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GretaJane

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GretaJane

  1. GretaJane
    The blood tests and labs are not always perfect. You could get a biopsy if you want to see if there is damage. I have heard of many people testing neg on bloods and positive on biopsy.
  2. GretaJane
    Do the endoscopy now, before she goes gluten-free. She will need this for a "gold standard" diagnosis. This is very important for her long term adherence to the diet and so other people believe you and take you seriously. It may not be a big deal today if you have total control over what she is exposed to, but she will be out in the world. Other people...
  3. GretaJane
    Absolutely, my son reacted to my breast milk when I ingested gluten. No doubt about it. none. As a vegetarian, I was a heavy gluten eater during my pregnancy and postpartum to try to get enough protein (gluten protein). As a small baby, he was exclusively breastfed, had chronic diarrhea and vomiting and terrible colic, until his pediatrician told me...
  4. GretaJane
    Playdoh? Could it be medicines, vitamins or supplements? They can contain gluten as a filler. Could she be anemic? Maybe try going grain free for a whileto see if that helps. Most grains that are naturally gluten-free often contain cc gluten that can affect people. A naturopath could help get a blood test to look for food intolerances. Good...
  5. GretaJane
    Have you looked into PCOS? That can make you gain belly fat there! I have friends who got really big bellies even though they were skinny and it turned out to be the polycystic overy syndrome. Other signs of that include extra body hair on belly (sometimes even dark upper lip hair or other facial hair). You might have celiac, or non celiac gluten...
  6. GretaJane
    If you push for a biopsy now, your intestines will likely still be damaged enough to be diagnosed celiac - regardless if you are eating gluten or not. It can take months or longer for adults to heal who have had it for a long time. The blood test would be negative, unless you are eating gluten. The gene tests can only tell you if its possible for you...
  7. GretaJane
    Those at risk should be retested every 2-3 years, or if any symptoms or signs manifest. The celiac gene(s) can turn at any time in life and they do not turn off. You may want to have your son's DGP levels tested. Open Original Shared Link Get your daughter a 504 plan for school. Open Original Shared Link
  8. GretaJane
    Yes, rarely, DH can present as chronic hives!!! Open Original Shared Link
  9. GretaJane
    Cross contamination!!!! At Starbucks they use the same mini vacuum for the pastry display as they use for the coffee grinder! It deposits crumbs into the coffee grinder and then into your coffee! This can happen anywhere.
  10. GretaJane
    I would not entirely dismiss enterolab results. they may not be proven, but they are not disproven either. I recommend appropriate testing before going gluten free, so you can get an official diagnosis for appropriate care and follow-up. See guidelines below: Posted by Open Original Shared Link at 03:04PM in blog - Open Original Shared Link: (0) August...
  11. GretaJane
    Get your iron levels checked! My son was itchy when he was anemic. Also cc makes him itchy. Zyrtec helps. Make sure any vitamins, supplements, or meds are gluten-free.
  12. GretaJane
    His attitude is okay. You need to be more mindful of cross contamination (its a steep learning curve). Gluten free pizza made in a gluten facility is NOT safe for celiac. Flour dust is suspended in air for 24-48 hours contaminating everything. There is a lot to learn (for everyone involved) and it is overwhelming and he can't be too careful - or he will...
  13. GretaJane
    You might have bacterial overgrowth. You can get tested for that. Eat more probiotics and try cutting out all grains for a while. They all contain a little bit of cc.
  14. GretaJane
    Vitamin K deficiency causes nosebleeds because its needed for clotting. Take a supplement and eat your dark leafy greens!
  15. GretaJane
    Drink a big glass of lactose free milk and wait an hour or two to see if you get any symptoms. If not, lactose is the problem.
  16. GretaJane
    Even distilled spirits sometimes have "mash" which contains gluten, added back into it after distillation for flavor. Make sure you get gluten free potato vodka or something that says gluten-free.
  17. GretaJane
    How do you know you are def not celiac? Did you have a genetic test and do not have the genes for it?
  18. GretaJane
    I would think that if your alpha-gliadin IgA gluten test came back high, then your doctor would order further testing.
  19. GretaJane
    I've been giving my 5 yr old 1000 IU of D3, and he is still slightly deficient.
  20. GretaJane
    There is gluten-free, and there is celiac gluten-free. Gluten-free is not enough for my celiac son. CC is everywhere. Things labeled gluten-free are often mostly gluten-free, there are no regulations yet on what gluten-free means. Recently I ordered a bottle of "Gluten-Free" teriyaki sauce, and once it arrived I looked at the whole label and on one side...
  21. GretaJane
    Get a biopsy, NOT just an endoscopy! Some GI's do just the endo, but ends can often miss damage, and that is not enough for an official diagnosis to get qualified for studies or trials. Not to say that the biopsy can't miss damage too, but its more likely to confirm it. If its positive for damage, you and your son will always know for sure that all the...
  22. GretaJane
    My 5 year old son was taking an supplement with iron (several times a week), and has been off gluten since he was a baby. His ferritin (storage iron) level tested at 5 and TIBC was high. This says he is anemic. I don't know if his sugar was ever tested. Since he tested low on iron in November, he has been on a highly absorbable liquid iron supplement...
  23. GretaJane
    I would have him get a biopsy, not just an endoscopy. Just keep him on the gluten diet until his testing is complete. I would call his GI doc and not wait for his PCP.
  24. GretaJane
    You need to stop baking with the gluten containing flours. The dust gets everywhere. Kids touch everything and put their fingers in their mouths or eat something without washing their hands. i'm sorry for your loss of baking as you know it. Good luck!!! Its long learning process that your child inevitably will have to suffer through. I've made so many...
  25. GretaJane
    My 5 year old son is very sensitive to gluten. And it has taken me years to learn all the hidden sources of gluten. And I am still learning new stuff all the time. Never stop reading - research, experiences of others, and labels (they change frequently). Study the lists of unsafe foods. Know that your daughter may not be able to tolerate even gluten...
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