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surviormom

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Everything posted by surviormom

  1. surviormom
    I am putting this in as a reference if anyone has DH questions. I finished my gluten challenge 13 days ago, and the spots started during the challenge, but I did not explode with them until last night. Today I am covered. So, 2 weeks later, it is still in my system and I am in a full attack and polka dotted.
  2. surviormom
    And if it helps at all, I have found that one slip up going out to dinner and I am doomed for a month.
  3. surviormom
    That is a good one for me to remember. I always want immediate results and that just does not happen.
  4. surviormom
    I walked into a Panera Bread after being Gluten Free for about 6 months, I was only planning to have a coke and meet a friend there, I had to leave and we had to make a quick change in plans. We ended up at a PI Wi near by. My eyes watered, I felt almost like I could not breath. It was awful. I could not understand feeling that way just breathing it,...
  5. surviormom
    You can have your vitamin levels checked.
  6. surviormom
    A lot of things that are happening to me boil down to inflammation, after you get past the damage gluten did, that is where my sugar bashing came from, my husband, wants me low fodmap, but I think it is sugar, and yes, I am addicted, sugar and chocolate.
  7. surviormom
    I am trying to drop sugar. All fructose, adding low Fodmaps, but I think the real culprit to my not getting better is sugar. Food testing has onions and garlic as safe, but sugars off the chart. Good luck, I feel your pain, I have been going through it too. Did everything right, yet still not better, and in some cases worse (my esophagus). We will figure...
  8. surviormom
    You are not alone. You can PM me anytime as well. It is exhausting and you want to scream, cry, give up, after talking to a GI you can even think am I nuts? But, no, you know your body, and the test proves the food issues even if the GI tests are not showing all of them. Being able to wear something one day and then not the next just because you ate something...
  9. surviormom
    Just want the Barrett gone.
  10. surviormom
    So she is right I can get this done sooner rather than later. Thank you very much.
  11. surviormom
    Sorry for the snappy note. Thank you. I agree with him on this I just really hate the ppi and some of his other ideas. My throat was sore for 5 days and I still feel not normal.
  12. surviormom
    This looks like a good place for this. Lots of Endoscopies. Who knows the answer to this. Me and a friend are debating whether my quake, um dr. is right. He just diagnosed me with Barretts and wants to burn it out in 6 months to a year, depending on the FISH results that are not back yet. She thinks he is wrong to wait that long, he is telling me I...
  13. surviormom
    I know what I need to do, but why do the doctors want to shove the PPIs down our throats. A little humor there. Does anyone know? If they are not good for us, and there is a better way, why?
  14. surviormom
    Stupid question here, but why does my GI keep trying to force the PPI on me? My husband is doing it now too. The GI has convinced him it is the only way to help my Esophagus. If there is a better way, shouldn't a doctor be on board? This man claims to be an expert in Barretts, I think he is just an expert in collecting $$$. Yes, I am looking for another...
  15. surviormom
    Its the doctors that frustrate me now, not the food. I love real food. So do my kids and husband. Shop the perimeter and cook real food. It is delicious. i still have my pains, now and then, so I still have a problem and the doctors frustrate me, that will not go away soon unless you have a great doctor. But the food we can fix that.
  16. surviormom
    Agree. Thank you everyone.
  17. surviormom
    I feel for you. I just went to the doctor yesterday and came home and cried. It is so frustrating, I had my husband go with me, I thought he could be strong and put his foot down and not let me be bulldozed. NO, he just wants me well, so he listened to the doctor, more testing for me, and lectures on taking the prilosec. I cannot find a good doctor. Still...
  18. surviormom
    ACV too. Much better, I still have some of the problems but not as bad as it was. Still going to the doctor in 2 weeks. It takes a long time to get into see the GI here.
  19. surviormom
    Who is going? I am considering it. I missed St. Petersburg last weekend and this will be the last one near me until next year. I have never been to one, but it looks like it would be worth the time and money.
  20. surviormom
    No antacids. I have not been taking the prescribed antacids, instead I took the natural route and have kept it under control, until around Thanksgiving. Yes, its possible I was glutened at a relatives house, or yes, its possible I have overrun in bacteria again due to sugar at Christmas, but its March now, and I have been diligent since January 1. I only...
  21. surviormom
    I have a GI appt in a couple of weeks, to deal with much of the same thing. I am still suffering Esophagitis issues, but no reflux. Serious heartattack type pain in the chest, nausea, wheezing, coughing, and constant clearing of the throat etc. No acid issues though, no reflux, I do not understand it. So, off I go to see what he says. Could grade 2 have...
  22. surviormom
    I cannot imagine anyone that doesn't need to eat this way, doing so. So, however we come to be diagnosed, by ourselves or a doctor, yeah! Call it what it is. I still am not sure if it is Celiac or Intolerance, but I was told if I went back to eating Gluten I would test positive so, that tells me to stay away from it! And as far as the rest of the world...
  23. surviormom
    Considering these three this year, but one is a good distance away. Gluten Free Living Conference Gluten Free for Life Expo GFAF Wellness Event
  24. surviormom
    So the expos and conferences are worth going to? There will be 3 in my state this year, and I was thinking of attending 1 or 2 of them.
  25. surviormom
    You are sweet! Thank you! They are delicious! Yeah, I was cold today too, no sleet though, so I better be quiet.
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