Lisa

Hello d,

You might be interested in the answers to these questions:

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Here is some information on testing for Celiac:

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Shopping can begin at your local grocery store. Here is a list of companies who will clearly disclose all forms of gluten (wheat, rye, barley and malt) on their ingredients listing

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Look for these companies and if you don't see gluten, it's just not there!

Here are some answers to common questions:

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And you can shop around here at the Gluten Free Mall.

I've read a lot that says Chick-fil-a has gluten-free waffle fries and hashbrowns. We'd love to get some feedback from those of you who have tried them and how it went. My son is newly diagnosed and afraid to chance it. But it sure would be nice to grab something out from time to time if we needed to.

Here ya go:

Open Original Shared Link

As with any restaurant, but especially at a fast food restaurant, there is risk for cross contaimation.

OBX mom, I see your screen name but I know that I can't post JUST to you so I made this post, LOL!!

We live in VA and my brother is in OBX (Manteo) we go down for a month or so every summer. I was wondering what stores down there you get your gluten-free food from? Our Harris Teeter up here doesn't carry much - does the one down there? How is Food Lion? Have you ever been to Health-A-Rama just before MP 5? My brother was going to check it out for me! The less I have to take next month the better but I need to make sure I have somewhere down there to replenish our stash!

Thanks

Linda

Hi Linda,

I'm not OBX Mom, but I can answer your questions. The Food Lion at Southern Shores has a fairly large organic and specialty foods section. I assume that the other Food Lions do as well. Harris Teeter is now open in Southern Shores and on the South end, but they do not have a gluten free section and you have to travel the entire store to maybe find what you want. Health-A-Rama has some really friendly people. Their frozen gluten free options are limited and they have some other options like pastas, cake mixes and cereals.

I usually hang out on the the north end of the OBX. Black Pelican and High Cotton have many options of naturally gluten free entrees. Lone Cedar Restaurant, on the causeway, has the best broiled scallops that I have every had and they have french fries cooked in a dedicated fryer. Most restaurants can offer many steamed seafood and anything with Old Bay will work too.

Hope you enjoy your stay.

Welcome! There is great information here.

Kitchen Essentials:

1. Toaster

2. New Wooden Spoons

3. New Chopping Board

4. A New Skillet

5. A Metal Colander

(All to be used exclusively for non-gluten cooking)

Non Kitchen Essentials:

6. Triumph Grocery Guide - www.triumphdining.com

7. Dr. Peter Greene's "The Hidden Epidemic"

8. Celiac.com

9. Open Original Shared Link

10. Relax

11. Type larger, so oldies like me can read your posts

6 measely croutons in a salad. Headache, sore throat. This sucks.

JBaby

Six measely croutons is not the issues, it's the immune response to the gluten that makes you ill. Six or Six thousand, no difference, based on the assumption that you have Celiac Disease.

Hope you feel better soon.

Hello All,

Like many of you, I am struggling to determine if I have celiac disease. I recently saw my general practitioner for a "well woman" exam -- I had complaints of fatigue, depression -- just not feeling like myself. She ran blood tests including ferritin levels and determined that I was anemic. I then underwent an endoscopy and colonoscopy to make sure I wasn't bleeding internally (I'm 42 years old). The colonoscopy was clear but the endoscopy revealed "mild villous atrophy with intraepithelial lymphocytes consistent with celiac disease". The GI then ran antibody blood tests, which he said were negative for celiac disease. I have not heard back on the results of the gene testing. He now wants me to wait about 3 months and do another endoscopy to see if the results are the same. He does not seem to want to diagnose celiac disease and downplays the illness thinking it is the "popular" disease of the day.

My question to all of you is had anyone had similar test results and if so, did your doctor diagnose you with celiac disease? Can a person have the results that I had from the small bowel biopsy and not have celiac disease?

Any help provided will be greatly appreciated.

Thanks, Sabrina

Please get a new doctor, one that is knowledgeable and one that doesn't downplay the facts.

Your villous atrophy IS consistent with Celiac Disease and IS considered a diagnosis.

Testing for Celiac can render false negatives but never false positives. Coupled with a positive dietary response, it's a pretty sure bet that you do have Celiac.

Welcome to the Club!

Would you kindly post the lab results of your blood work for Celiac. I'm not sure what your doctor means by "inconclusive".

And welcome!

What about the "questionable" ingredients that might be gluten free?

Do you find that all of them are gluten free? some of them?

(the 2nd list on this page: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html )

None of the food or items that I use for cleaning or anything I put on me has any of the gluten containing ingredients in it, but many of them have the questionable ingredients.

Namely: Artificial Color, Caramel Color, Coloring, Flavoring, Food Starch, Maltodextrin, Modified Food Starch, Natural Flavoring, Natural Flavors, and a few others.

Will these always be safe in the US? How great is the chance that they would contain gluten? Thanks.

Let me see if I can answer:

Artificial Color - would not be wheat, barley, malt or rye

Caramel Color - used to be a concern due to the source, but is no longer and is considered safe

Coloring - ? but never a concern to me

Natural Flavoring - it would be wise to call the company, but wheat must be listed

Flavoring - same as above

Food Starch - not a problem with gluten due to processing

Maltodextrin - is safe in the US

Mod Food Starch - safe unless listed as wheat

***Wheat, by law must be listed. Barley, malt and rye are not required.

Here is a list of companies who will clearly list all forms of gluten:

Open Original Shared Link

Steak (chick or pork) on the grill, that has been marinated in La Choy Teriyaki overnight., with baked potato and cesar salad.

