UKGail
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Latest Celiac Disease News & Research:
Everything posted by UKGail
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ARCHIVED Need Some Advise And Support
UKGail replied to KatieJo88's topic in Coping with Celiac Disease
Marilyn - sorry to hear about your lupus diagnosis. Has the doc decided which of the various manifestations it is? I do hope it is one of the milder, less troublesome types. -
ARCHIVED Gfcfsfef - What To Eat When You Can't Cook Or Bake?
UKGail replied to hitchhikers's topic in Coping with Celiac Disease
If the OP is very sensitive to corn, then tinned foods might be a problem (due to the can being lined with a corn-derived product)- see posts by Bartfull who is trying to manage a severe corn intolerance and can't eat canned food. Hopefully the OP is not as sensitive as this, as canned meat, vegetables and fruit are great for easy, wholesome meals. As... -
ARCHIVED I Got My Period!
UKGail replied to dani nero's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
IH, you have had a tough time. I really admire your positive, forward looking attitude! Lisa - I understand your point about BC pills interfering with the natural cycle. I took them for about 10 years, and stopped when we started trying for a family. I was one of the lucky ones in that my periods returned straight away. It did take a year for me to... -
I used to get regular nosebleeds, particularly as a kid. Only once since going gluten free, and that was when my sinuses, which are also a problem, were particularly painful. Interesting about the vitamin K. For me, I suspected it might be linked with systemic inflammation. Another of my symptoms was painful varicose veins in my legs, and so-called...
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ARCHIVED I Got My Period!
UKGail replied to dani nero's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, I know what you mean. I am still reacting at a lower level, so I keep thinking it may not happen next month. But it does... For me, it is very light and short (well, at least compared to what I was used to earlier in life...). At this stage I don't know if it is because I am simply peri-menopausal, which is quite likely at my age of 47, or because... -
ARCHIVED I Got My Period!
UKGail replied to dani nero's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey Dani - That is really great news. I am really happy for you. I think you said you had been without your periods for a very long time? May I ask how long it is since you went gluten free? -
ARCHIVED Lupus? Connective Tissue Diseases?
UKGail replied to suziq0805's topic in Related Issues & Disorders
So it's a bit ironic that Docs have such a hard time diagnosing "seronegative" celiac disease! -
ARCHIVED Lupus? Connective Tissue Diseases?
UKGail replied to suziq0805's topic in Related Issues & Disorders
yes, I think that's right. A good rheumy observes for a period of time and might decide to diagnose based on symptoms. -
ARCHIVED Lupus? Connective Tissue Diseases?
UKGail replied to suziq0805's topic in Related Issues & Disorders
That is good news, albeit you have had a worrying time! -
Yeah, that's it. I can't take anything for it, except possibly one dose at the outset. It doesn't touch the pain at all. I also get bad nausea, and medication when I have a migraine/glutening just makes it worse. As for temptation, I don't feel it. My migraines and nausea/sickness with body aches and pains are so bad for a day or two (I am typically...
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Its nice to know I am not alone in this!
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Getting a migraine is one of my primary symptoms of a glutening, just from cross-contamination or (for me anyway) by inhalation of gluteny cooking fumes.
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Oh, and I take paracetamol, maybe with codeine if I ache particularly badly. These days do seem to becoming fewer in number though.
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On the days when I feel I am finally getting a good grip on what I can and can't eat, I feel much more energetic (well everything is relative!), so I think, great, I can get a few of the myriad outstanding jobs round the house done. So I then run round the house like a mad woman making hay while the sun shines, while my husband looks sceptically at me. ...
