dani nero

That's MOL what happened to me too. I unknowingly went high sals on everything! I thought I was eating healthy & I was; I was just eating everything with high sals. Then I hit the wall with sals.

Beans --- Fasionista --- you can have beans --- look them up on the sals lists.

Dani, I always wondered what that G6PD was.

That's a theory anyway.. I should probably start specifying (facts or theories) :-)

G6PD is when red blood cells are manufactured with a missing ingredient (I can't remember any of the names) and that happens only when the person eats specific things like any type of legumes and some medicine and antibiotics.

I haven't gotten my thyroid checked (no insurance, no money), but I had uncontrillable rages and 24/7 weeping for days with vitamin deficiencies. Vitamin B12 was what I suspected, and that would make sense in your case - you got glutened, and until you heal again you aren't absorbing any B12 from your food.

Just a guess.

Now that you mention it, I was crying for no reason since yesterday.

I usually only get angry for two or three days after being glutened, but this time.. it's been two weeks and I've been so angry and irritated very frequently. I was so angry today.. I couldn't contain myself. Hubs and I aren't talking to each other now. I feel so depressed. Sorry for whining. It just sucks because we've been planning this weekend for so long and it's ruined :-( and he told me "are you going to ruin this weekend too?".

I don't have other symptoms. I never get tummy aches.. (and I hope I don't offend anyone) but I'm wishing I did, then I'd at least know what was going on. Maybe I'm just an egoistic nut who likes shouting.

I'm not even feeling weak, particularly sleep, or too foggy. I'm just, mad.

I don't eat any sugar. I tried 80% lactose and soy free chocolate three days ago but it set my DH off so I stopped it. I don't know what MSG is. The only other thing I recently added was cashews (a week ago). Could I be reacting to them?

I did start polishing my nails again as well.. but I made sure to wash my hands once I was done.. to make sure anything lose went off..

I haven't been to the doctor yet. Can you believe it? I don't know how long they're gonna let me rot here. They said in four weeks five or six weeks ago, and now they're saying sometime in may. I have a feeling they're gonna say "nothing is wrong with you" anyway. I just know it.

I got my thyroid checked two years ago maybe?

Im def. not ruling out sals but I was eating high sals all day everyday with no reaction but as soon as I had in too much iodine that's when I get new lesions. I am almost positive that high sals are keeping me from healing as quickly though. I didn't have any new reactions until I added the naked juice and then I had a bag of cranberries and almonds so I think that caused the reaction. I've eaten a bag a cranberries daily on the low iodine diet with no itching or reaction. But I think both together are what caused me a bad reaction. But hopefully limiting both will allow healing. Then I will slowing add in high sals foods and monitor any reaction in a few weeks.

It seems I've missed a lot, sorry! I'm glad though that you're doing much better and you've had the best sals experts advising you :-)

Something I would like to add though from my own experience! I didn't really have problems with sals when I first went gluten free. My problem with sals didn't "start" until I decided to start with a strict elimination diet, which meant no processed foods and only basic things. The problem was that all the fresh basic things I liked and started eating every single meal were very high on sals. My sensitivity to sals only started after TWO weeks of eating nothing but concentrated amounts of sals.. I'm guessing that's because sals sensitivity is something that can be "triggered" by consuming large amounts of sals. It was the same thing with G6PD.. I didn't have any symptoms when I was young, but I never really ate beans until I was 27, and once I hit 34 I was almost addicted to beans. I loved and ate a loooot of them "daily", which caused the G6PD to surface. Now I can't have them because even a small amount will cause an anemic episode.

Now you just need to figure out the level of sals your body can tolerate. For example, I can eat one small sweet potato a day, but if I have carrots or tomatoes, I don't eat the sweet potato or limit to half a very small one. If I happen to get greedy and eat too much of one of them, it'll show once I eat THE NEXT food that contains sals which tips me over the edge.

Sals sensitivity likes to take you by surprise I guess.

and you didn't do or anything that could have been cc that day? :-O

But how can there be gluten in his mouth after brushing his teeth?

Hope it passes quickly :-( I guess that was what we'd call the poisonous kiss.

Get well soon sweetie!

I've found that dairy and the gums used in dental impression goo give me extreme irribilty.

I think hormones can enter into it too?

Might be :-/ I Dunno.. I wasn't having irritability problems before getting glutened and I'm using the same toothpaste. I've tried most of the toothpastes available and am using sensodyne ProNamel now.. There aren't many options left in the stores

Hi all, hope everyone is doing well.