Summer time dinner is spiced shrimp (Old Bay) and fresh corn on the cob with sliced home grown tomatoes.

Sometimes, the more we read on the internet, the more confused and paniced we become.

Follow through with your pill cam and if it that does not remedy any solutions, continue on.

It is very important that you CONTINUE TO EAT GLUTEN until all your testing is finished. Healing can begin quickly and throw off your test results, if indeed you have Celiac.

www.tacobell.com (800)TACOBELL

Taco Bell is last on my list of possible eateries. But then that wasn't your question.

Testing is not as reliable as we would like at this time, but I think the Pill Cam is about as good as it gets. An endoscopy can miss effected areas, resulting in a non-conclusive diagnosis.

As with most tests for Celiac, a negative result is not conclusive that Celiac is not an issue.

This article is over two years old, but yet informative:

https://www.celiac.com/articles/21474/1/Vid...ease/Page1.html

Yes, symptoms can vary from person to person.

I have had (dx) with IBS or Colitis for most of my adult like. Although uncomfortable at times, it was manageable.

One Tuesday, I had sudden bathroom issues and two months later, I could briefly leave the house, after a diagnosis of something called Celiac Disease

Deb, I don't have an answer for you, but this might render some clues...

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wow.. this is confusing to say the least. I keep trying to find a site that breaks this down in english

Your gene panel from Enterolabs, tells you that you MAY be predisposed to Celiac(among 35% of the general population), although there is no clear "Celiac" gene, only a predisposition to Celiac as well as other autoimmune conditions. The article I posted was pretty clear.

In english, if gluten bothers you, don't eat it. If it bothers you, you either have a gluten allergy, a gluten sensitivity/intolerance or perhaps Celiac. That's pretty much the bottom line, unless you want to try some conventional testing.

If going gluten free is an asset to your heath, continue on.

Here is some great information on genetic testing:

Open Original Shared Link

Thirty-five percent of the general population carry the Dq2 and Dq8 gene and only 1-4% of those will develop Celiac.

To all our guest and secret lurkers , we'd like to welcome you to join us and participate in the various discussions here. Share your experience or simply ask some questions.

It's a great place to hang out! Jump right in and join us

Gluten if presented will be identified as wheat, rye, oats or barley.

This makes them one of the good guys.

Allergen Statement from Smithfields Foods:

ALLERGY INQUIRIES:

Most of Smf products are gluten-free. Hams, Sausages, Bacon, Picnics, Loins-with the exception of honey, bbq marinated items and the HEB Private Label Honey Glazed Hams.

Products which do contain gluten.

Honey Barbecue Flavored Products

Precooked Beef Patties, Cheeseburger Patties, and Bacon Cheeseburger Patties

Precooked Entrees (Beef, Pork and Chicken)

Stuffed Pork Chops

Lykes Brand Red Hot (Sausage Product)

****** All of our spiral sliced hams and glazed hams (both honey glaze and

Brown sugar glaze) are gluten-free. *EXCEPT for HEB Private Label Glaze.

****** There is no gluten in the casing used on our hams or on any of

Our other products.

****** Natural Flavorings consist of Rosemary - no gluten.

****** Our pork broth consists of dehydrated, powdered pork stock with

Water, salt, sodium phosphate, potassium lactate, and natural

Flavorings (Rosemary).

Gluten if presented will be identified as wheat, rye, oats or barley.

MSG must be listed as Monosodium Glutamate on the ingredient statement.

Sausages do have whey protein and casinate derived from milk.

Remember that products labeled gluten free in the US, is totally voluntary. There are no regulations or criterial for what is considered gluten free as of yet.

Sometime you may come across an ingredient that is derived from a wheat source, but the processing removes the offending gluten.

Yup, memory not so good. It's the eel, not the octopus. Who would eat either, yuck.

depending on how old your son is, his immune system may or may not be mature enough to mount an antibody response. If he is less than 6 months old, he is still using antibodies that he got from you (pretty cool, huh) while his immune system is warming up. If you are really concerned that gluten may be causing your child some problems, you can use other grains instead--just remember that you will have to load him with gluten before a blood test in order to get a response. hope this helps.

Yup, you're gonna be a good doctor some day! Soon I hope.

I've looked into it and it's an Australian company who is making the vaccine. The first step of the trial started in April with 40 volunteers. This trial will last a total of 11 months and attempt to determine if the vaccine does any harm.

The second trial for this new vaccine will attempt to determine whether or not the vaccine is effective by feeding gluten to the volunteers and then they will undergo a thorough examination.

Their theory is since Celiac disease is the result of an immune response to gluten. The therapy involves repeatedly injecting solutions of gluten at increasing concentrations. The aim is to desensitize the subjects slowly, in a similar way to hay fever and dust allergy desensitization treatments.

I guess only time will tell.

Gee Wiz, where do I sign up.

While I am glad that research continues, I don't think "desensitizing" someone to gluten is the "cure". I wouldn't hold your breath on this one.

Celiac Disease is not an allergy and you can't treat it as such. Injecting gluten into the blood stream will not have the effect that gluten has on the digestive system.

Before we (I) speculate too much, it would be good to have a link to this study, as suggested.