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Latest Celiac Disease News & Research:
Everything posted by nvsmom
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I normally have high B12, before and after my celiac disease diagnosis. I don't know about my B6 levels as they have never tested it. My D was at the low end of normal, and supplimenting with 10,000IU sublingual tablets barely made a dent in it. If you take D, sublingual or liquid is the way to go. I do have something like jitters but mine is actual shaking...
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Welcome to the board. You could always try celiac disease testing. There is a (small) chance that you would still have high autoantibody levels after being gluten-free, especially if you have not been 100% gluten-free (meaning frequent accidents, if that applies to you). In some people the autoantibody levels can stay high for quites some time, especially...
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ARCHIVED 14 Year Old Diagnosed By Growth Failure Help Please
nvsmom replied to KayJ's topic in Introduce Yourself / Share Stuff
Many kids will gain weight prior to the growth spurt. Hopefully that is what is happening. -
The Funny Pages - Tickle Me Elbow - The Sequel
nvsmom replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
LOL -
ARCHIVED First Aid For Cramping And Indigestion Pain After Taking Nsaid
nvsmom replied to cristiana's topic in Related Issues & Disorders
L-glutamine is thought to help with intestinal (and muscular) healing. It might be a good supplement to add to your arsenal for a while.... -
ARCHIVED Oral Nsaids - Are They Safe For Celiacs?
nvsmom replied to cristiana's topic in Coping with Celiac Disease
Cyclinglady makes a good point, it could be other foods doing it (dairy will do that for 50% of celiacs before healing occurs). If you still have problems (a few weeks) after cutting out nsaids, I would look at other foods. I hope your "off" days will soon be a thing of the past. -
ARCHIVED Am I Celiac? gluten-free Diet Does Not Work For Me?
nvsmom replied to Vox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Going dairy free is a good thought. Constipation was a symptom for me, and it did not change one bit in the first 9 months gluten-free. It finally changed when I hit the ideal thyroid doseage with a thyroid med that contained T3 and not just T4 - hypothyroidism also causes C. I'm not sure if my C improved because I needed the time on the gluten-free... -
ARCHIVED New To Forum And Many Questions
nvsmom replied to clinchfield33's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is one home test that I know of - the Biocard test. It tests adequate IgA and the tissue transglutaminase (tTG IgA), which most doctors use when looking for celiac disease. It cost me $50 in Canada a couple of years ago. It will have a sensitivity similar to the labs' test but possibly a bit lower to account for our error (not enough blood - warm... -
ARCHIVED Oh Good Lord- Tests, Labs And Bs
nvsmom replied to StephanieL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
LOL With my 7 year old, I would have to tell him it will diminish his appetite and then maybe he would eat more.... My little turkey. -
ARCHIVED Advice Requested - Now Gluten Free, But No Diagnosis
nvsmom replied to Jmg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Make sure you keep a list a symptoms and dates and bring it to see your doctor. He should know how this makes you feel. Hang in there. -
Menstrual Cycle Becoming Irregular After Being Gluten Free?
nvsmom replied to Sarah8793's topic in Coping with Celiac Disease
I'm glad it has been thoroughly looked into. My cycles became shorter and more regular after I had been gluten-free for about 6 months. My periods also became shorter and lighter, which was a nice change. It sounds like gluten was an issue since things have changed for you. Good catch. Best wishes. -
ARCHIVED Gluten Sensitivity To Different Gluten Containing Foods?
nvsmom replied to BarryC's topic in Coping with Celiac Disease
Not always. It's sort of like how the intestinal damage does not always correlate to the autoantibody levels. There is still the body's.... interpretation of how to react that day. My reaction sometimes correlated to the dose, but not always. -
ARCHIVED Celiac Sufferer Pens Gluten-Free Guide - Daily Inter Lake
nvsmom replied to Scott Adams's topic in Publications & Publicity
A face mask out in public? Oooooookay... -
ARCHIVED Gluten Sensitivity To Different Gluten Containing Foods?
