tiredofdoctors

I was scrolling through the sports and fitness category. There's a thread on there about Team Celiac -- it's a fundraiser walk/run for Celiac. The whole information is on that thread, which is very informative. At any rate, they're going to be in Lake Placid on June 11, 2006 and it looks as though it will be big. Perhaps that is the way to get to the bigger programs, such as Oprah. Just a thought . . . Lynne

I agree with Patti -- if a phone call is all it takes from keeping you sick, that's a smallprice to pay. . . . Lynne

I'm such a chicken that now, I buy plain yogurt, add a little sugar, some vanilla extract, and whatever fruit I want -- kind of mix it up like I did with ice cream when I was a kid, and voila -- fruit-flavored yogurt! I'm starting to get to the point that I think I'm quirky about gluten, but it's scary that it's everywhere. I didn't know that Kroger was changing their Corn Pops, too. Now I have to send my husband out to buy up all the Kroger Corn Pops that don't contain wheat! . . . Lynne

I think it was something exactly like you said - all I know is it made me mad! I'll post it as soon as I get a response! . . . Lynne

Nini -- I cannot believe that I'm sitting here crying over McDonald's products. It's just that, when I think of kids, they all think that McDonalds is the fun place to go, and trying to give your kids a normal life is hard enough as it is. Much less to have to find out that they put ingredients in their products that would make them sick. That just breaks my heart. My kids are grown -- 19 and 23, but they had food allergies that were moderate, and that was hard enough. It was nothing like celiac. I am so sorry for you. Honest to God, if we can prove that they are misrepresenting their products or ingredients, or are talking out of both sides of their mouth, I think we should somehow manage to get it out on a national news program what is happening.

Susan -- never apologize for helping to keep people healthy. Each time I eat gluten, another portion of my cerebellum and retinas gets destroyed. I have been eating McD's fries because I thought they were safe. How much of my brain is gone because of it? And are their fries the reason that the double vision in my left eye won't leave now? Thank you for exposing them. . . . Hugs to you, Lynne

P.S. -- Karen, I was wondering where you were! Hope you're feeling better Lynne

teebs --Thanks for the info - I guess having a biopsy on your face wouldn't be great, but I've had one on my neck muscles, on the deepest muscles of my inner thigh, my small intestine, two after lumpectomies, why not my face, too???

I do think that it's odd that the "pustules"? come out each time I'm glutened. I've been strict on the gluten-free diet for 33 weeks now, and when I don't accidentally come across gluten, my face looks really good. (you know what I mean -- my skin)

The things are starting to leave, because I was glutened last Monday, and my ataxia is not as bad as it was last Tuesday. I guess I will have to wait until the next time I'm glutened . . . . but hope that it never happens!

Where in WV do you live? I have in-laws there -- it's beautiful!

I use a combination of egg and whey protein -- supposedly, it's gluten-free. So far, haven't had a problem with it. I had asked someone about casein sensitivity -- dont' think I got an answer -- I think that would be the only difficulty you would have with whey protein.

When I was working there as a kid (16) which was a REALLY long time ago, the french fries came in half-cooked -- they were first cooked in lard, then frozen. We did cook the hash browns in the same vat that we cooked the fries. Now?? Who knows. I do know that the Gluten Free Bible states that the Chicken Bacon Ranch salad is gluten-free, but this list DOES NOT. I'm in for bombarding McDonalds and getting some real answers. Let me know if you want a revolt! . . . . Lynne

Now that my husband has taught me how to post the replies I get from companies, I can finally pass on the information I get. Here is the response I received from Neutrogena, along with their Gluten-Free List. (I got a really "vague" response from Dove, and was so angry I immediately deleted it. I'll try again and see what happens!)

Thank you for contacting Neutrogena.

First of all, please accept our apologies for not answering your question to our website feedback before now. We have been experiencing technological difficulty with our website and were not able to receive emails sent to us from the feedback section until today. We are very sorry that you had to wait so long for an answer.

