Lisa

Please follow your instincts. Keep your child on the gluten free diet and watch him thrive. At some point, when he is older, you can do the gene testing of you wish. But, the Serology Panel for Celiac is highly unreliable for children under the age of five.

The diet does not have to be expensive and we have plenty of people to show you the ropes. This is a great place. Take a walk around and welcome.

And, by all means, find a new doctor

That's a good question. I suppose it depends on your health history. Many people have been diagnosed with Celiac as a secondary illness to arthritis, lupus, diabetes, thyroid issues... In addition, there are several people on this Board who are asymptomatic.

I believe 20% first degree relatives will develop Celiac.

But, if you are otherwise healthy, perhaps there is no need to be on the gluten free diet, although it is something to be aware of for the future.

Do you mind if I ask where you got this information? I contacted Hershey recently and asked them about their labeling policy in regards to gluten. This was their (obviously canned) response:

I would have to dig into the archives of this forum to find the documentation, but I contacted a Hershey representative. I personally do not think the M&M's contain gluten (although I am not familiar with the Mocha M&M's), but I am dismayed with the response I received from Hershey and prefer not to purchase their products.

Sorry that you're not feeling well.

Wheat, by law, must be listed is used as an ingredient. I think it's doubtful that it would exist on the nuts. But you may inquire with the company to see if they also process wheat products in their manufacturing facility.

I read recently that a Saliva Test is NOT a good indicator of a true gliadin (gluten) count? Both myself and my partner were diagnosed this way; My son may get tested and I want to make sure he has the best test. This is the first I heard that a saliva test is not good ; Is this true OR all the tests not definitive; ie giving false negatives possibly. clear up this conflusion please!

Here is some information:

https://www.celiac.com/articles/21677/1/Sim...ease/Page1.html

Depending on your son's age, I would recommend the Serologic Celiac Panel:

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These people can offer suggestions for a doctors, or they can send you in the proper direction.

But, please know that if you want to be tested for celiac, you must remain on a full gluten diet.

This is a great place to learn, welcome.

Could you try to eat several small meals during the day, so you don't go into a main meal with hunger pangs.

I also heard today that Al Roker mentioned that one of his daughters is trying the gluten free diet and is doing much better.

Don't know what that means, but it was good to hear.

According to my understanding, testing for the HLA-DQ can tell you that you MIGHT at sometime develop a variety of autoimmune diseases, such as Celiac. Although it can be a piece of the puzzle.

If you do not carry the HLA-DQ genes, you cannot develop Celiac.

Do your children have symptoms? You may have mentioned it, but I can't recall.

Genetic testing for celiac disease:

Celiac disease is a multigenic disorder associated with HLA-DQ2 (DQA1*05/DQB1*02) or DQ8 (DQA1*0301/DQB1*0302). HLA DQ2 is expressed in the majority (>90%) of those with celiac disease and DQ8 in about 8%. The expression of these HLA-DQ2 or DQ8 molecules is necessary but not sufficient to develop celiac disease and accounts for only about 50% of the genetic component of the disease. Studies in sibling (sib recurrence risk for celiac disease of 10%) [42] and of identical twins (concordance of 70%) [43] suggest that the contribution of HLA genes in celiac disease is less than 50%. The determination of the presence of HLA DQ2 or DQ8 is now available commercially. The role in the diagnosis of celiac disease is however limited because of the low specificity of the test for celiac disease. These HLA types are present in about 30% of the normal population. Their absence is useful in excluding celiac disease. The role in assessment of the presence of HLA DQ2 or is: 1. In the presence of an equivocal biopsy, 2. When someone is already on the diet, 3. To determine which family members should be screened for celiac disease.

At CVS I got some free "M&M Premiums" with the Mocha flavor. Tried looking around online to see if they are gluten free to no avail. And the number to call is done at 5, but I kind of want to eat them now! Has any one tried this or know if they are okay? It says it may contain almonds and peanuts, but nothing about gluten free.