I was wondering if anyone else experiences this while healing from a glutening incident? I used to think that I would become incredibly angry and irritable and depressed right after being glutened (which is usually my first clue or sign to think if I had eating anything that was cc), and then I'd have anxiety and mild depression for three weeks after .. but this time it's different! I'm angry all the time, and it has been two weeks since I ate that darned cc bresaola!

Is this normal, does anyone also stay irritated for the whole healing period, or should I start wondering if there are any other sources of CC?

Sorry for your loss :-(

Yes we are a little unfortunate and tend to feel bad for ourselves, not because we have a disease, but because it's been around for a long time and the world is still clueless about it.. putting gluten in everything and then acting like we're something strange because we don't eat it, when in fact the whole world is strange because 90% of the population eats whatever packaged foods without even knowing what's in it!

We all understand your frustration here however and won't get tired of your venting :-) Vent all you want!

My gluten symptoms last for more than three weeks by the way.

When I travel I bring my own toaster and hot plate along with a pot to cook in. Some hotels also have microwaves in the rooms, ask when you make reservations if you can. Then you can grab safe foods at the store and make sure you have plenty of safe snacks to munch on when the band stops at a fast food place after a gig.

Very resourceful idea. Where is will there is always a way. Also some supermarkets sell ready grilled chicken, and I think they're usually gluten-free. the important thing is that you find good food and keep it available.

Just a side note, and I really don't mean any disrespect to anyone who enjoy McDonald's.. but I find it so .. d (I'll leave d open to interpretation)

When you were "fighting it" did you eat any gluten-free products like gluten-free pasta and bread?

I don't know about the rest but the reason I can fight it is because I not only gain weight like you do, but I also get other symptoms that I would rather not have, specifically anxiety and mood swings, fatigue, loss of will and so on.

I think that you're suffering from cravings because you're back on the gluten. Gluten makes you crave carbs and feel hungry all the time.

My suggestion to you is to find a good eating routine while you're on tour. You need to figure out a way to keep yourself fed and satisfied without consuming gluten. I read some really REALLY helpful tips about how to manage cravings and hunger, and the one I can remember right now is to eat healthy fats with your food (like nuts and avocados and so on), and to never eat carbs alone. Which brings me back to the question, when you ate gluten free, did you consume gluten-free bread and pasta or did you just eat rice and didn't bother with processed gluten-free products?

Like for example, if I'm going to eat a pear, I eat it with cashews, or if I'm making chicken with a sauce, I'll can put chopped nuts into the sauce.. These examples are with nuts but there are a lot of other healthy fat alternatives.. I'm sorry I can't suggest any at the time because my brain is occupied with other problems :-( But I'm sure the very brilliant people around here will be giving you many tips. Just hang in there.

I made my own rice milk and I am letting it ferment with the milk kefir grains. Hopefully this works the same! Then I can have the probiotics with the low iodine low sals diet. Tonite I have no new lesions and my itch has gone done considerably! Yay!

Yay :-)

What a thread lol :-P Can't believe I missed it!

The very simple answer is overexposed lighting (because she's in direct sunlight) together with lots of contrast, and missing links (the lines are not connected) :-)

The lollipop in the center of her head is creating a line-gap in the object behind it (her head), and our minds are usually programmed to be able to connect gaps in lines, but in this case the lighting of the image is really overexposed (making the light areas very light, and the dark areas very dark with a lot of missing tones in between), so some brains might not be able to make the connection between the lines due to the humongous difference in lights and shadows (the amount of contrast).

To help put your mind at ease.. I connected the lines for you :-)

But I really hope that my rushed drawing won't create even more confusion! :-O

Here's another example I borrowed off the net to show you what I mean with overexposed lighting + contrast

Yes I did..jesters link worked great!...but it NEVER breaks surface...scabs or gets bigger than a freckle...the biggest one I've ever seen was the ones my DAD and uncle get...the size of a small ladybug..shaped the same too!But mine allmost NEVER rise above the surfaceof my skin..let alone blister or get itchy...as far as I know my DAD and uncle's arn't itchy either...Its just annoying and strange! I should be grateful!

Oh well ,I have MORE than enough OTHER symptoms that are WAY more conserning and Important to stop than THIS one...I was just curious...but SERIOUSLY...thankyou for trying to help I apresiate it!( sorry...I was Gluttoned by some BARLEY in some wild rice I ate...can't spell worth s$#& when I'm glutened...can't remember the words right!)

