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mouse

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Everything posted by mouse

  1. I have lunch there, several times a year. Their gluten-free menu is not the same as PF Changs. So, be sure and order from their menu and not from memory. The food is good and the staff is well informed.
  2. What a great idea. I forgot about her operation today. Thanks for the reminder. Definately sending prayers and GET WELL FAST wishes Patti's way.
  3. I talked to Lynne a couple of days ago and she is much better. I called yesterday and Dave said she had been sleeping a lot over the last day as they had been pretty busy for a couple of days. He thought she might be running a small fever. She still has not had the video done, because of the pneumonia and then the Holidays. She promised to get it done...
  4. I have had two good days (been ill for a couple of months) and so this afternoon we went to Picazzzo's for gluten free pizza. We were home before 6 (and the drunks). Now my hubby is watching the Packers and Bears play. Of course he is happy that the Packers are winning. I will be off to bed in about an hour. A safe New Years at home. Tomorrow we...
  5. Chris is the one on the left. My husband and I do not exchange gifts and haven't for years. We took on poor families as our Christmas present to ourselves. But, this year he out did himself on the card and I cried. I have it sitting on my desk and I read it often. It said so much, since I have been so sick.
  6. Have a very Happy Birthday Jen!!
  7. HAPPY belated BIRTHDAY JUDY. I was glad that you had a nice birthday. And a year younger to boot - what a present. I have not talked to Lynne lately, but I have left messages. Maybe she is still fighting the pneumonia. I have been sick for about two months and the Mayo is trying to find some answers. Came down with a cold and then it went into bronchitis...
  8. The Porphyria test is an easy one. It is a 24 hour urine specimen that stays in the frig. between urination. My Father had two types of Porphyria and I have been tested numerous times and all came back negative. In my case it was Celiac and not Porphyria. If you have doubts, then get tested for Celiac and Porphyria. But, a diet does not control Porphyria...
  9. mouse

    ARCHIVED Recommend A Doctor In You State

    Dr. Leff 6553 E. Baywood Ave. Mesa, AZ 85206 480-324-0999 Gastroenterologist Tests all of his IBS patients for Celiac; believes that it is not necessary to do the endo, if the blood test is positive. Believes a positive diatary response is an answer in itself. Also believes that Celiac and gluten intolerance are the same thing. Also puts some...
  10. i am sick today and no i was not glutened. probably not the flu either, but some ongoing problems that i am seeing a doctor about on tuesday. the awful thing about being sick is we were finally having some friends and their kids to dinner today. i had set the table yesterday and made the rolls and put them in the freezer to bake before dinner. i had to...
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  12. i received this email from lynne. she saw the doctor and the fall was bad, but not the worse that was feared. Okay, so here's the update: Went in for my Fall "Brake" check-up -- Ha! -- and the results are pretty much what I had expected. All of the disc bulges and herniations have increased in size; two of them have herniated to the point that...
  13. thanks linda for the great note. it is perfect as you covered some things others have not. lisa, that is correct. i will be putting everyones name on the bottom of the cover sheet as we are all nominating lynne. those that have not sent me addresses, phone numbers, etc. if we get to second base, they will have my contact number and i will get it to...
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  16. HAPPY BIRTHDAY. Hope today is a great one with wonderful memories.
  17. please everybody, lets keep this thread on topic. this is very serious and we need to get lynne and dave that extreme makeover for their home. she sees the doctor today to find out what the MRI says. the last fall was very serious. she has a bug right now and feels worse then lousy. she sleeps a lot and is taking percocet for the pain from this last...
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  19. lisa, i am such a clean freak, that i empty my trash right after i delete. here is the list: gluten ataxia occulomotor apraxia word retrieval disorder - caused from the cerebellar damage peripheral neuropathy - caused from the cerebellar damage autonomic disfunction - inability to sweat (when goes out into the summer heat, she is literally cooking...
  20. somehow or other i deleted lynne's list of all the neuro diagnosious (sp). i had printed it out for the application, but i guess i was over zealous about deleting so many emails. when i feel up to it, i will try and type the main ones in. and any letter, no matter how short is welcome. could you please do it as a attachment. i thank you on behalf of...
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  22. thank you beverly for the wonderful email letter. i can open attachments if they are attached priperly - he he. i am such a computer nurd LOL. rachel, just speak from the heart. most of the people who are sending me letters have not met lynne in person, but only here on the forum or some talk to her on the phone. i watched one show where a town nominated...
  23. thanks for letting me know laura that you received it. turtle did you finally get yours. i am going to bed now, but i will check in the morning to see if you got it.
  24. laura, i just sent you an email. thank you for doing this. i hope your tests went well and that you are not in too much discomfort. also turtle, i sent you an email. and i appreciate your effort on behalf of lynne.
  25. the doctor thinks she has more crushed discs from the bad fall last week. she gets an MRI tonight. this is also a bump. i can't wait until i can use two hands to type. i hope i don't forget how LOL.
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