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FruitEnthusiast

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Everything posted by FruitEnthusiast

  1. FruitEnthusiast
    I don't know how much I can help, but I do know that Peripheral Neuropathy is a common symptom with gluten intolerance. In the beginning before I was gluten free, I had some tingling in my feet, and sometimes going up my legs a bit. It was mild for me, and it returns now and then as I'm continuing to heal. For you it sounds pretty severe and you might want...
  2. FruitEnthusiast
    Hi B, Sorry you're having a rough time. I have a better idea for you if you have more trouble with having a BM in the future. Obviously letting nature take it's course is best, but if you absolutely can't go on your own and need something to help you go, avoid anything in pill or suppository form unless it's Senna tablets which are natural and work...
  3. FruitEnthusiast
    I can call UCLA and ask about what they do there to see if they can help me, but after all the reading I've been doing the past few days and what you say about Dr. Harmon, I think I already know what I need to do to get well and patience is all I need at this point. Thanks again.
  4. FruitEnthusiast
    Thanks Lisa... no the symptoms listed for mcas do not sound like they apply to me. I am gluten intolerant but I don't think I'm Celiac. I never found out for sure because my GI started me on a gluten free diet before I could get tested, but I don't seem to have any additional problems that Celiacs tend to get from my readings. I haven't been tested for...
  5. FruitEnthusiast
    Thank you everyone so much for your responses. I'm glad to be part of this site again talking with others who understand. I'm not sure I know how to respond to individual comments, so I'll just comment on all the responses I recieved in this post: I suffer from slow transit constipation which only makes this healing process take longer. I had developed...
  6. FruitEnthusiast
    I need to find some kind of medical professional hopefully near the Long Beach CA area who can help me get well. Gluten intolerant and gluten free two years. My diet is just as it needs to be. I've identified and cut out all the problem foods. I also have severe constipation issues along with it. Keep thinking I'm better, then I'm not. Any ideas about how...
  7. FruitEnthusiast
    I had some Peripheral Neuropathy in my feet until I started on the gluten free diet. For me it was the first symptom to dissapear completely and I haven't had a problem with it since. I hope that is the case for you too. Keep going, the symptoms get better
  8. FruitEnthusiast
    I'm trying to check all my health and beauty products for possible gluten. I've seen a long list of ingredients somewhere that are not safe, but I can't seem to find it now. Does anyone know where I can find that list? Don't know if it was on this site or another one. It was a very long list of chemical names you find on shampoo etc. I don't see what I'm...
  9. FruitEnthusiast
    Uh-oh. This could be a problem for sure. My doc just suggested I cook my veggies. I felt good today after eating almonds, sunflower seeds, dried cranberries, and a smoothie (frozen mixed berries, water, apple juice, evap cane juice). Then I ate a bunch of fresh grapes and feel terrible. I eat them all the time usually without noticing a problem. The fruit...
  10. FruitEnthusiast
    Thanks all for your support! Pauliewog, thanks, I agree that meat would help a great deal. I haven't been able tolerate proteins lately except nuts, seeds and beans due to my intolerances and extreme constipation (I've tried everything). I tried meat 2 months ago, with bad results. I've started craving meat now though, which didn't happen when I could...
  11. FruitEnthusiast

    https://www.celiac.com/articles/22324/1/Gluten-Free-But-Still-Feeling-Ill/Page1.html

    She also has a youtube page with countless videos to help you. I'm on this journey with you and know how frustrating and often times lonely it can be. Please feel free to contact me if you ever need anything

  12. FruitEnthusiast

    I saw your post about not feeling well yet. I went through a year of being gluten free and yet the sickness persisted. I would urge you to check out " Health now medical" with Dr. Vikki Petersen. There are many reasons, such as fungal candida, malnutrition and cross reaction to foods that may be playing a role in your suffering.

