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Finally-45

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About Me

Celiac symptoms since childhood, with no diagnoses til age 45

Confirmed Celiac diagnoses summer 2011

Gluten-free since summer 2011

Severely corn intolerant June 2012

Grain-free since June 2012

Just enough Irish genes to put up a fight and beat all of the above.

  1. icon Aleda D reacted to a post in a topic: Caramel Coloring?
  2. Finally-45
    I have a very similar reaction to chips. I had to cut iodized salt, nightshades, and corn/corn oil (which is also in iodized salt) which all tend to be a risk in chips. Seaweed is high in iodine.
  3. Finally-45
    What exactly makes you think you're intolerant to fat? Just asking since many Celiacs have fatty stools and it makes some people think their bodies don't like fat, which is not the case. I'm also a reformed dairy addict. I'm intolerant, but can't figure out if it's the lactose. I just know I do tolerate kefir, which is 98% lactose free. It's not allowed...
  4. Finally-45
    Like Alex said-- go for histamine intolerance. It has a high likelihood of being unpredictable, weird, and easy to fool Drs.
  5. Finally-45
    I strongly agree with Adelaide! I didn't want to believe it at first, but you can have multiple diet-related conditions. I think if the Celiac condition comes first, we're so happy to have an answer to our health questions, we're convinced it's the ONLY answer. Many people with mastocytosis don't tolerate soy, eggs, wheat, rye, barley, or poultry that...
  6. Finally-45
    I'm a witness that gluten in supplements still cause harm. The sublingual vitamins often work out as grain free.
  7. Finally-45
    Many of these symptoms are also symptoms of mastocytosis.
  8. Finally-45
    You may have already found the low-histamine & tyramine diet recommended for people with mast cell disorders and others, but here it is: http://www.mastocytosis.ca/MSC%20HT%20Restricted%20Diet%20Nov2012.pdf Note that it's a good starting point. Most people find they have to customize their diet to look a lot like this one plus a few adjustments...
  9. Finally-45
    I've been in your shoes too. I hope you figure it out soon. The Naked drinks have cross contact with barleygrass, which is in the Green one I believe. Some ppl say it doesn't bother them, but I don't tolerate barley or wheat grasses. I let go of the Naked drinks about a year and half into the gluten-free diet. It wasn't obvious at first, but they...
  10. Finally-45
    After an initial blissful period of eating gluten-free products, I gradually became intolerant to other grains. Corn and oats commonly get complaints from Celiacs though.
  11. Finally-45
    Good advice.
  12. Finally-45
    I found the Paleo diet to be a good starting point for the elimination diet. The most common culprits are already off of the Paleo diet.
  13. Finally-45
    Nope.
  14. Finally-45
    There is a diagnostic tool online that explains the rules for mastocytosis diagnoses. I had the skin biopsy, however I have symptoms far beyond cutaneous... so I'm still under testing and eval. My diet is outrageously limited due to GI problems and about 40 other symptoms. That's just me though...like I said, remember each person is different. There is...
  15. Finally-45

    ARCHIVED Alcohol

    Finally-45 replied to BarryC's topic in Food Intolerance & Leaky Gut

    The alcohol intolerance is a symptom of mastocytosis. Mastocytosis isn't the same as being histamine intolerant. Ironically, it's a lot like comparing Celiacs to ppl with gluten intolerance. Also, the lists of symptoms for each are long, but it's not as if every patient has every symptom.
  16. Finally-45
    I'm trying N-acetyl-glucosamine (NAG) in combo with other treatment for GI allergies and a low- histamine diet. I'll be sure to follow up with how it all works out. The NAG may help allow lectins to pass through the gut without wreaking havoc.
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