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tiredofdoctors

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tiredofdoctors

  1. tiredofdoctors
    Write them back and ask, "given that you have approximately 6 different types of charcoal, can you please give the gluten-free status of the 5 that you failed to address?" . . . .Lynne
  2. tiredofdoctors
    Thank you for trying . . . it's pretty disgusting when you get an answer like that, isn't it? Maybe your rep will be able to nudge them into being a little more socially responsible when it comes to health-related issues. Either that, or we can bombard them with letters thanking them for letting us know that they have no interest in the health of their...
  3. tiredofdoctors

    ARCHIVED A Useful Specialist?!

    tiredofdoctors replied to penguin's topic in Doctors

    I just have to say it: A useful specialist? Isn't that an oxymoron????
  4. tiredofdoctors
    When I was working (note the emphasis on that statement!), I was fatigued ALL THE TIME. I thought it was just because I had my own office and was working so much. I would lie down after I had seen my last patient (sometimes 8 or 9 p.m.), but I would wake up at about 2 or 3 in the morning. My husband would have been calling over and over, and I wouldn't...
  5. tiredofdoctors
    You know . . . . I hadn't thought much about it . . . but we've always laughed about my mother's D problem! We call it "the sweats" because you break out in a cold sweat when you're out somewhere looking for a bathroom! My dad has diverticulosis, and when he doesn't watch what he eats, diverticulitis, but don't know about anything else. My mom, though...
  6. tiredofdoctors
    That being said, "FemGlide" is the best lubricant on the market. I treated women's health, had to use it in my clinic, and sold it to my patients (who bought it by the case-full, in some instances!) It's also marketed as "Slippery Stuff" (less clinical I guess) -- but is the same stuff. If you want info, PM me and I'll send it to you!
  7. tiredofdoctors
    Is there a way to remove the filter that turns the letters C D, when put together, into "celiac disease" every time????? Thanks! . . . Lynne
  8. tiredofdoctors
    I don't consider living a gluten-free lifestyle an "indulgence". I consider it the biggest inconvenience I've encountered so far. Trendy? Get real.
  9. tiredofdoctors
    Deb is AWESOME! If she can help, she will!
  10. tiredofdoctors
    Deb -- thanks for looking that up! That helps a lot -- I was looking at the "Anew" stuff -- I have to get rid of wrinkles by August! (DD wedding, you know!) Don't want to be the "gimpy fat mom with the wrinkles!"
  11. tiredofdoctors
    I have ordered a new list, it's an entire book -- it will have all the chewing gums, etc. which are gluten-free. I know that Splenda is gluten-free. Am considering purchasing the Clan Thompson list (you can get it for your PC, handheld, or both, and it has upgrades 3x/year) I'll check the lists I have right now, and let you know about the chewing gum....
  12. tiredofdoctors
    No problem -- I did a bajillion searches for the same reason. I got these horrible spots on my face from different products. I didn't have any trouble from the cetaphil lotion -- my biggest worry was touching my face, then biting my fingernails or something stupid like that, then getting glutened. The manufacturers would only GUARANTEE that the cleanser...
  13. tiredofdoctors
    Chelsea -- that is great news. I'm glad he's in rehab. Under Medicare guidelines, in order for a patient to stay in rehab, they must participate two times per day in at least two therapies: Physical, Occupational or Speech. That is a great place for him to be. Tell your grandmother to make sure that they are being compliant in scheduling his therapies...
  14. tiredofdoctors
    Hi there -- welcome to the forum . . . Just wait -- you'll get PLENTY of answers that say you're not the only one with mixed answers from physicians! Practically everyone on this forum has gotten bad information at one time or another. There are blood tests which can be done: IgG Antigliadin antibodies, IgA Antigliadin antibodies, Antitransglultaminase...
  15. tiredofdoctors
    For whatever reason, my dietician told me to avoid millet. Can't remember why right now. I think that some of those ingredients were WAY extreme, in fact, I think the whole thing was a CYA letter. I can't believe that they send THAT to their consultants. Basically, they're saying: "Don't sell our products to patients with Celiac." To be safe,...
  16. tiredofdoctors
    Good luck -- my contact with Mary Kay said that I needed to contact my representative, because they could get a LIST of all gluten-free products. My husband's best friend's wife sells Mary Kay (and has hounded me with a vengance), but I asked her to get the list. This is lengthy, but here is the letter they sent to her about her request: RE: Lynne...
  17. tiredofdoctors
    Someone posted about Garnier Fructis somewhere else -- they told her that the shampoo and cream rinses were absolutely gluten-free, but individual styling products needed to have a phone call to the company to be sure . . . can't remember what thread it was on, but I know it was a couple of months ago . . . . Lynne
  18. tiredofdoctors
    That is a GREAT website! The only difference I found was, that in the lab "norms" that my MD's use, the normal range for antigliadin antibodies is 0-11 for negative. Thanks for posting a really informative site!
  19. tiredofdoctors
    The biopsy only represents that there isn't damage to your small intestine -- yet. The positive antibodies (especially if you have Antitranglutaminase and Antiendomysial antibodies) mean that yes, you are positive for Celiac Disease. If you have elevated Antigliadin antibodies, it means that you are gluten intolerant. All of these mean that you have developed...
  20. tiredofdoctors
    I'm in!!!!!
  21. tiredofdoctors
    Okay, now I've got to try the Burt's Bees Shimmers -- you guys make them sound GREAT -- you ought to get paid for the endorsements! That's what I miss about Aveda lipstick -- the peppermint! (Aveda states that all of their products contain gluten ) Vincent, if you ever DO try lipstick, we want the picture to be your new avatar!!!!! Be careful...
  22. tiredofdoctors
    You're welcome -- we HAVE to educate these physicians. I'm sure that mine now think that I'm a B*****, but I just don't care. Ignorance is not bliss when you are a physician. I guess, regardless of what it takes, mine are going to become informed. I will not allow them to continue to keep stabbing in the dark. This is my LIFE they're talking about -...
  23. tiredofdoctors

    ARCHIVED Mayo Clinic Celiac Center

    tiredofdoctors replied to Eric's topic in Doctors

    I don't know about the celiac center. Despite being diagnosed with "gluten ataxia", I was referred to neuro, and was never referred to the celiac center -- which, given my antigliadin levels, should have definitely happened. My experience with neuro was NOT good. To the extent that we threatened to report them to the Minnesota Attorney General. I've heard...
  24. tiredofdoctors
    Can you guys imagine all of us getting together with our craft things? It would be so much fun!! We ought to go up to Shirley's place -- I haven't been there, don't know if you have either. I don't have pix of my work, because it's all in storage. Hope it hasn't been smashed. I did find my glass grinder (finishes the edges), and the stained glass...
  25. tiredofdoctors
    Chelsea -- I don't think you're whining. I think you're grieving, and rightly so. I'm so sorry about your grandfather. I know that those surgeries are very risky -- when the plaques release like that, it can be dangerous. The same thing happens when they do surgery on the Carotid arteries. Your grandfather may not have made all the recovery that he...
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