We maintain a list of products free of wheat gluten.

For ingredient listings, please see the product package or call our Information Center toll free at 1-800-582-4048. They will be able to send you a list of ingredients and help you if you need information beyond that. Hours of operation are Monday-Friday 8:00 a.m. to 5:00 p.m., Eastern Time.

Thank you so much for visiting our website at www.neutrogena.com and please visit us often, as our website is frequently updated with new products and added features.

Neutrogena Gluten Free (Wheat Free)

Updated 07/18/05

Active Breathable Sunblock SPF 30

Active Breathable Sunblock SPF 45

Advanced Solutions Acne Mark Eliminating Peel

Advanced Solutions Acne Therapy System

Advanced Solutions Facial Peel

Advanced Solutions Skin Transforming Complex Daily SPF 15 Moisturizer

Advanced Solutions Skin Transforming Complex Nightly Renewal Cream

After Sun Treatment

Alcohol-Free Antiseptic Cleanser (Discontinued)

Alcohol-Free Toner

Anti-Cellulite Treatment

Anti-Residue Shampoo

Blackhead Eliminating 2-in-1 Foaming Pads

Blackhead Eliminating Astringent

Blackhead Eliminating Daily Scrub

Blackhead Eliminating Treatment Mask

Body Clear Body Lotion (Discontinued)

Body Clear Body Scrub

Body Clear Body Wash

Body Emulsion

Body Lotion

Body Oil

Build- A- Tan

Clean Conditioners- All

Clean For Color- Color Defending Foam Foam (Discontinued)

Clean Replenishing Instant Shine Detangler (Discontinued)

Clean Shampoos- All

Cleansing and Makeup Removing Towelettes

Clear Pore Cleanser/Mask

Clear Pore Oil Controlling Astringent

Clear Pore Shine Control Gel (Discontinued)

Clear Pore Treatment

Combination Skin Moisture

Conditioner for Permed/Color Treated Hair (Discontinued)

Deep Clean Astringent

Deep Clean Body Scrub Bar

Deep Clean Cleanser

Deep Clean Gentle Scrub

Deep Clean Invigorating Cleanser/ Mask

Deep Clean Invigorating Scrub

Deep Clean Invigorating Self Foaming Cleansing Pads

Deep Clean Mask

Detangling Conditioner (Discontinued)

Extra Gentle Cleanser

Foot Cream

Fresh Body Herbal Body Wash

Fresh Finish Loose Powder/Healthy Skin Loose Powder

Fresh Finish Pressed Powder/Healthy Skin Pressed Powder

Fresh Foaming Cleanser

Hand Cream

Healthy Defense Daily Moisturizer SPF 30- All

Healthy Defense Eye Cream SPF 30

Healthy Defense Protective Powder SPF 30

Healthy Defense Sheer Bronzer SPF 30 (Discontinued)

Healthy Defense Sheer Makeup SPF 30 (Disctontinued)