Anyone? *eyes them* I want to eat them lol.

Hershey's will not disclose their source for "Natural Flavor", which means that it might contain barley or malt. Your M&M's might be gluten free, but there is no way of knowing unless you either get sick or not. You might find it's a risk your willing to take

I thought I would pass this information along:

Celiac Colleagues:

I am writing to call your attention to the current publicity surrounding the new book, The gluten-free Diet, A Gluten-Free Survival Guide by Elisabeth Hassselbeck, co-host of The View. While it is important to call attention to celiac disease, the information must be accurate

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Can a person with Celiac Disease on gluten-free diet give blood?

Yes, a person with celiac disease can donate blood.

Welcome!

Are you living in the US?

I think you will find it difficult to find a product that claims to be 100% gluten free. Gluten free labeling in the US is voluntary, until a definition is established. Many companies will list "no gluten added", but without testing, they cannot guarantee 100% gluten free.

Here is a listing of companies who will clearly list all forms of gluten, to include wheat, barely, malt and rye:

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. The objective of the present study was to determine the presence of celiac disease in a population of infertile women with endometriosis.

Laura, help me out here. What do they attribute the infertility to, the celiac disease or the endometriosis?

Yummy.. that's a keeper for my summer menu. Thank you.

So I went shopping at trader Joes yesterday.......I am new to this gluten free diet......They have a list of gluten free stuff which makes it easier for you to shop......So I got a few breads, pastas, cereals and such.....The mac and cheese is so yummy!!! I was looking for a chocolate cookie but they didnt seem to have any so I asked someone who worked there.....He said they had a flourless chocolate cake which is phenominal!! I need my chocolate fix lol

So I was reading the ingredients and after all the ingredients it says it is made on equiptment shared with wheat and nuts!!! I am a little hesitant in eating it again......What do you think?

Welcome, and I have to say what a beautiful picture on your profile.

Shared equipment is a trial and error. Some very sensitive may have issues, and others not. In the beginning of the diet, I would recommend that you not, just to expedite healing.

Once some healing has taken place, you can slowly add things to your diet and be aware of a reaction.

Oi Vey! is right.

I am constantly puzzled why most of the medical community knows so little about Celiac Disease. Here is some information on the Serologic Testing for Celiac:

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If you would like to post your blood panel result and your pathology report from your biopsy, we would be more than glad to interpret for you. Celiac has over 200 symptoms and not everyone has the same. And many here have been diagnosed with Celiac only secondary to other conditions such as thyroid issues, diabetes, arthritis, etc...

Please consider yourself diagnosed for you and your daughter and stay on the diet. Once you get the hang of it, it really is not that difficult. This is the best place to learn the "facts".

Welcome!

How about something tall, dark and handsome with a drippy Italian accent. Pastas, lots of pasta, but I know of nothing specific. Italy is one of the most progressive countries regarding Celiac.

I am happy that you are on the road to good health with people who care.

It's so sad when our young people can't feel that they can go somewhere for help in desperate times. Peace for that young man and for his parents.

I might have commented somewhere in the past ten pages, but YES.

I have no problem eating McD's fries, but always away that CC can be a high risk.

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This is helpful, but always check the dates to make sure that the information is current. Learning to read labels is always the key and purchasing from companies who will clearly list all forms of gluten, such as these:

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I buy Pillsbury Milk Chocolate, but I read the label every time I buy it.

I'm not sure this is the same, but I remember that my brain would not engage my mouth. I could not pronounce words I was very familiar with and I had difficulty finishing a sentence. My words got all tied up.

My mouth was always very dry. Seventy percent of the fluids that we take in are absorbed in the small intestines. Will the villi damaged, you don't get the fluids you need to function properly.

This is a sign of malabsorption. B-12 injection were extremely helpful in the early days of my diagnosis. And drink lots of water.

I have heard of some members here having difficulty with Canola Oil. Maybe not gluten, but still an issue.