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nvsmom

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Everything posted by nvsmom

  1. I normally have high B12, before and after my celiac disease diagnosis. I don't know about my B6 levels as they have never tested it. My D was at the low end of normal, and supplimenting with 10,000IU sublingual tablets barely made a dent in it. If you take D, sublingual or liquid is the way to go. I do have something like jitters but mine is actual shaking...
  2. Welcome to the board. You could always try celiac disease testing. There is a (small) chance that you would still have high autoantibody levels after being gluten-free, especially if you have not been 100% gluten-free (meaning frequent accidents, if that applies to you). In some people the autoantibody levels can stay high for quites some time, especially...
  3. Many kids will gain weight prior to the growth spurt. Hopefully that is what is happening.
  4. L-glutamine is thought to help with intestinal (and muscular) healing. It might be a good supplement to add to your arsenal for a while....
  5. Cyclinglady makes a good point, it could be other foods doing it (dairy will do that for 50% of celiacs before healing occurs). If you still have problems (a few weeks) after cutting out nsaids, I would look at other foods. I hope your "off" days will soon be a thing of the past.
  6. Going dairy free is a good thought. Constipation was a symptom for me, and it did not change one bit in the first 9 months gluten-free. It finally changed when I hit the ideal thyroid doseage with a thyroid med that contained T3 and not just T4 - hypothyroidism also causes C. I'm not sure if my C improved because I needed the time on the gluten-free...
  7. There is one home test that I know of - the Biocard test. It tests adequate IgA and the tissue transglutaminase (tTG IgA), which most doctors use when looking for celiac disease. It cost me $50 in Canada a couple of years ago. It will have a sensitivity similar to the labs' test but possibly a bit lower to account for our error (not enough blood - warm...
  8. LOL With my 7 year old, I would have to tell him it will diminish his appetite and then maybe he would eat more.... My little turkey.
  9. Make sure you keep a list a symptoms and dates and bring it to see your doctor. He should know how this makes you feel. Hang in there.
  10. I'm glad it has been thoroughly looked into. My cycles became shorter and more regular after I had been gluten-free for about 6 months. My periods also became shorter and lighter, which was a nice change. It sounds like gluten was an issue since things have changed for you. Good catch. Best wishes.
  11. Not always. It's sort of like how the intestinal damage does not always correlate to the autoantibody levels. There is still the body's.... interpretation of how to react that day. My reaction sometimes correlated to the dose, but not always.
  12. A face mask out in public? Oooooookay...
  13. Different foods, and different times of the day for meals, affected my gluten reactions too. Morning pancakes would cause some pain for 15 to 30 minutes but by dinner I was hugely bloated with a migraine. Noodles for dinner affected me some but did not cause pain. Beer made me swell like a balloon. And then there were weeks or months when symptoms were...
  14. Have you been to the doctor about the lactating? Galactorrhoea is not normal and can be caused by some really serious health issues. Hypothyroidism is one that would also affect your energy, skin and temperature. About 20% of people with galactorrhoea have a pituitary adenoma which is affecting their hormones , and can cause problems like cushings or acromegaly...
  15. I think taking NSAIDS regularly can affect the intestines. I found this: 1. Stage 1 can also be the result of other disease processes such as inflammatory bowel disease (IBD), use of nonsteroidal anti-inflammatory drugs (NSAIDs), Sjögren syndrome, helicobacter pylori gastritis, and possibly other food intolerances. That was taken from this article,...
  16. It's the effect too much gluten can have on your health. You need enough gluten to damage your intestines enough that it can be seen on biopsy, but you don't want to consume so much that it causes, arthritis, neuropathies, extreme intestinal damage, etc. Normally the recommendations for a gluten challenge that I see are 1/2 a slice up to 1-2 slices of...
  17. Um, what decade is this doctor from?! What new blood test? He doesn't sound like a doctor who has had children dignosed with celiac disease for 10 years - to me, he sounds like he is just discovering how to test for the disease. LOL I think this doctor just likes to see himself blog... Okay, yes. I'm cranky today.
  18. Yes, the tTG IgA requires that for 8-12 weeks prior to testing you eat at least one slice of bread per day (or equivalent). Not doing that could cause a false negative. Also, the sensitivity of the tTG IgA is somewhere between 75-95%, and that means that it will miss 5-25% of all celiacs. You could be one of those. There are more tests out there for...
  19. Any form of gluten is fine. And I agree with the otheres, don't overdo the gluten. A month long gluten challenge for a biopsy is on the long end of things; you could probably get by with 1 slice of bread per day (or equivalent). If you are handling it okay, then go for the extra Oreo. Good luck with the challenge.
  20. All three of mine were 5 to 10 days early, although they seemed to come out at the right time for them - they were all healthy and big (8.5-9lbs).
  21. LOL I guess that one hasn't hit Canada yet.
  22. LOL I want to know how that saying came about! How and why did the first Wheatie pee happen... LOL
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