Healthy Defense Sunblock Spray SPF 30+

Healthy Defense Sunblock Stick SPF 30+

Healthy Defense Trio

Healthy Defense UVA/UVB Block SPF 30 + / SPF 45

Healthy Radiance Exfoliating Wash

Healthy Radiance Eye Cream

Healthy Radiance Moisturizer SPF 15

Healthy Scalp Shampoo

Healthy Skin Anti Wrinkle Anti Blemish Cleanser

Healthy Skin Anti Wrinkle Anti Blemish Cream

Healthy Skin Anti Wrinkle Anti Blemish Scrub

Healthy Skin Anti Wrinkle Cream

Healthy Skin Anti Wrinkle Intensive Eye Cream

Healthy Skin Anti Wrinkle Intensive Night Cream

Healthy Skin Anti Wrinkle Intensive Serum

Healthy Skin Blends Natural Radiance Bronzer

Healthy Skin Blends Sheer Highlighting Blush

Healthy Skin BlendsTranslucent Oil- Control Powder

Healthy Skin Cream Powder Makeup SPF 20

Healthy Skin Enhancer

Healthy Skin Eye Cream

Healthy Skin Face Lotion

Healthy Skin Face Lotion Sensitive Skin/Delicate Skin

Healthy Skin Face Lotion SPF 15

Healthy Skin Liquid Makeup SPF 20

Healthy Skin Smoothing Stick

Healthy Skin Visibly Even Daily SPF 15 Moisturizer

Healthy Skin Visibly Even Exfoliating Body Wash

Healthy Skin Visibly Even Exfoliating Cleanser

Instant Lip Remedy

Instant Nail Enhancer

Intensified Day Moisture SPF 15

Intensified Eye Moisture (Discontinued)

Light Night Cream

Lip Boost Intense Moisture Lipstick SPF 20

Lip Boost Intense Moisture Therapy

Lip Moisturizer SPF 15

Lip Nutrition- All

Liquid Neutrogena

Makeup Correcting Stick

Makeup Correcting Stick

Makeup Remover Cleansing Towelettes

Maximum Strength Oil Controlling Pads

Moisture Boosting Body Wash

Moisture for Sensitive Skin

Moisture Shine Tinted Lip Balm- All

Moisture SPF 15

Moisture SPF 15 Sheer Tint

MoistureShine Lip Gloss

New Hands

Oil Free Acne Mask/ Scrub

Oil Free Eye Makeup Remover

Oil-Absorbing Acne Mask (Discontinued)

Oil-Free Acne Wash

On the Spot Acne Patch

On the Spot Acne Treatment Tinted

On the Spot Acne Treatment Vanishing Formula

On The Spot Blemish Wand

Overnight Lip Therapy

Pore Refining Cleanser

Pore Refining Cream

Pore Refining Cream SPF 15

Pore Refining Mask

Pore Refining Mattifier (Discontinued)

Pore Refining Toner

Radiance Boost Eye Cream

Rainbath Dry Oil Spray

Rainbath Moisturizing Body Mist (Discontinued)

Rainbath Shower & Bath Gel- All

Rapid Clear Acne Defense Face Lotion

Rapid Clear Gel

Razor Defense Daily Face Scrub

Razor Defense Face Lotion

Sensitive Skin Solutions Alcohol Free Toner

Sensitive Skin Solutions Cleansing Wash - Combination Skin

Sensitive Skin Solutions Cream Cleanser - Dry Skin

Sensitive Skin Solutions Oil-Free Foaming Cleanser - Oily Skin

Shimmer Sheers (all shades)

Skin Clearing After Shave (Discontinued)

Skin Clearing Compact Foundation

Skin Clearing Concealer

Skin Clearing Face Bar (Discontinued)

Skin Clearing Face Wash

Skin Clearing Liquid Makeup

Skin Clearing Moisturizer

Skin Clearing Pressed Powder

Skin Clearing Targeted Acne Treatment (Discontinued)

Skin Smoothing Body Lotion

Skin Soothing Eye Tints

Skin Soothing Under Eye Corrector

SkinClearing Clean Tint

SkinClearing Shave Gel

SkinClearing Trio

Soft Color Blush

Soothing Relief Anti-Itch Moisturizer

Sunless Tanning Lotion- All

T/Gel Conditioner

T/Gel Overnight Dandruff Treatment

T/Gel Shampoos- All

T/Sal Maximum Strength Shampoo

Transparent Facial Bars- All

Transparent Sunblock Gel SPF 30 (Discontinued)

