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tiredofdoctors

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tiredofdoctors

  1. tiredofdoctors
    As far as being put to sleep, they didn't give me enough "juice" -- I was awake for the endoscopy and the colonscopy -- including polyp removal. I kept moaning to try to tell them that I could feel it -- they saw me watching it on the television screen When it was over, I quoted exactly what the doctor said. The one nurse looked at the other and said...
  2. tiredofdoctors
    One of your parents has to have the gene. It (unfortunately) got passed on to you. Just because you have the gene, it doesn't mean that you'll get celiac. HLADQ2 is also the gene for narcolepsy. It just depends upon the allele, and if it gets passed onto you. It's kind of like sets and subsets!
  3. tiredofdoctors
    Ah, Tinker -- I'm so sorry. That had to be so frustrating -- getting a job, then not being able to do it. I can't imagine, and don't want to. I'm sorry you had to go through that. This disease is disgusting -- and I'm sorry you have to endure it, too. Feel better soon, and know that you are NOT lazy. (((((hugs))))), Lynne
  4. tiredofdoctors
    Thanks for this thread, you guys, and for all the work you've done. I love coffee, but have avoided it altogether because I've been afraid of getting glutened. I love starbucks, but again, too scared to try it. Thanks again --you guys are great. And I WILL write to that CEO -- and ask him why his company chooses to endanger the health of his consumers...
  5. tiredofdoctors
    Ravenwoodglass: Thank you for letting me know that I'm not alone. I can't imagine watching your children having this disease, too. My biggest fear is that my kids will develop it, like I did, as adults. Especially if it affects their brains and eyes, too. I would give you a big hug and we WOULD cry together. It's not that I don't know that other people...
  6. tiredofdoctors
    Debbie --your husband is sooooo lucky. Having a spouse that is supportive is really important, I think. Also, having a spouse that recognizes that this stupid disease has taken a LOT away from you. I appreciate so much, too, that you don't have the "lemonade" theory. Right now, I don't see a pitcher. At all. That is a really good analogy. Thank you...
  7. tiredofdoctors
    I usually just make the best of the situation. If there's a restaurant close that I know is gluten-informed, I'll suggest that. If not, I just ask for a salad, but I sound like Sally on "When Harry Met Sally"! I say, I'd like a bed of greens, including spinach. Do you have hard boiled eggs? That would be nice. Do you have cucumbers? Are they marinated...
  8. tiredofdoctors
    That is OUTRAGEOUS! I would create hell, I think. What a jerk! mmaccartney: I have gluten ataxia. There are sites (mostly because of studies done in the UK) that can explain it better than me, but here goes: there are proteins on the Perkinje cells of the cerebellum of the brain and the retinas of the eye that are extremely similar to gliadin. They...
  9. tiredofdoctors
    I am so angry, no furious, and sad about this stupid disease. I hate it. I REALLY hate it. I got a call tonight from a recruiter -- I was offered a position as a clinic director for a hushy-tushy PT clinic. It would have meant big money, plus great benefits. I don't know who gave them my name -- I think it's someone that I worked for before I was in...
  10. tiredofdoctors
    OMG -- I miss Krispy Kreme doughnuts almost more than anything. When my kids were little, in the summer we would go for midnight Krispy Kreme runs so that we could get them when they were coming off the conveyor. My mouth is watering as I write this. I even have a Krispy Kreme T-shirt! In 9 months, I have not once cheated on this lifestyle (said diet...
  11. tiredofdoctors
    Judy -- for the same reason that I'm looking at them at 1 in the morning! Cute stuff, though! I make pine cone wreaths -- the type that you use the frame. You soak the pine cones in water, so that they close up -- then you pack those suckers as tight as you can into the frame -- larger ones on the outside, then get smaller as you go to the center. When...
  12. tiredofdoctors
    Jen -- I laughed out loud about what your husband said with regard to the table runner! That is so cute, though! Can't WAIT to see it -- I'll bet it's beautiful. Shirley -- my husband says "Go. You need to meet with your Celiac friends. It will be good for you." He's either ready to get my butt out of the house, or tired of me moping around! At...
