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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    It means you can be doing damage. Symptoms do not equal damage. There is research going on as to what level (threshold) of minimal gluten intake Celiacs can tolerate without damage. The answer now is that we don't know enough, and that it may vary across people, just as their symptoms vary.
  2. happygirl
    Its worth it to have the Celiac panel done in order to get a correct diagnosis. You can always try the diet after testing, regardless of the results. The bloodwork may not be accurate for those who have a non-Celiac gluten sensitivity (i.e., those that do not have Celiac, but feel much better gluten free) The endoscopy is not invasive - it is generally...
  3. happygirl
    You should be eating a normal gluten filled diet for a few weeks-few months before testing. The purpose of the testing is to detect damage. Damage doesn't occur overnight, and the bloodwork accuracy has been correlated to the level of villi damage. Meaning, lower levels of damage (if you have Celiac) may not reflect in blood testing. The goal of the...
  4. happygirl
    Melissa, Unfortunately, sometimes people on this board act in less than supportive ways. Your post did not come across as joking. When you get in your sons results (bloodwork), ask for a copy. Post the Celiac tests performed, the result, and the reference range. Let us know what we can do to help. Even if the tests are negative, and your doctors...
  5. happygirl
    People's reactions vary after going gluten free, similar to how their symptoms vary before going gluten free. Lack of symptoms does not mean that damage is not being done. Celiacs can have absolutely no symptoms, and have Celiac, or be debilitated by their symptoms, and have Celiac. Most fall somewhere along the spectrum. Research on long term Celiac...
  6. happygirl
    Discuss with your doctor Open Original Shared Link Dig Liver Dis. 2007 Oct;39(10):922-8. Epub 2007 Aug 10. Links L-Carnitine in the treatment of fatigue in adult celiac disease patients: a pilot study.Ciacci C, Peluso G, Iannoni E, Siniscalchi M, Iovino P, Rispo A, Tortora R, Bucci C, Zingone F, Margarucci S, Calvani M. Gastrointestinal Unit, Department...
  7. happygirl
    It is not standard procedure to have general an. Instead, they use sedation. Generally, its a quick and easy procedure. Keep in mind the procedure looks for other issues besides Celiac, also. Your doctor will be able to give you more information and answer your questions given your medical condition.
  8. happygirl
    Your best resources would be to talk to one of the national Celiac (Celiac, no 's') that have branches. They will be able to guide you. www.gluten.net www.celiac.org www.csaceliacs.org
  9. happygirl
    Minimin, Call your doctor and ask for the total IgA test. If you are IgA deficient and have Celiac, you can't test positive on the IgA based tests. It may be worth it to try the diet and see if your symptoms improve.
  10. happygirl
    Lunchables is a Kraft brand. Open Original Shared Link Open Original Shared Link If you don't see wheat, rye, barely, or oats, then according to Kraft, it is safe.
  11. happygirl
    Join a local Celiac support group. Ask your doctor for a referral to a dietitian who is experienced with Celiac. Learn how to read food labels and which companies make reading labels easier. https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/ Open Original Shared Link and Open Original Shared Link Newly diagnosed: Open Original Shared...
  12. happygirl
    Your doctor did well regarding the Celiac bloodwork - just ask him to order the total IgA, particularly if your Celiac tests are negative. Keep eating gluten until testing is complete.
  13. happygirl
    Not all of Edy's are gluten free - only some - the ones listed on their website.
  14. happygirl
    One of the four have returned to real life..........
  15. happygirl
    We use better batter gluten free flour and we substitute it one for one in all recipes - and don't have to add anything to it. Its the best flour we have used, by far!
  16. happygirl
    Did I hear a discussion about lady of leisure suits? Good recall, Julie. Funny, I brought one, and I'll be wearing it tomorrow. Life is wonderful here - going to be hard to leave tomorrow. I can't keep up with everything, but love and hugs to the new KITTY (sweetness!) and to sweet Arnie. Sammy and Rudder love, love, love each...
  17. happygirl
    Welcome! here is some good info to help with label reading: Open Original Shared Link and Open Original Shared Link
  18. happygirl
    and Momma Goose has a doggie, too. I am tuckered out from this little one, let me tell you.
  19. happygirl
    You are a great a friend For all - Label reading/company policies/etc: Open Original Shared Link and Open Original Shared Link
  20. happygirl
    While not ideal for many, if you are having trouble finding a doctor and getting your daughter tested for Celiac, it may be worth it to try the diet to see if it relieves her symptoms. Maybe others will have some good ideas. Good luck.
  21. happygirl
    If you are getting insurance through an employer, then it is (almost?) always open to ALL employees - shared risk. It includes healthy and the less healthy. You can't be turned down if it is a group health plan that is offered to all employees. If you are continuously covered by insurance, you can usually provide proof of coverage (dating back to a certain...
  22. happygirl

    ARCHIVED Specialists?

    happygirl replied to SeMeCl's topic in Doctors

    Once back in the US, you may find good information from local support groups. They may be able to recommend doctors that are well-versed in Celiac, as well.
  23. happygirl
    Bev, I wish you could pet her too. She's asleep at my feet right now...she really does make life better. Today she learned how to run, and is learning how to play. She met another dog in the neighborhood, and had more neighbors come to meet her and play. We've had a few accidents in the house, but we are working on it. I still have no idea what the...
  24. happygirl
    If you have biopsy confirmed Celiac, the gluten free diet for life is the only recommended treatment at this point. If you need help with finding 'replacements' - let us know! It is adapted from my mom's "normal" banana bread recipe (everything in our house is pretty much "adapted") Banana Bread 2 tsp vanilla 3/4 c sugar 1 1/2 mashed bananas...
  25. happygirl
    Here are some recipe threads (mainly from last year) that may come in handy: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link
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