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ARCHIVED My First Post
UKGail replied to Ava rose's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Ava Rose - just a quick note to say welcome. Please keep eating lots of gluten (supposedly at least the equivalent of 3-4 slices of bread per day) until your biopsy. I made the mistake of eating gluten light in the few weeks before my biopsy as I couldn't bear it any longer, and my biopsy was negative. Once the biopsy is over, then you can give the... -
ARCHIVED For The Older Ladies W/o Gold Seal Dx
UKGail replied to AVR1962's topic in Related Issues & Disorders
My periods stopped at age 44, after I had been feeling unwell for some months, with, including other things, hot flushes and low sex drive. A gyn doc diagnosed ovarian cysts and gave me a short course of hormone for them. The cysts resolved, my periods restarted, and the hot flushes died away. At the time I was had started eating a low gluten diet, and... -
ARCHIVED Does Super Sensitivity Exist?
UKGail replied to weluvgators's topic in Super Sensitive People
IH - please do. Happy to chat about my pet topic! There is more than I wished to put into a brief post. And slowly is absolutely the way to do it, as you can only go as fast as your body can cope with! -
ARCHIVED Does Super Sensitivity Exist?
UKGail replied to weluvgators's topic in Super Sensitive People
IH - "My doctor tells me "Be Patient". I am, I am!!...but it is not easy as I am in terrible pain and I cannot take a thing for it." I am sorry to hear this, particularly as you are so positive and upbeat in your numerous posts here. I think I read elswhere that you lost a lot of muscle when you were ill before diagnosis, and suffer from major nerve pain... -
ARCHIVED Does Super Sensitivity Exist?
UKGail replied to weluvgators's topic in Super Sensitive People
IH "I always say I "wish I were a NORMAL celiac"--you know, 6 months on the diet--and someone feels great? If only. It's going to take me years." Ha Ha, yes I have a friend who is one of those. Diagnosed by positive blood and biopsy last year, after feeling tired due to anemia. She had previously been one of those people with boundless energy and enthusiasm... -
Bartful I am so pleased you are starting to find some foods which you can tolerate. I am interested to hear how it carries on for you. Whilst I don't have your huge problems with corn etc, I have been trying to narrow down the causes of my remaining problems (mainly fatigue and brain fog, with digestion problems and some abdominal pain - but all variable...
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ARCHIVED When Will I Stop Losing Weight?
UKGail replied to skinnyDiva's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh dear, that is a large weight loss in that time. My friends and family are noticing my circa 25 lbs weight loss, and either complimenting me or worrying about it. It would be odd for me to lose much more, as our family tends to the well-padded side, even the more longstanding celiacs among us. Only time will tell. I hope you get a handle on your weight... -
ARCHIVED Reaction To Buckwheat And Other Grains?
UKGail replied to SGRhapsodos's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Irishheart. You are quite right. I had been taking digestive enzymes following a suggestion from Roda, and it helped significantly. Once the course ran out I didn't get a new one, as I was much better, and by then didn't really notice the difference in not taking them. However, things have gradually got worse again, following a few probable glutenings... -
ARCHIVED Reaction To Buckwheat And Other Grains?
UKGail replied to SGRhapsodos's topic in Gluten-Free Foods, Products, Shopping & Medications
I have also been gluten-free since end of August, and feel better if I stick to getting my carbs from starchy vegetables. However, although I have no trouble avoiding gluten, I do find it difficult to completely stay away from grains. This is sometimes due to the convenience of some grain-based foods when I am pushed for time, and sometimes because I really... -
ARCHIVED I Feel Like Dr. House Detoxing From Vicodin :(
UKGail replied to Meggielynn13's topic in Coping with Celiac Disease
Wow you seem to be doing everything right, and you are getting some really good advice from Irishheart and all the other posters above. I know what you mean about being hungry all the time though - I went through a short phase of this too - and I am convinced it is your body telling you that it is ready for the healthy food that you are now giving it... -
ARCHIVED Learning Another Language?
UKGail replied to Newtoitall's topic in Introduce Yourself / Share Stuff
Immersion by whatever method you can cobble together is absolutely the best way to go. As Kjas said, listening as much as possible to native speakers to pick up the patterns of the language, will help you most. Supplement that by learning some of the basics from more formal teaching materials, but don't get too hung up on that. Just use the materials to...