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roxieb73

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by roxieb73

  1. roxieb73
    So I haven't been on here in a while. I just wanted to check in and let everyone know how I was doing since going Gluten Free. Let me see diagnoised offically by GI doc last aug! I have Celiac but have been Gluten free for About 3 months...... I have lost 50lbs!!!!! My blood pressure is NORMAL without meds!!!! My Cholesterol is back in the NORMAL range...
  2. roxieb73
    Ohhh good one for when I get the need for a sugar fix. Yummy!
  3. roxieb73
    I had a very similar experience. I really thought I had the flu! High fever and all.... then I realized it was a gluten reaction.
  4. roxieb73
    Ok I have been gluten free for 2 months. I found a decent or at least edible pasta but I can not find a decent bread!!! OMG I didn't think I would miss it so much but I just want a big juicy hamburger on a SOFT YUMMY WHITE bread!!! Anyone know where or how to get good bread???
  5. roxieb73
    This is very close to my typing. You are Double DQ1 subtype (6/6) More prone to Neurological gluten problems.... such as Gluten Ataxia, peripheral neuropathy ect....
  6. roxieb73
    In 2 weeks I am going on a 7 day Cruise to the Caribbean (Jamacia,Grand Cayman, Cozumel). This will be my son's first vacation and he is almost 8 years old. I REALLY don't want to get any gluten and ruin my cruise. Any suggestions on how to make sure my trip stays gluten free? I can't believe how much better I am doing. I have gone from barely being...
  7. roxieb73
    I don't/won't ever cheat. That is not to say I won't accidentally ingest gluten but never on purpose. I truely believe if we had not figured out that I have Celiac I would have been dead within a year. I am getting so much better and the suffering I endure is just not worth a piece of cake or whatever. When I am tempted I just ask myself..... "Do you really...
  8. roxieb73
    DQ1/DQ1 (subtypes 5,6) Negative blood No intestional biopsy Rash biopsy DH or Lichen Planus (they aren't sure which but both autoimmune gluten reactions) Too many symptoms to list but most severe being Osteomalacia. I have Iron defcient anemia, and critically low vitamin D, elevated Liver Enzymes etc....
  9. roxieb73
    Awww biscuts I miss biscuts and gravy!!!!! How did they turn out? If they are good I would love to have the receipe.
  10. roxieb73
    I love it that is FANTASTIC NEWS! I also love hearing about the progress of others. It is very uplifting and gives me strength to keep on with what I am doing.
  11. roxieb73
    Is either DH or Lichen Planus either way Gluten induced rash...
  12. roxieb73
    Also wanted to share this little thought....... I wrote to Dr. Vikki Peterson author of "The Gluten Effect" and told her my situation. This was part of what she told me. "Also noteworthy is eliminating gluten and feeling better - do realize that that in itself is a positive test for gluten sensitivity" https://www.celiac.com/authors/360/Dr.-Vikki...
  13. roxieb73
    Thank you everyone! I have to say I have been tempted a few times to go off track. Especially when they bring yummy goodies in to work. Then I thought about how much better I am feeling and wanting to be able to walk and play with my son and all thoughts of taking a bite go bye bye. I still have a lot of work to do before my cruise next month wish me luck...
  14. roxieb73
    Woo Hoo soooo happy for you! That is awesome! Sounds very similar to me. My little brother asked me at the 4th of July if I was on speed. lol I asked why he just said I have so much energy and he hasn't seen me like that in forever. I have been gluten free almost 3 weeks and start PT to rebuild muscles I am already starting to walk better, more energy, and...
  15. roxieb73
    If you figure it out let me know that is one of my worst symptoms.
  16. roxieb73
    Wow talk about digging up old posts. lol However good information to have. I am very happy to know things at McDonalds has changed and there is a chance I can eat there again.
  17. roxieb73
    Ok so I have been hesitant to say (even though all testing is done) that I am gluten intolerant possibly even have Celiac. Well after emailing back and forth with Dr Vikki Petersen (author of the Gluten Effect) I can offically say I have a very serious autoimmune gluten intolerance. I am double DQ1 with Lichen Planus, Iron deficeincy anemia, Severe Vit D...
  18. roxieb73
    Wow I had no idea. I guess I am just a lucky one and have not had any problems. My only issue is eating too much fruit. Causing lots of bathroom visits but I am sure as I learn to cook gluten free it will all even out. lol Hope you feel better soon!!!
  19. roxieb73
    I don't know about picking up Celiac but it could show other things. Just wanted to wish you the best of luck.
  20. roxieb73
    Vitamin E,C and Mag
  21. roxieb73
    I did the same thing and had the outcome you fear. I was told because of my genes that I am not celiac. However I do have Lichen Planus which is an auto immune reaction to Gluten. I also have a lot of the symptoms. Including Vitamin deficeincy. My Vit D was critically low. Then I have iron deficeincy anemia, so low iron, b12, folic acid. Low normal mag and...
  22. roxieb73
    Do you happen to know about Lichen Planus? I have been told that is an autoimmune gluten rash similar to DH but not exclusive to Celiac. Of course they have just begun research. That is the rash I have. Curious just because I love to learn about these things where do you find this information? What is ttg-3&6?
  23. roxieb73
    Anyone know about this supplement or know where to find out about it?
  24. roxieb73
    Nora I love your question here...... lol I have ALL of the above. Ok my 2 cents for what it is worth. I think since you had a positive result pre gluten free and negative afterward a gluten challenge is in order. I only say that because it sounds like you are one of the rare people who can actually withstand it without getting sick. IMHO Roxie
  25. roxieb73
    If you don't think you are getting anywhere with the docs a trial Gluten Free diet is in order. I would hate for you to wait months or longer to feel better if it can help just because the doctors are being dumb.
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