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Nevadan

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Everything posted by Nevadan

  1. Nevadan
    I hear you. I'm gluten sensitive but don't have the celiac disease genes (I have a double dose of GS genes (DQ1's)). I self-dx'ed at first and saw several symptoms (some of which I didn't even recognize as symptoms) vanish within days of going gluten-free. I did do the Enterolab testing mainly to get the DNA analysis; however their stool testing also confirmed...
  2. Nevadan
    I agree with the others that you should probably be gluten-free. One current school of thought is that celiac disease is only one manifestation of Gluten Sensitivity, so even you turn out not to have celiac disease your tests point to GS. There is lots of evidence of people with GS who don't have celiac disease but still have some pretty bad autoimmune...
  3. Nevadan
    I'm an apparent non-Celiac gluten sensitive person. My symptoms include such things as osteoporosis (male dx'ed at 55), mild anemia, mild peripheral neuropathy, etc. You might want to read "Dangerous Grains..." by Braly and Hoggan, a book which focuses on gluten sensitivity without celiac disease. You might also want to get DNA tested for this as well...
  4. Nevadan
    I agree with Kaiti's recommendation. I was in a similar situation. After self-dianosing with diet, I did get tested by Enterolab ( Open Original Shared Link ) mainly to get their DNA results (you can do the DNA test only for about $150) since I believe the DNA testing does give you an idea of what you are susceptible to (but it doesn't prove you have anything...
  5. Nevadan
    Food sensitivities vs allergies - VERY confusing, even to the medical profession. It is somewhat a matter of sematics. From my research the most consistent definitions are based one whether an IgE or IgG based reaction occurs. IgE reactions are typically immediate reactions and can be tested by the skin scratch test; IgG based reactions are typically delayed...
  6. Nevadan
    This is mostly in response to skoki mom's reply above. She reported having skin tests done but mentions intollerances. As I understand things these days (and that changes daily), the skin tests are related IgE responses which are different from IgA responses usually associated with intollerance/sensitivity(even the med profession can't agree on this), but...
  7. Nevadan
    Did your muffins happen to contain butter or other casein/lactose ingredients? I found that I am also sensitive to these as well as gluten, and I hear this is pretty common at least at first after going gluten-free. Two or three gluten-free choc chip cookies made with butter are enough to set off my symptoms. George
  8. Nevadan
    I did the Enterolab thing after self-diagnosing by diet change. I did this for a number of reasons: 1. I thought it might help me figure out how serious my sensitivities were, particularly regarding malabsorption. (I was dx'ed with osteoporosis 5 yrs ago and have had a low level anemia all my life) 2. I wanted their DNA testing since I think they test...
  9. Nevadan
    I take Essential Balance by Nature Made which states on the label "No Gluten". George
  10. Nevadan
    I have a non-celiac disease gluten sensitivity, too. Based on the research I've done, this is genetic just like celiac disease, and it has some equally dire diseases related to it even though the intestine may not be among them. Being a genetic disease, we're stuck with our genes for life so while some symtoms may change and appear to allow you to eat gluten...
  11. Nevadan
    Rachel, The York Nutritional Labs website is Open Original Shared Link It is rather informative much like Enterolab website. It includes pricing. I'll post my results when I get them - I'm still waiting for the collection kit. George
  12. Nevadan
    Regarding related diseases, I recommend a bone density test for osteoporosis. There seems to be very strong correlation with celiac disease. In fact I read that some medical group (AMA?) is now recommending that all patients dx'ed with celiac disease should have the bone density test. George
  13. Nevadan
    Regarding related diseases, I recommend a bone density test for osteophorosis. This seems to be one of the strongest correlations. George
  14. Nevadan