  13. tiredofdoctors
    Quite frankly, I also think it depends upon your doctor's notes and perspective. I have applied for Social Security Disability because the gluten intolerance has affected my brain. My neurologist was the one who told me to apply. His notes are pretty strong, as well as the second neurologist I see, so I would hope that it would be considered a disability...
  14. tiredofdoctors
    Call, complain and B**** like heck. Then write a letter stating that, should there be a significant problem that worsens because they won't cover the necessary testing your doctor requested, you will hold them responsible and will report it to all the news statios and your newpaper. That should do it. Trust me.
  15. tiredofdoctors
    yea!!!!!! Welcome -- and glad you're starting the gardening again! I tried the worm farm -- but I didn't do the "official" farm with the red worms -- only earthworms, and I killed them all -- three times! If I do it again, I'm going to order the red worms that you're supposed to use, and go from there. I do have some really good compost, though! ...
  16. tiredofdoctors
    Thanks guys --this sounds great! What store are you seeing them in? We have Whole Foods and Wild Oats. We have a few other smaller stores, maybe I'll check there, too.
  17. tiredofdoctors
    LabCorp does it. They do HLADQ2 and DQ8. My doc asked for DQ1, but they weren't able to do it. You usually have to have a prescription by a doctor to have it done. Don't know yet how much it costs-- actually, don't know yet my results, either. I had the SpinoCerebellar Ataxia panel done -- it was done by Athena labs. They wanted to "ensure that my co...
  18. tiredofdoctors
    Yes! I thought I was the only one who had that! I was so embarrassed, I wouldn't tell anybody! My rheumatologist actually diagnosed me with psoriatic arthritis based on my ears! He said that he could lift the skin -- it was silvery, and it bled underneath. They itch like crazy!!!!! The only thing that helped was when I was on either Methotrexate or...
  19. tiredofdoctors
    I just called the Vital Radiance (aka Old Lady) make-up line after an advertisement on TV. It's 1-800-radiant. They were fantastic! They have a gluten-free list, they're going to e-mail it to me within 24 hours. After that, I'll be able to pick which sample I want sent to me, and they'll send a coupon with it. They are also going to send a list of possible...
  20. tiredofdoctors
    Check to see if your vitamins contain yeast. It's quite possible. My dietician gave me a packet of information about vitamins that are completely "junk-free" -- but I can't find it right now. Will get back to you with the name, phone, etc.
  21. tiredofdoctors
    I agree -- Trends come and go. Celiac is forever. Hopefully the companies don't forecast that this is going to end in, say 2 years, and plan likewise. As I said earlier, having this disease doesn't make me trendy. It makes having to have gluten-free foods my lifestyle forever.
  22. tiredofdoctors
    Thanks for clearing that up for us! If you can, please help their coordination of medical information out. It's pretty bad when people from different states (and these are consultants) get the same rotten information! I'm glad you were able to get to the "good stuff" and help us out! Thank you . . . . Lynne
  23. tiredofdoctors
    That's really good. I have gotten to the point that I take information that I have printed from the internet (all valid research) and hand them to my doctors. They ask me if that's for them, and I say "yes". I highlight areas that I want them to read, and I point it out to them -- and have them read it while I'm there. At least, that way, for a small...
  24. tiredofdoctors
    You sound like my son! Even more so . . . . Having been a "Geek-type" in high school, and adult in college, I have never been in the "in" crowd myself. Finding this a new and "terrifying" experience!!!! I've never been the "trendsetter" -- Oh, the presssure . . .
  25. tiredofdoctors
    I say, if it works, keep with it. If you just have elevated antigliadin antibodies, you STILL have gluten intolerance. As Karen said, it is the tip of the iceberg. I had no idea that I had elevated antigliadin antibodies -- until I walked like I had MS and I kept falling. Had every test known to man and G-d performed on me until they realized that the...
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