Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    That is usually true but a homeschooled child does not have as many caretakers as other children, as a general rule. I know with my kids, they are usually with me, or I am there when they eat, but we are a minority.
  2. nvsmom
    Hashi's is just another autoimmune disease when your body picks some part to attck. Celiac attacks the intestines. I had another AI disease that attacked my blood. If you have an AI disease, you are more likely to get another. I think that is mainly the extent of the relationship, although some people do notice an improvemnet with their thyroid symptoms...
  3. nvsmom
    I have some doctor anxiety too. For major appointments I make two lists - one for me to read and one for them to read - so we can go through it together. Put the most important things at the top because it seems doctors will only process one or two items per visit. LOL I would calculate what you want your FT3, RT3, FT4 and TSH to be. Figure out what...
  4. nvsmom
    I'm glad that your appointment went well. It makes life so much easier when your doctor is working with you rather than against you.
  5. nvsmom
    If the lactose intolerance is caused by celiac disease (the villi of the intestines make lactase to digest lactose - damaged villi do not make much lactase) then you may regain dairy in 6 months to a couple of years. I have found that I can handle dairy MUCH better than I could two years ago. Eating dairy free is not too hard. I like coconut milk/cream...
  6. nvsmom
    Hi. I just wanted to give you this link to the World Gastroenterology Guidelines to celiac disease (which I post so much that people are probably sick of me LOL). If you look at page 12 of the report you will see a chart that talks about the specificity of the deaminated gliadin (peptide) IgG test, otherwise known as the DGP IgG; it is 99-100% specific to...
  7. nvsmom
    I'm not as far into treating my thyroid as the other ladies, but I found it took about a year of treating my thyroid before I finally got the right dosage and the right medication. I remember being so incredibly impatient while upping my dose so so soooo slowly. It drove me nuts. And then I had a doctor who told me "his scientific mind" would not allow me...
  8. nvsmom
    Celiacs are often low in some nutrients, the most common are K, Mg, Fe, zinc, Ca, B12, D, Cu, ferritin, A, and folate. I read that anemia has become one of the main symptoms of adult celiacs, and it can sometimes be traced back to these nutritional deficiencies. Some have the theory that there are deficiencies because of the intestinal damage which makes...
  9. nvsmom
    I went through some sort of withdrawal when I went gluten-free too. I felt very tired, cranky, and had a headache that I still remember two years later. LOL It lasted about 10 days. Hang in there!. I could not handle some raw fruits and veggies at first, actually there are still a few that hurt my stomach, so be aware that the raw stuff can hurt if...
  10. nvsmom
    Most celiacs will test as normal after eating gluten-free for weeks, months (usually), or years - that means we're treating ourselves correctly! Evil gluten...
  11. nvsmom
    Yep, longer is always better when it comes to a gluten challenge. Better yet is to get tested BEFORE going gluten-free - a life of eating gluten is always going to be the most accurate. I hope your friend found a new doctor! What a moron! He caused your friend a health set back. Once you have celiac disease, you have it for life. Those with diabetes...
  12. nvsmom
    If she can be 100% gluten-free without testing (she won't cheat or be in danger of contamination by people who don't take her diet seriously) then you can easily delay testing until she is older (and wants to eat gluten). My kids don't have a diagnosis but I have celiac disease, and 2 of my 3 boys have issues with gluten. They were given just one test...
  13. nvsmom
    I disagree with the two week challenge being all it takes. While it is true that the gluten challenge for the endoscopic biopsy usually only requires 2-4 weeks of gluten, if you have blood tests done most doctors will recommend 8-12 weeks of about 1-2 slices of bread per day. If you are eating more gluten than that you may be able to do a shorter challenge...
  14. nvsmom
    How frustrating for you! It's a good idea to get those medical records. Sometimes doctor don't run all of the correct tests, and then there are those who interpret test results incorrectly or sweep borderline abnormal tests under the rug.... It's not uncommon. For celiac disease, the doctor should have run most of these tests: tTG IgA and tTG IgG...
  15. nvsmom
    I agree. Those could definitely be symptoms of celiac disease. You might as well get yourself tested. Bring that symptom list to the doctor so she sees it all. As Ravenwoodglass said, get the panel done. Celia tests are not perfect and can miss up to approximately 25% of all celiacs. If you get multiple tests done, celiac disease is more likely to get...
  16. nvsmom
    I'm so glad that it went well.
  17. nvsmom
    I find glucosamine slightly helpful to my joints and took it in my first year gluten-free. I'm not sure if it helped since I've only gone gluten-free once.
  18. nvsmom
    If you are gluten-free, that will cause false negative blood tests (excluding the genetic tests). Some people's labs go back to normal within a few weeks - you might be one of the lucky ones. Maybe even post the biopsy results here. There are a few people who could probably help you with interpretting the results. Best wishes
  19. nvsmom
    That test result is really very close to being exactly in the middle of the normal range - the middle would have been about 87.5. To me, that 89 looks like a fine IgA level, so if she has more celiac tests done, her IgA based celias tests (tTG IgA, DGP IgA, etc) should not result in false negatives caused by a low IgA (since hers is very normal). The...
  20. nvsmom
    If you want more blood tests, there are a few you could request: DGP IgA, DGP IgG, EMA IgA, and possibly the older (and less reliable) AGA IgA and AGA IgG. You'll need to still be eating gluten for them to be the most accurate. I don't know is you need more tests though. The tTG IgG is about 95% specific to celiac disease, so a false positive would only...
  21. nvsmom
    I think that is just the Immunoglobulin A test (IgA) which is just a measure of the immune response in the mucosal linings of the body - it is not actually a celiac disease test. When testing for celiac disease, doctors often run the tptal serum IgA to ensure the IgA levels are adequate. About 5% of celiacs are low in IgA and that will cause false negatives...
  22. nvsmom
    I think those are enough reasons to get her tested. Bring that list to the doctor and ask for the tTG IgA, tTG IgG, DGP IgA, DGP IgG, EMA IgA and total serum IgA. Don't have her go gluten-free until after all testing is complete. Good luck with the doctor.
  23. nvsmom
    On page 6 it talks about the likelihood of getting celiac disease: Open Original Shared Link Half way down is something: Open Original Shared Link Overall, it's more imprtant for kids to get retested, but adults should keep an eye out for it.
  24. nvsmom
    I think it lasted a month or two. He felt flu-ish and then started having joint pain. It was an active safari he had planned but he couldn't make his fingers work. Ever since then, whenever he gets the flu, his joints hurt. Are you anemic? Feeling faint and tired (and no sex drive) can be linked back to that too.
  25. nvsmom
    So you did have a positive test, it just wasn't a high normal? With celiac tests, generally a positive is a positive - just like a pregnancy test. The tTG IgA can occassionally (<5%) get a weak false positive that is caused by thyroiditis, diabetes, chronic liver disease, colitis, crohn's, or a serious infection, but usually it is celiac disease. ...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.