nvsmom replied to BarryC's topic in Coping with Celiac Disease
Different foods, and different times of the day for meals, affected my gluten reactions too. Morning pancakes would cause some pain for 15 to 30 minutes but by dinner I was hugely bloated with a migraine. Noodles for dinner affected me some but did not cause pain. Beer made me swell like a balloon. And then there were weeks or months when symptoms were... -
Menstrual Cycle Becoming Irregular After Being Gluten Free?
nvsmom replied to Sarah8793's topic in Coping with Celiac Disease
Have you been to the doctor about the lactating? Galactorrhoea is not normal and can be caused by some really serious health issues. Hypothyroidism is one that would also affect your energy, skin and temperature. About 20% of people with galactorrhoea have a pituitary adenoma which is affecting their hormones , and can cause problems like cushings or acromegaly... -
ARCHIVED Oh Good Lord- Tests, Labs And Bs
nvsmom replied to StephanieL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Really well said. -
ARCHIVED Oral Nsaids - Are They Safe For Celiacs?
nvsmom replied to cristiana's topic in Coping with Celiac Disease
I think taking NSAIDS regularly can affect the intestines. I found this: 1. Stage 1 can also be the result of other disease processes such as inflammatory bowel disease (IBD), use of nonsteroidal anti-inflammatory drugs (NSAIDs), Sjögren syndrome, helicobacter pylori gastritis, and possibly other food intolerances. That was taken from this article,... -
ARCHIVED Gluten Challenge
nvsmom replied to rimsch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's the effect too much gluten can have on your health. You need enough gluten to damage your intestines enough that it can be seen on biopsy, but you don't want to consume so much that it causes, arthritis, neuropathies, extreme intestinal damage, etc. Normally the recommendations for a gluten challenge that I see are 1/2 a slice up to 1-2 slices of... -
ARCHIVED Health Break | New Blood Test Helps To Determine Celiac Disease - Centre Daily Times
nvsmom replied to Scott Adams's topic in Publications & Publicity
Um, what decade is this doctor from?! What new blood test? He doesn't sound like a doctor who has had children dignosed with celiac disease for 10 years - to me, he sounds like he is just discovering how to test for the disease. LOL I think this doctor just likes to see himself blog... Okay, yes. I'm cranky today. -
ARCHIVED Extreme Symptoms But Negative Ttg Iga, Not Sure What's Next
nvsmom replied to ncjess's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, the tTG IgA requires that for 8-12 weeks prior to testing you eat at least one slice of bread per day (or equivalent). Not doing that could cause a false negative. Also, the sensitivity of the tTG IgA is somewhere between 75-95%, and that means that it will miss 5-25% of all celiacs. You could be one of those. There are more tests out there for... -
ARCHIVED Gluten Challenge
nvsmom replied to rimsch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Any form of gluten is fine. And I agree with the otheres, don't overdo the gluten. A month long gluten challenge for a biopsy is on the long end of things; you could probably get by with 1 slice of bread per day (or equivalent). If you are handling it okay, then go for the extra Oreo. Good luck with the challenge. -
ARCHIVED Celiac And Overdue Babies?
nvsmom replied to justlovlie's topic in Related Issues & Disorders
All three of mine were 5 to 10 days early, although they seemed to come out at the right time for them - they were all healthy and big (8.5-9lbs). -
ARCHIVED And My Search Is Likely Over...
nvsmom replied to Georgia-guy's topic in Coping with Celiac Disease
LOL I guess that one hasn't hit Canada yet. -
ARCHIVED And My Search Is Likely Over...
nvsmom replied to Georgia-guy's topic in Coping with Celiac Disease
Jinx -
ARCHIVED And My Search Is Likely Over...
nvsmom replied to Georgia-guy's topic in Coping with Celiac Disease
LOL I want to know how that saying came about! How and why did the first Wheatie pee happen... LOL