Triple Moisture Active Soothing Conditioner

Triple Moisture Active Soothing Shampoo

Triple Moisture Cream Lather Shampoo

Triple Moisture Deep Conditioner

Triple Moisture Deep Recovery Hair Mask

Triple Moisture Healing Shine Serum

Triple Moisture Pure Strength Oil Therapy

Triple Moisture Sheer Hydration Leave- In Foam

Triple Moisture Silk- Touch Leave-In Cream

Triple Protect Face Gel

Triple Protect Face Lotion SPF 20

Ultra Sheer Dry Touch Sunblock SPF 30/ SPF 45

Under Cover Concealer Stick

Visibly Even Natural Look Makeup

Visibly Firm Eye Cream

Visibly Firm Eye Treatment Concealer

Visibly Firm Face Lotion SPF 20

Visibly Firm Lift Serum

Visibly Firm Moisture Makeup

Visibly Firm Night Cream

Visibly Younger Hand Cream

Hope this helps! Lynne

Tony Romas was listed in the Gluten Free Bible as having gluten-free products, and I believe, a gluten-free menu. My husband and I went to a Tony Romas in Lexington, KY and I asked for the gluten-free menu. The waitress told me that this particular restaurant was a franchise and didn't have the same menu items as the Corporate restaurants did. I e-mailed Tony Romas corporate, and they first gave me a bland "we are going to post a limited nutritional information . . . please visit our website in the future." I replied, asking how people were able to get a gluten-free menu in the past. Here is their response:

Several years ago, we did provide a limited list of gluten free items. Due to changes in food distribution companies and methods of preparing foods, it became necessary to remove that information from distribution. Tony Roma's barbecue sauces, ribs and chicken are the only food products that do not contain gluten/wheat.

Just thought I'd give you the heads up. . . . Lynne

Thank you for your input -- I'm getting really tired of looking like I have some kind of pox around my face!

My cousin works for a magazine which is owned by a registered dietician. (don't ask -- it's a bizarre, but evidently very profitable story) I'll ask her if she can get some info. Lynne

Hey! What do you know? My husband and I did the right thing without knowing it! In desperation, we sprinkled cayenne pepper all over the area where I had planted my bulbs. Then we went looking for the squirrels and chipmunks with swollen lips! (just kidding) -- but it kept them from eating them. (at least some of them -- I think they had already gotten a bunch!) Hey wait . . . Shirley or Jen -- did you guys give me that advice? I think maybe so . . . . Lynne

I know I have bothered you guys so many times, and I am really sorry. I am just really confused as to this stupid rash on my face. I was glutened at Christmas time, and it popped up -- itchy, kind of blistery-looking pimples that bleed, and it went all the way back throughout my scalp. Then, I used a gluten-containing cleanser about 3-4 weeks ago, and the same thing happened. (didn't know it contained gluten at the time). Now, I was glutened by my husband (Penn Station Subs -- kissing prior to flossing), and these same stupid "things" are on my face and scalp. Could this possibly be a mild form of DH, or is this all just a weird coincidence? My neuro doc wants me to have it biopsied during a breakout. Do you really think that's necessary? . . . Thanks (again) for your help . .. . Lynne

mvaught: I'm starting to believe the same with regard to thyroid conditions. I was first diagnosed with an "enlarged thyroid" at age 12-13 with normal TSH T3, T4. It is NOT normal, however, for a kid to have a goiter! I was also this very hyperactive, skinny kid who had diarrhea ALL THE TIME. They blamed it on the fact that I had to be on antibiotics a lot. I no longer have the stomach difficulties, am celiac negative, but gluten has now begun to destroy my brain, retinas and peripheral nerves. I CERTAINLY think that all thyroid conditions have an autoimmune predisposition, if not a genuine autoimmune root. Both of my kids are having thyroid difficulties (19 and 23); our GP is doing the whole panel including antibodies on both of them. I'm not taking any chances with either.

My brother-in-law has a farm (cattle, sheep, chickens) -- did you know that over 20 years ago, veterinarians knew that e-pylori caused ulcers and that antibiotics were the correct treatment? Human docs found that out, what, 8 years ago????

