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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Be careful of docs with thyroid test results. The normal range is REALLY wide and many don't feel well even when their doctors tell them that they are fine. My thyroid started under functioning when I was a few years older than your daughter but doctors kept telling me I was normal. I was close to 40 before my labs were abnormal enough for them to agree....
  2. nvsmom
    I think milkcando damage to the villi in some people but I am not sure how or to what extent... I think it is a casein sensitivity. Otherwise I believe other food sensitivities cause inflammation and other symptoms, everything but villi damage. Lol Hopefully others will chime in. I don't know much about this.
  3. nvsmom
    Poor little thing. For me, C did not let up until my hypothyroidism was adequately treated (TSH below a 1 for me). Has her thyroid bee checked yet? TSH should be near a 1 anf freeT4 and freeT3 should be in the 50-75% range of the lab's normal reference range. Best wishes.
  4. nvsmom
    Most doctors advise 1-4 slices of bread per day, with 2 seeming to be the average. After being gluten-free for a week, with only one week to go, I would suggest erring on the side of caution and eat a bit more than half a slice. It might not make any difference, but then again it could.
  5. nvsmom
    I'm having cookie cravings now!!Lol
  6. nvsmom
    The tTG IgA is slightly more specific for celiac disease, but only by a percent or two. The DGP tests are very good celiac tests, if it was high, then you are most likely a celiac... Welcome to the club. This article, on page 12 discusses how specific the tests are: Open Original Shared Link
  7. nvsmom
    If you were only gluten-free for a week, I am guessing that it won't affect your labs much. Try to eat two or so slices of bread (or equivalent) per day until your tests are done. Good luck.
  8. nvsmom
    I feel mostly better at one year gluten-free. fatigue still hits on some days, and migraines once or so a month, but it is much better for bloating, GI pain, "C", joint pain and such. I know my antibodies aew still above normal after one year, so I don't think I should expect to feel perfect yet.
  9. nvsmom
    Great minds think alike. LOL
  10. nvsmom
    The full celiac disease panel, which hardly anyone seems to get, is: tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA AGA IgA and AGA IgG It appears they did the tTG IgA and DGP IgA celiac tests for you, as well as the total serum IgA. Celiac tests have various ranges like 0-4, or 0-1, or 0-20. I'm guessing that yours are 0-4, but you need...
  11. nvsmom
    I think you are expressing your thoughts well, and your writing is fine, but I think what the others meant is should you be saying those things? Why do you need them to hear it? Your parents aren't responsible for how you feel about things, even if it is situations that affected you. You can't change others' reactions and thoughts, only your own. I think...
  12. nvsmom
    I don't think that casein can cause elevated levels of tTG. I believe that lactose intolerance is often a result of high tTG because the tTG damages the villi where lactase is made. I know that casein intolerance is thought to damage villi too, but I'm not sure how... I'm not medically trained or well versed in this area though. I'm interested in what...
  13. nvsmom
    I agree with Gemini. If it's gluten-free, and you are not splurging too often, I wouldn't worry about it. Last night I had 6 udi's snickerdoodles... I'm pmsing and my inlaws are coming for a week, and l had more inlaws over for dinner yesterday.... I deserved it. I overate gluten-free in my first few months too, and oddly enough, I lost weight doing...
  14. nvsmom
    I'm not trusting of doctors anymore either, they are just a tool I use to treat myself... My family doctor is a "tool" too. Hopefully your symptoms will slowly settle back down soon. Many of us take months or years to regain our health. I think that all you can do for celiac disease is eat well, possibly avoid dairy, take that probiotic (I just by whatever...
  15. nvsmom
    Sounds like a good doctor. I would suggest giving the diet closer to 6 months before you re-assess how it has helped you (if tests are negative). Keep a journal so you can see how symptoms change over time. Yes, the gastro symptoms usually improve pretty quick but the other ones (neuro or pain) sometimes make a rebound. I remember feeling really really...
  16. nvsmom
    That sounds crazy to me too! The EMA IgA is 98-100% specific to celiac disease, that means that out of 100 positive tests, 98-100% of them are acused by celiac disease. The tTG IgA is almost as good. With the two tests, how could he doubt it is celiac disease just because they didn't see it with their own eyes? I'm glad you are not listening to him and taking...
  17. nvsmom
    Waiting is hard. It can totally drive you batty. I'm waiting on some (unrelated to celiac) tests right now, and I must admit that thoughts of the test pop into my head every hour - and you just can't stop it can you? Hang in there. I agree that you should get your kids tested too. celiac disease runs in families, and from what I have seen in my family...
  18. nvsmom
    I think you might as well get tested too, even if you have been gluten-free for a few months as sometimes the antibodies stay elevated for quite some time gluten-free. my tTG IgA was still elevated after a year so I know it can happen. I hope you continue to feel better gluten-free.
  19. nvsmom
    If you do more tests, the DGP tests are good ones for kids. If he still tests positive, you might want to consider making him gluten-free anyways. Non-celiac gluten sensitivity (NCGS) is much more common than celiac disease and he will have all the same types of symptoms but without the villi damage (so a negative tTG, DGP, and EMA tests). Good luck.
  20. nvsmom
    Hmph. I am a celiac who had a positive blood test (no biopsy) but I have no nutritional deficiencies - I even exceeded the limit in vitamin B12. Don't listen to the doctor, keep doing your own research on this. And good luck with the gluten-free diet.
  21. nvsmom
    The total serum IgA is the control test to make sure you make enough immunoglobulin A for the othet tests to be accurate (5% of celiacs don't). Yours is in the middle of normal and perfect. The Gliadin antibody tests are most likely the anti-gliadin antibodies (AGA Iga and AGA IgG) tests. That's an older test and not usesd as often anymore partially due...
  22. nvsmom
    I would guess it is, two of my three boys have gluten sensitivity with negative celiac tests, and I am a celiac... That sounds genetic to me.
  23. nvsmom
    The main link to celiac disease is that they are both autoimmune diseases, and a gluten sensitivity can bother symptoms of lupus/SLE. I suspected lupus in myself too and my GP agreed. I had 4 of the 11 diagnostic criteria but by time I got into a rheumy, my symptoms had improved so much that I had nothing to show them. My blood tests (besides ANA in the...
  24. nvsmom
    Apple butter or seed butter
  25. nvsmom
    Yes, it can come out of nowhere, but you've had symptoms of GI issues and GERD for a while now - the pain and bloating is just a new symptom of your gluten sensitivity. NCGS has every nasty symptom that celiac disease has. There are many on this board with NCGS who have suffered with more extreme symptoms than I have. I think most of the symptoms come...
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