  13. FruitEnthusiast
    I tested neg on the Celiac blood test both times, before and after stopping gluten. There are very few foods I can tolerate. The only carbs I eat are pinto beans. The only other foods I eat are nuts, seeds, fruit and vegetables - that's it! I reacted to everything else I tried. I only drink water and apple juice. I never eat out or eat processed foods. I...
  14. FruitEnthusiast
    Next week it will be 6 mos since I've been gluten free, and I'm still feeling very sick off and on with flu like symptoms. It's been 6 weeks since I last had the most recent food that gave me the same reaction as gluten. There doesn't seem to be any indication that I'm directly reacting to something. I start to feel better, then sick again. Today fruit is...
  15. FruitEnthusiast
    There's less water in it, so it might have a higher concentration of anything milk would have? It's higher in fat and fat is harder to digest? Butter is almost 100% fat, I believe, but the combo of fat and milk together with culturing might make it a more complicated food to break down.
  16. FruitEnthusiast
    Sorry you're having a hard time after so much recent success Bartful! Could it be that adding new foods back in, would work better a little at a time? Once or twice a week at first maybe. I'm not even close to where you are yet, so I'm taking mental notes on all this stuff at this point. Can't even look at rice yet. I have this feeling that after it takes...
  17. FruitEnthusiast
    Hmmm... more helpful info, thanks! It's true I haven't had the energy left over lately to exercise and I SO want to get back on my exercise bike. I've been walking 10-20 min some days. I actually crave more vigorous exercise. It does wear me out when I do it now, but 5 min a day on the bike might be do-able, but when I ache all over most days lately,...
  18. FruitEnthusiast
    I agree, if you get allergic reactions that affect your breathing at all, an epi pen (epinephrine) could save your life. They're easy to get from a doctor. I have one around for my bee allergy. Haven't ever needed it so far. At the very least carry Benedryl with you.
  19. FruitEnthusiast
    Me too, I drink 85 ounces of water every day. Occasional colonics have made a huge difference to get things moving. Before I found out I was gluten intolerant, I used MIRALAX daily for several years and it worked like a charm. Since my diagnosis, I stopped using it in case it was irritating my already inflamed intestinal lining. My colonic tech suggested...
  20. FruitEnthusiast
    I think doctors often don't have the slightest idea what to do next, so they start throwing ideas out there, you probably have this or that. For as smart as they are "supposed" to be, they can be such boneheads. They can't fix everything, so they waste our time and money giving us busy work, when the truth is that it just takes time to recover. Gluten issues...
  21. FruitEnthusiast
    Pale stool is lighter in color than what's usually considered normal. It's one of the sure signs I've been glutened. It's about the color of cardboard, at least in my case, sounds the same for you. I don't know why it turns that color, but the only time it's ever been like that is when my body is trying to process gluten in my system, or another food that...
  22. FruitEnthusiast
    I also know how hard it is to be so limited by what your body will tolerate. I'm in the same boat right now. I stopped gluten months ago, but have developed more intolerances since. I can only eat fruit, veg, nuts, and beans, that's it! Everything else makes me sick. I realize now I will have to wait at least 6 months before I try to add any other foods back...
  23. FruitEnthusiast
    I had GERD for years before I lost weight, then it went away. I think the most important thing you can do is to sleep on a wedge pillow. You may be doing that already, but if not, I can't stress it enough. Medications are like a band-aid to treat the damage caused by the acid. To prevent the acid from entering your esophagus further, you need to be sleeping...
  24. FruitEnthusiast
    Also get tested for Hashimoto's Disease (autoimmune hypothyroid) when you go for all the other blood work. It often occurs along with Celiac. I know fatigue is a common symptom. I'm having the test myself this week. I think there is medication for it that helps. Someone who has been diagnosed and has tried the medication could tell you more. Be sure your...
  25. FruitEnthusiast
    A gluten intolerance, celiac or not, DOES cause intestinal damage until it has time to heal. I have had damage and the same symptoms as celiacs, even though my blood test was negative. The blood test, I hear, is not sensitive enough to diagnose everyone. I don't know what the bio card is. Either way, the cure is the same - a gluten free diet.
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