a manager for a college food service. He has worked with many of the chefs on campus to provide a lot of gluten free options for students who need it, but it was difficult. I definitely agree that talking to disability services is needed, as well as the hall food service managers...
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