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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    My doctors weren't worried either. It's just hard to trust them when they've missed a few major things in my past. Precedent was set! LOL
  2. nvsmom
    I agree. Bring your own food - that's what we usually do. I usually bring junk food, like a bag of nachos, for him to eat too. I find that my boys are happy as long as they have a fun food that they enjoys as well. Sharing their food (like nachos) helps them to feel like they fit in too. Hope he has fun.
  3. nvsmom
    I can't take credit for "I Be Stumped", I wish I could remember who said it. LOL Don't you wish that each disease had it's own separate symptom? Those overlapping symptoms (like in celiac disease, SIBO, IBS, etc) make it tough to figure out what is what. I didn't realize SIBO was always incurable. I thought in some it could be gone for good but...
  4. nvsmom
    I think SIBO and IBS are different conditions, although SIBO does produce IBS like symptoms. SIBO is a small intestinal bacterial overgrowth that is diagnosed with the hydrogen breath test. Diet changes and a round of antibiotics are often enough to cure this but sometimes a chronic condition exists if there is a problem in the intestine which causes...
  5. nvsmom
    I agree. That could celiac disease, and the lactose intolerance can be cased by damaged intestines too. It's smart to get tested. As beth01 said, don't stop eating gluten until tests are done. 1-2 slices of bread, or it's equivalent, per day is enough. Let us know how your tests go. Some around here can help you interpret your results - be sure to get...
  6. nvsmom
    I would let your doctor know how sick the donut made you and why you don't think you could handle two to three months of that. The biopsy only requires two to four weeks of gluten.... Doesn't sound like you would do well with that either! You don't NEED to test for celiac disease despite what the doctor says. You are already following the treatment...
  7. nvsmom
    Excellent!
  8. nvsmom
    Waiting really is awful! Going gluten-free was almost easier than not knowing. Hang in there. I have a lot of joint pain too. There are a fair number of us that experienced joint pain with this disease. It's good that you were tested. Be aware though, that the tTG IgA can miss 5-25% of all celiacs - it's not a perfect test. It is often a good idea...
  9. nvsmom
    Most people refuse to believe that comfort food can make some of us sick. If you look around the forum you'll find many people who have had friends, family and doctors tell them that it was all in their head... You're in good company here. Let us know how the test results go.
  10. nvsmom
    It could be a withdrawal. A minority of people seem to experience withdrawal when they go gluten-free - I did. It's unknown if it if withdrawal to the gluten, wheat or what. My carb lad didn't change much when I went gluten-free so something else was at play. I was very tired and cranky, and I had a headache that was truly impressive, for about a week...
  11. nvsmom
    Hope you feel better soon.
  12. nvsmom
    I took L-Glutamine the first year after being diagnosed. It was recommended to me by an orthomolecular doctor that I was seeing. I added it to my list of regular supplements because I ad taken it in the past to help with muscle recovery when I had changes to my exercise program or was lifting very heavy. It really did help speed up my muscle recovery and...
  13. nvsmom
    Ditto everything that LauraTx said. . As long as you take precautions, your food should be safe
  14. nvsmom
    If you are staying gluten-free (because of your other health issues and the celiac disease) then I wouldn't bother going back on gluten to test either. I think you might want to try testing anyway though. Sometimes the autoantibodies can stay elevated for months to years after going gluten-free. You might as well test and see if it tells you anything ...
  15. nvsmom
    You had the best tests done, and they are all positive - you don't see that often. Welcome to the club.
  16. nvsmom
    I think the disagreement is coming from the fact that you were not reacting to gluten in an egg (because as far as tests can find, gluten is not there) but to the egg itself. The chicken that made that egg was eating grains (with gluten in it) and that resulted in an egg that did not agree with you, but it is not because you were reacting to gluten. It is...
  17. nvsmom
    The tTG Iga is very similar to the EMA IgA in that it would indicate damage to the intestinal damage. The EMA IgA tends to show more advanced damage than the tTG IgA. I have rarely seen a positive EMA IgA without a positive tTG IgA. Gottaski was probably wondering because many doctors won't even run the EMA IgA until AFTER you have had a positive tTG IgA...
  18. nvsmom
    Welcome to the board. You've had a tough year. You are correct in that celiac disease can be triggered by a trauma, but it can also be made worse. It sounds like you may have had it for sometime but it caught up to you after that horrible ordeal someone put you through. Neuropathy, D, rashes (dermatitis herpetiformis), anxiety, bloating, fatigue...
  19. nvsmom
    The tTG IgA is the most common test. It looks negative but 1 in 20 celiacs are low in IgA and that causes false negative tests. You should see if you can get the total serum IgA done, or even look back through past labs to see if it was done. Even if you IgA levels are normal, the tTG iGA can miss up to 25% of celiacs. The AGA IgG is not a great test...
  20. nvsmom
    LOL You hit the nail on the head! To be honest, I think I may have missed the TPO Ab spike. I started having thyroid problems and slightly abnormal TSH tests (in hindsight) back in my early 20's, but Dr Google wasn't around yet and I still trusted doctors back then... Ignorance is bliss - yeah, not so much. I think I had a slow thyroid attack. I don...
  21. nvsmom

    ARCHIVED So Hungry

    nvsmom replied to Amberzak's topic in Coping with Celiac Disease

    When I eat high carbs, my appetite goes up - could that be it? When your intestines are damaged, you do not absorb food as well and malnourishment can happen. It's possible that once you heal your appetite will drop.
  22. nvsmom
    Good luck. If you need any help interpreting the tests, or just double checking what the doctor says, feel free to share it here. Some around here know more than some doctors. Make sure you get copies of thoses tests - don't accept the doctor's word on the results without proof - they can make mistakes too.
  23. nvsmom
    For the TSH, it is generally accepted that 0.3-3 is a normal range. An upper range of 2.5 or 2.0 is often a better for those who feel hypothyroid though. I felt just as hypo at the mid 2's as I did at 14, but that's just me. If you take T3 or natural desiccated thyroid (like Armour) which has T3 in it, your TSH values could end up suppressed like...
  24. nvsmom
    It could be. Get tested before you continue on the diet any longer. If you decide to test later on you will have to resume eating a slice or two of bread every day for 2-3 months - it would be less painful to test now. When you are done testing and go gluten-free, 70% of celiacs notice an improvement in SOME symptoms within the first two weeks. Some...
  25. nvsmom
    It could be celiac disease. Your symptoms would match up. Your family's diabetes, is it type 2 or type 1? Type 1 is the one that links to celiac disease; thype 2 (adult onset) is unrelated to celiac disease. You might as well get tested to be sure, and then if the tests come back negative you could try the gluten-free diet to see if it is non-celiac...
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