I think I know what you're talking about. I used to get little red freckles on my hand but that happened very rarely. They're like small little red dots under the skin. I never figured them out. They never itched. When I googled them people were saying they were burst red blood veins from throwing up, only that wasn't the case because I hadn't thrown up. I assumed it was was just a reaction to something.

I can't find info on kale. Grr. Dani?

If you google "kale salicylate" you'll get lots of results. Sub kale for anything on the search and you'll likely find an answer. It seems sals levels are debated a bit, so if you're ok with something I'd use that info over a chart. Remember, they are cumulative and it may take a few days to see a reaction.

I only found one source stating it's low, but only one source isn't a positive answer for me.

I'd try #2 first.

I was thinking the same thing :-)

What about kale?

I think kale is low but I'm not sure.. can't find much info about it

Now Dani, you put me on the spot. Now I'm going to have to figure one out.

Hahahaha :-)

Here's one. Instead of full eggs you could do egg whites. Replace butter with shortening or oil (I think you'd reduce oil a bit if using). I'd refrigerate the dough before baking. You could add some cocoa. I'd use half the amount of maple syrup to sugar.

Open Original Shared Link

Here's another. Again, use egg white only or egg replacer (or whipped flax seed or chia seed). Open Original Shared Link

Oh thank you Prickly, thankyou thankyou thankyou!

I don't feel that it is a rediculous attachment to food. There are food "memories". Jesus even said "I am the bread of life" because their life revolved around bread at that time and they would relate! It's grandma's biscuits and sitting around eating pancakes after sleepovers. It is birthday cupcakes from a bakery and sharing a family meal at the local pizza parlor. It is only drinking the juice at communion but pretending to take the bread so noone would know (yes grandma cried when she saw that!). There are memories in food that she has to get over not just the gluten. It is also more "social" for an 11 year old and I have to hold her when she cries because she feels left out of things. She has to take her own food to church every single Sunday because they have snacks there. She feels "odd". And does anyone rememeber middle school? You don't need a reason to feel "odd". Once she cried because everyone was eating Dunkin Donuts but she waited until night to cry so no one saw her. Yes, we have her gluten-free donuts to take but she still remembers 4 months ago what those real ones taste like. She offered me all of her birthday money ($85) if I'd get her a real donut. She asked me about dating down the road (wayyy down the road) and where could she go on a date.

I just read here where people's symptoms go away almost immediately after starting a gluten-free diet so I guess sometimes I want to wait until her first stomache ache caused by gluten. Then I'd start. But like I said I am not. I dont' want to risk other auto-immune disorders. I have switched shampoos, bought new appliances, and cleaned all cabinets like someone with OCD. But it is still hard. It would be much easier if it had happened to me and not my child. I am just talking it out....out loud.

Also, getting stomach aches might not be one of her symptoms, so she might be developing other serious issues but not know about them because she's not getting tummy aches. I've never been diagnosed because I never developed the classic symptoms, but look at me now.. I can't work out without getting weak, I never got a period without medication and if I hadn't found out about gluten I would have still been thinking I was infertile. My point before and now are that a lifestyle revolving around food can be adapted, it's never easy because no one can see it at first, but it eventually does because we're adaptable creatures. A lifestyle with painful symptoms is harder to adapt to though.

I don't feel that it is a rediculous attachment to food. There are food "memories". Jesus even said "I am the bread of life" because their life revolved around bread at that time and they would relate! It's grandma's biscuits and sitting around eating pancakes after sleepovers. It is birthday cupcakes from a bakery and sharing a family meal at the local pizza parlor. It is only drinking the juice at communion but pretending to take the bread so noone would know (yes grandma cried when she saw that!). There are memories in food that she has to get over not just the gluten. It is also more "social" for an 11 year old and I have to hold her when she cries because she feels left out of things. She has to take her own food to church every single Sunday because they have snacks there. She feels "odd". And does anyone rememeber middle school? You don't need a reason to feel "odd". Once she cried because everyone was eating Dunkin Donuts but she waited until night to cry so no one saw her. Yes, we have her gluten-free donuts to take but she still remembers 4 months ago what those real ones taste like. She offered me all of her birthday money ($85) if I'd get her a real donut. She asked me about dating down the road (wayyy down the road) and where could she go on a date.

I just read here where people's symptoms go away almost immediately after starting a gluten-free diet so I guess sometimes I want to wait until her first stomache ache caused by gluten. Then I'd start. But like I said I am not. I dont' want to risk other auto-immune disorders. I have switched shampoos, bought new appliances, and cleaned all cabinets like someone with OCD. But it is still hard. It would be much easier if it had happened to me and not my child. I am just talking it out....out loud.