My brother-in-law has a farm (cattle, goats, chickens) -- did you know that over 20 years ago, veterinarians knew that e-pylori caused ulcers and that antibiotics were the correct treatment? Human docs found that out, what, 8 years ago????

I'm getting the same response with the reply function with a personal message.

That was good! My teacup toy won't even look at me after the vet takes her temp -- she is so furious with me!

My mom scared me to death a couple of months ago -- I had a fever and was at her house -- I asked her where the thermometer was -- she told me, I cleaned it with alcohol, and as I was using it, she said "I hope that's not Sugar's thermometer" -- I thought I was going to be sick She started laughing so hard she had to hold her sides! She said -- Sugar's thermometer is in with the dog stuff -- don't throw up on the floor! . . . . Lynne

You know, it dawned on me -- we're laughing about that stuff, but seriously -- when I first went into the vet's office with the dog when I was using a walker, the first thing he said was "Have you been tested for canine erlichiosis? It's running rampant around here for the last two years." The he gave me a list of things for which he wanted the MD's to test. I can't tell you the eye-rolling I got (at hopkins) when I told them that my vet wanted me to be tested for these. (along with my shots and worming)! Just kidding

Louisville, KY -- if you live anywhere close, I would highly recommend this practice. My MD's name was Martin Mark. They have on staff a celiac specialist, Dr. Adler, who read and re-read my biopsies and bloodwork. They are awesome. BTW: Biopsies for celiac are down down your throat. They give you liquid to numb the back of your throat, give you some meds to make you sleepy, and a bite guard in your mouth. They thread the tub down your throat, through your stomach, and into your small intestine. My MD took 4 biopsy samples from the small intestine. I did, though, have a colonoscopy the same day, because I had some DEFINITE changes from the usual. I had IBS for the majority of my life, then simply stopped going. Really. Like once every 6-8 days was good. So they did the colonoscopy. I told someone on another thread -- if you have to have both, be advised: They do NOT think it's funny if you ask them that, if they're going to use the same tube, will the put it down your throat first. . . . Lynne

I think it's normal . . . I just got "glutened" because my husband had to go on a business trip unexpectedly in the middle of the day (get your stuff, fly out, the client is furious) -- but had eaten Penn Station subs for lunch. With lots of kissing prior to him leaving, and him not flossing beforehand . . . I ended up with increased symptoms this entire week. (I'm hoping that it is going to subside SOON!)

Hi Eric -- I saw the GI doc on Thursday, got my antitranglutaminase and antiendomysial antibody tests drawn that day, and had my scope (I believe) the next Tuesday. Including the colonoscopy, too. (BTW: If they schedule both, they DON'T think it's funny if you ask them that if they're going to use the same tube, would they put it down your throat first.) . . . . Lynne

Thanks! Actually, you must be a mind-reader, because I am looking for a (competent) accupuncturist in our area. The guy who was the BEST passed away unexpectedly a couple of years ago, and there has been no one with his knowledge / skill in our area since. We have a lot of the "I took a 5 day course in acupuncture, so now I know everything" practitioners in our area -- which scares me. As a PT, I can become certified in acupuncture, but it takes a long time, from what I understand. I don't know where these guys have gotten their training, but they're like some of the over-zealous trainers at the local workout places!!!!!

Thanks Shirley -- I didn't even think of that! My husband is pretty much gluten-free, too -- we don't have very much gluten-containing food in the house anymore -- BUT -- he gets subs, etc. at work, and grazes on them during the day. I'll bet that's EXACTLY what happened! You are so smart . . . .Lynne

Congratulations! You must feel GREAT! . . . Lynne

Don't know for sure, but I think it's a valid question. I think the most pressing question would be whether powdered gloves contain gluten. I have read that some forms of talc incorporate wheat into their final product -- I don't know if this is the case in the powder which is used in gloves. With regard to pure Latex, my understanding is that it does not contain gluten. I don't know about nitrile gloves, however. Good question . . . Lynne