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nvsmom

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Everything posted by nvsmom

  1. nvsmom

    ARCHIVED Reading

    nvsmom replied to BabsV's topic in Introduce Yourself / Share Stuff

    I don't think I ever read the sequel... hmmm, might have to get it for my vacation.
  2. nvsmom
    I would revisit the thyroid issues. TSH should be very near a 1, free T4 and free T3 should both be in the 50-75% range of your lab's normal reference range, and TPO Ab should be very low. When my TSH is a 2 or above, I feel hypo (cold hands, feet, nose and bum, body temp below 97F, thinning hair, low energy, slightly puffy face, achy joints, dry scaley...
  3. nvsmom
    My grocery store puts the Health food/Natural foods right by the dog food.... I always wonder what they are implying....
  4. nvsmom
    Oh yeah, you are looking hypo with those numbers. TSH is high (doctyors might argue with me on that) and your Free T4 is in the bottom half of the range. When my numbers were like that I felt quite hypo, and my free T3 was quite low. I agree with Orange that you should ask for TPO Ab and free T3. Free T3 should be in the upper half of the normal range...
  5. nvsmom
    Depends on the labs. It can be a day or so, up to many weeks. I would guess that a week is the norm.
  6. nvsmom
    LOL I think that's why we miss gluten containing foods so much at first, it's all the treats and comfort foods that we have to say good bye to. Nuts are a good source of fibre. Coconut (real canned coconut milk especially) helps get things moving for me too. Dairy is another thing that can affect bathroom habits, perhaps consider removing it for...
  7. nvsmom
    You have an IgA deficiency. You do not have a normal amount of IgA, and they (usually) base lab's normal ranges on what 95% of the population has, so you are in the minority. Below the range is usually considered deficient, although there are varying degrees of that. Your diet will not affect your total serum IgA, but a gluten lite or gluten-free diet...
  8. nvsmom
    You have the symptoms so it could be celiac disease. It's good you are getting tested. Try to have them run as many tests as possible. This is the full celiac lab panel: tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA AGA IgA and AGA IgG The first three tests are celiac tests that show damage is being attempted on your intestines. Total...
  9. nvsmom
    Not really. I had celiac disease my whole life, and as a child I had stomach aches after eating, constipation that could hurt a fair bit, and sore joints (knees). I was very tall for my age, usually at the top of the chart or off the chart, and slim. I was extremely "easy" I have been told, and rarely cried. No allergies or any (recognozed) health concerns...
  10. nvsmom
    Good points Nora.
  11. nvsmom
    Lisa listed everything you need to check out. Good luck with it. You might want to get hard copies of your labs too. You need a reference range to compare your labs to, and doctors aren't all great at interpretting labs so double checking can be helpful. Best wishes.
  12. nvsmom
    I think you are probably fine. The recommendation for 2 slices of bread per day is for an adult; I'm guessing your little guy isn't even 50 lbs (about a quarter of an adult male's weight) so what he's doing is probably enough. If you are concerned add more gluten... it's funny how as celiacs we have finally learned that there really is no healthy way to add...
  13. nvsmom
    Understandable. After putting in so much time on the gluten challenge, I would probably continue through with it too. Dairy is a good first food to eliminate for celiacs. Because the intestinal area attacked is where lactase is made, many celiacs are lactose intolerant for 6 months until they heal, sometimes much longer. A food journal is helpful...
  14. nvsmom
    C slowed for me at 6 months but then it started to alternate between C and some real urgency. At one year gluten-free I am more normal than not now. I think having my thyroid treated really made the difference for me but it's hard to be sure because I was diagnosed at the same time as my celiac. Good luck.
  15. nvsmom
    Oooh! I had no idea! Thank you! I've tried to find that book through our library system and it's not available. Maybe I'll look to buy it. Thanks!
  16. nvsmom
    I have a back injury too. they`re a real drag. i hope it heals well and soon. I don`t have a family doctor doing anything for my celiac disease either, except run a few more nutrient level tests than normal. I did go to an orthomolecular doctor who is considered àlternative` and he ran a few extra tests on me. For most celiacs, all you need to know ...
  17. nvsmom
    My joint pain only involved swelling and heat the first time it happened. After that it just hurt when I had some sort of autoimmune attack (possibly celiac caused or from hypothyroidism). Your free T3 looks pretty good. That is the active hormone and you appear to have a good amount. With that number, I would guess you are not hypo unless your body has...
  18. nvsmom
    The celiac tests are: tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA AGA IgA and AGA IgG The first three tests are positive when people start producing autoantibodies to the mucosal lining of the intestines in response to gluten ingestion. They mean that your body is attempting to damage your intestinal villi. The total serum IgA is a control...
  19. nvsmom
    I can't remember why you are doing a biopsy...You had a positive AGA IgA, which means a gliadin/gluten intolerance; and a positive tTG IgA, which means your body is making autoantibodies against the mucosal lining of your small intestine - so damage was being attempted; and you had a very positive result to the gluten-free diet. Did some other health issues...
  20. nvsmom

    ARCHIVED Reading

    nvsmom replied to BabsV's topic in Introduce Yourself / Share Stuff

    Loved Pillars of the Earth!
  21. nvsmom
    i skipped the biopsy. I had a positive tTG IgA and EMA IgA, as well as symptoms for decades, so that was enough for me to go gluten-free. I figured that if I had other problems that persisted after i had treated myself with a gluten-free diet, I could always request a biopsy at a later date. I'm in Canada so a diagnosis did not affect my health care coverage...
  22. nvsmom
    That looks like the anti-gliadin antibody tesst (AGA IgG and AGA IgG), although it couldpossibly be the deaminated gliadin peptide antibodies (DGP tests - don't think it is though). The AGA tests are for a gliadin (gluten) intolerance and are thought by some to work for both celiacs and those with NCGI, so a positive AGA does not always mean celiac disease...
  23. nvsmom
    For some, once our celiac disease is being treated via the gluten-free diet, our body gives itself permission to express other issues like hypothyroidism or other heath probelms that have been just below the surface. I would hazard a guess that 25% of us often end up feeling worse before we get better and it is not always due to celiac disease, some other...
  24. nvsmom
    I don't think my mom has had any side effects but it's hard to say. Her teeth are quite stained but that could be from tea.... I don't really know. Your tests look negative to me too. tTG Iga is low, and your IgA is a good number. Looks like an accurate test for a gluten-free celiac. LOL I would go through everything with a label that you are eating...
  25. nvsmom
    You've come down quite a bit (from over 100) - who knows how high it actually was, they just stopped measuring at 100. If you are down to 45, you must be doing something right! My tTG IgA was >200 but my reference range was 0-20. My last test was 38... I think was. I had been gluten-free for a year with just a few accidents, and no accidents had...
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