I understand you're speaking from frustration because you hate seeing your daughter deprived, but I still can't understand why all that you've mentioned outweigh someone being able to escape a lifetime of symptoms.

Poppy seeds, hazelnuts, cashews, Pecans and sunflower seeds are low sals. Those you can take with you anywhere.

Meat is low sal - take a bit of meat, low sal veg/fruit with you in a cold lunch box with an ice pack.

You could make homemade apple chips from a low sal apple variety.

If you have rice flour you could probably figure out a low sal/li chocolate (use cocoa) cookie, etc.

Nuts too :-) they're really expensive in Sweden but not sure how it is over there :-)

Do you have the recipe for the rice flower chocolate cookies :-O I wouldn't mind that one at all (if it's egg free and can substitute sugar with maple syrup)!

I am emailing my teacher now to let him know my situation. My other teacher is already aware. I have a bunch of chicken and rice! But I cant eat that all day! I need something I can take with me on the go. I usually eat bananas when I'm on the run and I eat kale and broccoli for greens. I guess I can finish up the last of bananas and buy a few pears instead. However bananas don't cause we to break out no matter how many I eat.

Here is a list of fruits that are ok (ranging from none to low amount of sals):

Banana

Pealed Pear

Lime

Apple – golden delicious

Nashi Pears

Papaya

Paw Paw

Tamarillo

Broccoli is sadly high on sals so you don't want to buy that anymore.

As for veggies (also from none to low amount of sals):

Bamboo Shoots

Beans (dried – not borlotti)

Cabbage (green or white)

Celery

Green Split peas

Lentils (brown)

Lentils (red)

Lettuce (iceberg)

Peas (dried)

Potato (old/white and peeled)

Swede

Bean Sprouts

Borlotti beans

Brussels sprouts

Cabbage – red

Cauliflower

Chickpeas

Chives

Choko

Fresh Asparagus

Green Beans

Green Peas

Leek

Mung bean sprouts

Onion

Potato (white with peel)

Shallots

Yellow split peas

and veggies with medium sals, meaning you have to eat them in moderation:

Asparagus – tinned

Aubergine – peeled

Beetroot

Black Olives

Canned Asparagus

Carrot

Fresh Tomato

Frozen Spinach

Lettuce (other than iceberg)

Marrow

Mushrooms

Parsnips

Potato (new and red Pontiac)

Pumpkin

Snow Peas

Sprout

Sweet corn

Turnip

Beware though that you should avoid any beans, mushrooms, and cauliflower if you want to go on candida diet as well as sals.

As for the rice, you can have rice one day, potato another day, and so on. You can even try brown rice as a third alternative since it has a different flavor and consistency from white rice so it won't feel the same. Just make sure that the rice you're buying isn't mixed with barely or some glutenous grain.

If you're short on time make a large batch and then pack a small lunch every day with a fork. I know repeating what you eat is tedious, believe me I've gotten so sick of what I eat because I can count the things I eat on my fingers, but it's something you might have to put up with for a short while for the sake of feeling better.

If you get really bored of the repetitive foods, just post all the things you can eat on a forum post and ask for recipe suggestions. You'll get flooded with amazing ideas :-) and I speak from experience!

I will try converting my milk kefir grains...I did not realize you could do that Thank you! I am VERY stressed. This is my last quarter. I graduate in June and I have no idea where I will work. I cannot get a job with my face like this. My degree is in FASHION!!!! We do not have any type of meal plan or anything at my school.

You HAVE to communicate with your tutors and see what they have to say. They will not be understanding with you if your progress simply falls behind, but they will be very supportive and maybe even be able to offer some advice regarding your studies if you put them in the picture.

So talk to your tutor as soon as possible. I'm studying illustration and it's the same type of work and pressure as your major, so I do understand your stress. Remember, one step at a time. If you tackle everything at once things won't go so smoothly. Focus on the tasks that are most important first, and just keep in mind that if you keep stressing you won't get much done. Relax, and you'll produce. You'll figure things and hopefully your face will clear up before it's time to get a job, so don't worry about that for now. Worry about getting better, and about your studies.

Prickly's shopping suggestion was a good one. If you have any foods you've not opened yet and you have the receipts you can always try changing them for something else.

Berries and fruits except for pealed pears will provoke your DH. I know this will sound a little gross but chicken wings are not very expensive and they're quite fatty. I had a friend who wanted to gain weight so ate chicken wings with rice. Rice is also cheap.

Effing Celiac. Effing hormones!

I echo that :-( Let us know how you're feeling (if you get better or worse)