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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    Ditto this pretty much word for word. Lots of people use just plain coconut oil or olive oil as a moisturizer. Feels too much like oil to me. I use Vaseline Intensive Care Advanced Repair - it's unscented.
  2. squirmingitch
    You've gotten some good answers and I agree with them. Whole foods, non processed and things that are easy to digest are the foods that will allow you to heal more quickly without putting stress on your gut that it has to use to digest things other than whole food that is easily digestible. I will again repeat that it takes time. You had Marsh stage 3b, your...
  3. squirmingitch
    She did not receive the full celiac panel. This is so heartbreaking!!!! And makes me soooooooooooo angry!!!! This is the full panel: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also can be termed...
  4. squirmingitch
    And as far a medical science has been able to figure yet, if you have NCGS it is a life long condition as well. You can't "cure" either celiac or NCGS. They are still researching NCGS to try & come up with a test for it but at this time there is none; they also suspect NCGS does neurological damage even though not damaging the gut like celiac or some...
  5. squirmingitch
    I'm going to repeat parts of what cyclinglady said...... If you were gluten free when they did the blood panel then it's a no brainer that you turned up negative. If they did not do the full celiac panel (6 tests) then you could have gotten missed. Get a copy of your labs they did & post them here along with the reference ranges. We can...
  6. squirmingitch
    In my opinion it's a good idea. It's just hard on your gut right now.
  7. squirmingitch
    99% positive that at your age ALL the damage is reversible. I won't say 100% positive b/c well, frankly, nothing in life is 100% right? Cyclinglady had Marsh stage 3b & she's a lot older than you. 55 now I think, right cycling? She's doing great!
  8. squirmingitch
    I used the McCormick gluten-free chili mix and the taco seasoning. McCormick is a good company. I use Lea & Perrins Worcestershire. I'm in the US. As Karen says..... Canadian Worcestershire can be a different matter.
  9. squirmingitch
    You may be fine eating corn but popcorn is a whole other ball of wax even if one discounts the fat content of it. That stuff is danged difficult to digest!!!!! Those kernels!!!!!! Your gut hasn't healed enough yet to handle that kind of thing without letting you know about it. I'm not saying don't eat popcorn but expect things to be wonky after you do. Preferably...
  10. squirmingitch
    razzle5150, I concur wholeheartedly with what both ravenwoodglass and kareng said. They are absolutely correct! DH does not occur if you are not celiac.
  11. squirmingitch
    One can have have celiac disease AND also be allergic to wheat. Whoever told you that people who are allergic to wheat can not also be celiac is nuts!
  12. squirmingitch
    I agree with Karen. Plus, the Doritos are made from corn, hard, dry, corn. Corn is notoriously hard to digest, then make it dried corn, with a lot of additives & oil & then on top of all the other processed food you ate, you overloaded the system is what I'm thinking.
  13. squirmingitch
    This is the full, current celiac blood panel. It's super important that your doc orders the complete panel as kids test weirder than adults. The DGP is most often the ones the little kids show up positive on so make that very clear to your doc. Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase...
  14. squirmingitch
    I use Blistex Simple & Sensitive Open Original Shared Link
  15. squirmingitch
    Rarely can the doc actually see the damage on the scope unless one has total villious atrophy. You will have to wait until the biopsies come back to find out. In the US that generally takes about 2 weeks but the timing in Italy could be different.
  16. squirmingitch
    Here's a link for the Italian Celiac Association Open Original Shared Link
  17. squirmingitch
    You live in ITALY!!!!!!!!!!!!!!!!!!!!!!!!!!! And that's exactly how you can live WITH celiac disease if that's what you have. I was just thinking earlier about how celiac savvy Italy is. YES! ITALY, the land of all things pasta. I simply can not tell you how many times on this site I have read about celiacs from the US visiting Italy & posting the great...
  18. squirmingitch
    Okay, then the prednisone should not now skew your endoscopic biopsies. That's great that you guys get copies!!! Yay! Your low Vit D is telling as is the folates and your thyroid. Have they done a complete thyroid panel on you, including checking for Hasimotos? Reading your last post reminded me of something. VERY often those with dh will get a burning...
  19. squirmingitch
    Integrous and RMJ, You guys may benefit form the Fasano Gluten Cross Contamination Elimination Diet: Open Original Shared Link I have been on this for about 7 weeks now & it has made a huge difference for me. I thought it would be hell eating this way but it hasn't. I haven't felt deprived in the least.
  20. squirmingitch
    Chemist, You're welcome! Did you take the prednisone for a long time period? When did you last take it? Are y'all allowed to get copies of your labs & pathology? If so, then start making it a habit to get them & keep them for future reference. Here's the current, full celiac panel: Anti-Gliadin (AGA) IgA Anti-Gliadin ...
  21. squirmingitch
    Uh YEH, if the doc could actually SEE that your gut was smooth through the scope that's big time!!! Shame on that nurse. Lactose intolerance doesn't cause villi damage. I would certainly imagine the biopsies will be positive with that extent of damage.
  22. squirmingitch
    Hey Chemist! Your symptoms certainly indicate you need to be checked for celiac disease. Did the doctor say how many biopsies he would be taking? I hope 4 to 6, preferably 6. So none of the docs have done a celiac serum (blood) panel on you? IgE is not a celiac panel - it's strictly for allergies. Okay, your rash could be or could not be dermatitis...
  23. squirmingitch
    Also, did they do biopsies when they were in your gut? That's what they should have done & the biopsies get sent to pathology to determine celiac disease or not.
  24. squirmingitch
    Print out this thread & give it to the misinformed grand parents.
  25. squirmingitch
    I'm glad it's over & done with and I KNOW you are! He gets extra special hugs this weekend to make you BOTH feel better.
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