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SMDBill

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by SMDBill

  1. SMDBill
    Donna, I'm on round 2 of going gluten-free. Round one told me I am gluten sensitive per the diagnosis, but when I went back on gluten (gluten challenge recommended by my GI) it took a long time to see symptoms again. But here I am again with identical symptoms, which for me is confirmation that the diagnosis was right and I'm not as urgently sensitive to...
  2. SMDBill
    That was a great article. Thanks for sharing!
  3. SMDBill
    You can definitely get the caffeine through tea and soda, but they'll likely be in smaller amounts than a cup of coffee. I'm a big coffee and tea drinker myself and I can go through an entire day with no effects from missing coffee as long as I have tea or soda. It's probably not the full amount that matters, but just getting some into you that keeps from...
  4. SMDBill
    My GI asked me to introduce gluten to be sure of his diagnosis of gluten sensitivity. It took me quite some time to feel symptoms and I failed to grasp as each came on that they were related, just like before my diagnosis. You may feel badly or it may take time, but if you are sensitive to it or celiac, you'll regret introducing it again (unless you're trying...
  5. SMDBill
    I am currently going through rough stomach pain that is improving since being back to gluten-free. It was excruciating and would wake me as my intestines cramped. It got so bad at one point I thought I had a bladder infection because it was even sensitive to the touch right where your bladder is, but it was intestinal instead. To me it sounds like you may...
  6. SMDBill
    After 25 years of marriage, all I can say is that love finds a way. If he truly cares for you, YOUR interests, feelings and health will be top priority. After all, you're only fun and happy when you are safe and healthy. His job is to make sure you are all those things. If he's not living up to that, I'd have to question the strength of the relationship...
  7. SMDBill
    My GI diagnosed gluten sensitivity and actually recommended I go back on gluten to see if it caused harm. It's been 2.5 years, but now I'm having the same symptoms as last time when I finally went gluten-free to rid myself of them. I didn't suffer immediate issues at all, but today I have many that are now clearing up slowly after just a few days so far of...
  8. SMDBill
    Is it possible when you went gluten free, your salt intake dropped a lot due to the change in diet? If so, you may not be retaining the amount of fluid your body is accustomed to retaining. Just a guess. I supplemented with vitamins and minerals when I went gluten-free and found improvement in the skin on my feet, hands and elbows. Seems odd you'd be so...
  9. SMDBill
    I may be one of those people the OP gets frustrated with, but my trip through wondering if I had celiac or a sensitivity to gluten taught me a lot. 3 years ago (I think), I went through some terrible intestinal trouble and a host of other symptoms. I avoided the doctor and tried to figure it out myself. I found out about celiac and gluten sensitivity and...
  10. SMDBill
    I think a major part of your problem may be that you've been gluten-free for so long. Damage may not be present, so if you are celiac or just intolerant, neither will show physical evidence. I was gluten-free for only 2 months and I showed no signs of damage so my gastro could not conclude definitively if I'm celiac or NCGI. In the end it really doesn't matter...
  11. SMDBill
    What a wonderful story! It's always great when our little ones get back to their old selves. And you already have your answer for his problem whether or not the doctor agrees What a blessing.
  12. SMDBill
    I wonder if you could have an intestinal issue that could be caused by sugar, other grains, or a combination of celiac and something else? However, when you ate foods with gluten and had no reaction, and based on the fact that you were diagnosed based on deficiencies rather than blood or biopsy confirmation, maybe you don't have celiac. That's a pretty good...
  13. SMDBill
    It sure appears possible. My question is whether you have been completely gluten-free or just light? If it's DH it would suggest you haven't been totally gluten-free and you mentioned Thanksgiving and carryout. Were those foods prepared gluten-free as well?
  14. SMDBill
    Did your GI mention anything about gastritis or other digestive issues that are also present? I am not a medical professional so this is all guessing, but I'm wondering if an over the counter drug like Prilosec OTC or similar would help ease discomfort when eating? Digestive enzymes as well if you knew which type you needed and in what quantity. For example...
  15. SMDBill
    Low iron is very common in celiacs. All my blood work and my biopsies came back negative, but I had been gluten-free and that could be why. So the only indication I had that anything was out of the ordinary, other than visual damage to my stomach (erosive gastritis), was low iron. It's not low enough to require treatment, but it does require daily supplementation...
  16. SMDBill
    That is SO true! I had a German Shepherd that would go into horrible, 15 minute or longer seizures at least monthly. The vet didn't believe us about the length and told us that more than about 5 minutes would kill her. We timed them and they were much longer than 5 minutes. Anyway, they were caused by wheat. I researched heavily because the vet just wanted...
  17. SMDBill
    I don't know how long it will take, but some things that could help recover are very strong (10's of billions of cells) probiotics. Prebiotics help the probiotics act better. Giving the gut some really good bacteria may ease the recovery time and help you feel better sooner. If you look online there are some brands that have up to 75 billion cells for daily...
  18. SMDBill
    I agree with the "malpractice wrong". I wonder if they put any of that advice in writing so you'd have grounds to act on other than he said/she said. That's ridiculous advice for a celiac patient. There are no caveats on when to and when not to eat gluten for celiacs. You can't...period.
  19. SMDBill
    I have been gluten-free for around 3 months now and my tests came back negative (biopsies and many different blood tests). However, because of my symptom relief my gastro has asked that I return annually so he can verify my vitamin and other levels are still at appropriate levels. Concerns for celiacs are of course nutrient levels and blood count, but also...
  20. SMDBill
    Worst I think for anyone with celiac is that even if you don't feel badly due to what you ate, any deficiency you may have (iron, D3, etc.) is just worsened because until the healing happens, the body still will not absorb properly. So then often people seem to go through fatigue again, which makes anything less fun. It just seems like a vicious circle to...
  21. SMDBill
    The only difference between knowing the answer and not knowing is knowledge. However, if your body reacts positively without gluten and negatively with it...the decision is simple. Plus, if you do have celiac and don't get definitive proof that you don't, ignoring it and continuing to consume products with gluten can have long term effects you may want to...
  22. SMDBill
    Lisa, I had been gluten-free for 8-10 weeks before the blood work and endo. What he saw during the scope was duodenitis and erosive gastritis. The biopsies came back negative for H pylori infection and negative for celiac. I do not have the results and I only got that info from the biopsies from his nurse. He was supposed to call me back yesterday to discuss...
  23. SMDBill
    I just had an endoscopy 2 weeks ago. My prep was fasting from midnight the night before until my procedure. I arrived there, they took blood and started an IV, then came to get me about 10 minutes later, wheeled my bed to the procedure room, told me what would be going on, then started the meds to put me under. I woke up later in recovery and that was it...
  24. SMDBill
    Thank you all. Several things are troubling after getting such "normal" results. Gluten free cleared 21 symptoms that I was able to document. When I say I had DH, that's an assumption based on what my skin in the arches of my feet looked like pre-gluten-free. They appeared as dard red/brown blisters very deep in the skin. They itched badly, mostly when I...
  25. SMDBill
    Well, today I called the Dr. and got to speak with his nurse. I was concerned about H pylori he thought he found in my stomach. The biopsies all came back negative for the infection, negative for celiac. He took many biopsies in my intestine and quite a few in my stomach as well. Nothing was positive so I ended up with a diagnosis of duodenitis and erosive...
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