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happygirl

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Everything posted by happygirl

  1. Vinegar is fine unless it is malt vinegar. Enzymes in cheese are gluten free. Here is some info that may make label reading a bit easier...good luck: Unsafe ingredients: Open Original Shared Link Safe ingredients: Open Original Shared Link A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats...
  2. 6-8 weeks, plus more time til your biopsy, is too long for an accurate biopsy. There is no point of having a biopsy to look for Celiac, when you have been gluten free for over 2 months. If your Prometheus bloodwork is positive, esp for the most specific tests, then the combo of the gene+positive bloodwork+symptoms (and, improvement in symptoms) is enough...
  3. Good info on Celiac vs. Gluten Intolerance: Open Original Shared Link (under "Getting Started") At this point, in general, very little is known about Non-Celiac Gluten Sensitivity. Research is just beginning to get underway.
  4. Open Original Shared Link
  5. Consider adding info from NIH's Celiac Disease Awareness Campaign: Open Original Shared Link A good article that was recently posted here (thanks, Lisa): Open Original Shared Link
  6. Based on what you posted, it doesn't appear that your doctor ran the correct tests for Celiac. Did he run either the tTG IgA or EMA IgA test?
  7. Here is your recent thread - it wasn't pinned yet. https://www.celiac.com/gluten-free/index.php?showtopic=65327&st=0&p=586360&fromsearch=1&#entry586360 Here is more info on how the board works and the new upgrade: https://www.celiac.com/gluten-free/index.php?showtopic=65319&pid=586330&st=0&#entry586330 Welcome to the board...
  8. Unsafe ingredients: Open Original Shared Link Safe ingredients: Open Original Shared Link A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." Open Original Shared Link and http://glutenfreeins...ct_updates.html This makes shopping...
  9. The Gluten Free Gourment Cooks Fast and Healthy: Wheat Free with Less Fuss and Fat by Bette Hagman. She is one of the "pioneers" in gluten free cooking and cookbooks!
  10. You are doing great! So he had five tests done - EMA IgA: negative tTG IgA: negative tTG IgG: negative AGA IgA: negative AGA IgG: negative The only one that appears even *close* to positive is the AGA IgG. They didn't run the total IgA test, which is not a Celiac test, but helps evaluates if you make IgA antibodies. If you don't make IgA antibodies...
  11. Can you give us a little bit more info? What is the reference range for the tests, and is there more info listed for the IgA and IgG tests? Welcome to the board!
  12. happygirl

    ARCHIVED Doctor Needed In Maine!

    If you don't get any recommendations here, you may want to consider contacting a local support group. Often, they have wonderful, knowledgable members and they can let you know who their members use and are pleased with. Some groups have GI specialists as their medical advisors, too. Here are three places to check for local support groups from the national...
  13. Italics added by me. Open Original Shared Link Int Arch Allergy Immunol. 2009 Nov 24;152(1):75-80. [Epub ahead of print] Differential Mucosal IL-17 Expression in Two Gliadin-Induced Disorders: Gluten Sensitivity and the Autoimmune Enteropathy Celiac Disease. Sapone A, Lammers KM, Mazzarella G, Mikhailenko I, Carten
  14. They do the gluten-free diet wonderfully there, so it was probably just a person who didn't know much about Celiac. I ate gluten free at the reception (prepared specifically for me), one dinner at a restaurant in the hotel, and the brunch (which I definitely recommend!) The staff couldn't have been more helpful in finding safe food for me to eat, and even...
  15. happygirl

    ARCHIVED Need A New Gi In Mi

    Welcome to the board! If you don't get any recommendations here, you may want to consider contacting a local support group. Often, they have wonderful, knowledgable members and they can let you know who their members use and are pleased with. Some groups have GI specialists as their medical advisors, too. Here are three places to check for local support...
  16. Right outside of Nashville is a great place that serves delicious gluten-free pizza Open Original Shared Link Support group for the area: Open Original Shared Link - they should have resources for you if you contact them. All the restaurants at the Opryland Hotel can feed you quite wonderfully, too. You can also find chains like Maggiano's and PF...
  17. It may help to figure out what the machine will be like, as there are different kinds...some of which may cause more worry/stress than another. Maybe call the center where its being done and discuss it, so you can manage your expectations of it better than going in not knowing what to expect? Good luck!
  18. Its a great magazine with lots of helpful, up-to-date information - I think you'll enjoy it, Cecily. Happy New Year to you, Lynayah! Hi Patti!!!
  19. This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance. Open Original Shared Link
  20. Not always - https://www.celiac.com/gluten-free/index.php?showtopic=36502
  21. Some tests to discuss with the doctor: tTG IgA EMA IgA AGA IgA AGA IgG total IgA Newer tests - in place of the less sensitive/less specific AGA based tests are the anti-Deamidated Gliadin Peptide (DGP) antibody (both IgA and IgG). Not sure if they are able to order this.
  22. happygirl

    ARCHIVED New Format

    If anything, its faster for me.
  23. Yup, that's my new excuse! Thanks, Nik! So hard to take it all down.
  24. happygirl

    ARCHIVED New Format

    I'm not quite sure how it all works just yet, but I LOVE IT! Think it looks great!
  25. Lisa, what a good find! Thanks for posting this. It is worth the read! And, another reason why the Celiac community is lucky to have Dr. Green! This quote was interesting: "About 75 percent of all patients now diagnosed at the Celiac Disease Center arrive not by physician referrals, but because patients learned about Green’s practice by searching the I...
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