    Rachel, Yes, the York Nutritional Labs does IgG food intolerance/testing testing. Their claim to fame is that they can test for 100+ sensitivities from a pin-prick blood sample. Their website discusses their testing validation via multiple double blind clinical trials - sounds good. Your experience with gluten seems to make sense relative to your IgG...
  15. Nevadan
    Another interesting thread - even if a bit off topic, including this post. Looks like we guys are in the minority here, but I thought it might be worth sharing some experience on getting spouses to help with the cooking - what the hexx, when you're my age... When my wife and I got married after college 37+ yrs ago, I was the one with some cooking experience...
  16. Nevadan
    I read lots of valid points being made in this thread. While on the topic of testing, what about York Nutritional Labs food sensitivity testing? Seems they have some credibility based on some evaluations in England. I recently signed up for their testing but haven't received my sample collection kit yet. Just curious. As has been previously stated...
  17. Nevadan
    Rachel, re other causes for osteo, you're right - there are several, many genetic. Things like my thyroid test normal. Osteo runs in my family - my older brother has it (his dx keyed me to get tested) and one of his sons has it also. So gluten may not be related at all, but I thought it was worth a try since anemia also runs in the family and I have...
  18. Nevadan
    I, too, recently was tested by Enterolab after self-diagnosing my gluten sensitivity by alternating gluten-free/non-gluten-free and seeing some symptoms respond accordingly. [i got onto this gluten thing because I have osteophorosis and I saw an article that stated that osteo and celiac are often present together.] I had the Enterolab tests done more out...
  19. Nevadan
    I recently got gluttened and am trying to id the source. One possibility is from popcorn served at a local saloon (I live in Nevada) where my wife and I go to enjoy western music. They add a yellowish something to the corn before popping it, and I tried finding out what was in that, but the person who does the popping doesn't know and the yellowish something...
  20. Nevadan
    You might want to take a look at this website: Open Original Shared Link It seems to be more oriented toward those with non-Celiac gluten sensitivity. Part way down the opening web page is a section of links titled "Gluten Sensitivity". I found the fourth link, Gluten Intolerance, Paradigm of an Epidemic" particularly enlightening. George
  21. Nevadan
    Rachel, I specifically asked Enterolabs about the positive aTG result given that I don't have a celiac disease gene. Here is their response: " In reading Dr. Fine's research, you will find that the anti-tissue transglutaminase is actually a reaction to gluten sensitivity and not specific to celiac disease alone. For years this test has been used...
  22. Nevadan
    This thread raises some questions I'm still trying to resolve. I tested with Enterolab: Fecal antigliadin IgA: 17 Fecal Antitissue Transglutaminase IgA: 17 Fecal Fat: 84 HLA-DQ Gene: HLA-DQB1*0602,0602 First, as I understand their gene testing report, the two 4 digit numbers after the * represent your two versions of the HLA-DQ gene (one from...
  23. Nevadan
    I never thought about a possible connection. I had an appendictomy two yrs ago at 58 yrs old. I self diagnosed my gluten sensitivity earlier this year. Subsequent testing by Enterolab found evidence of gluten sensitivity but not celiac: Hi Antigliadin IgA Hi Antitissue Transglutaminase IgA OK Malabsorption HLA-DQ gene: HLA-DQB1*0602*0602 (double...
  24. Nevadan
    You might want to consider having a DNA test done. I had mine done by Enterolabs and it came back that I was not likely to ever have celiac but that I was (doubly) gluten sensitive. One of my most overt symptoms was chronic constipation (forever) and it almost vanished within 48 hrs of going gluten-free. I too think that my sensitivity to gluten may have...
  25. Nevadan

    ARCHIVED Grrrr....

    Nevadan replied to a topic in Coping with Celiac Disease

    What a great thread!! And then there are those of us who are "ONLY" gluten sensitive (and casein sensitive) [gluten gene = double DQ1 subtype DQ6]. Try explaining that you are concerned about all the "potential" neurological and autoimmune diseases related to being gluten sensitive and continuing to consume gluten when confronted with glutenous food choices...
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