Lisa

mamaw's suggestions are good. I have heard some time ago and long since lost the source, that we absorb 70% of the fluids we drink in our small intestines. If the villi are damaged, it would hinder the water absorption. Do what your body is asking for.

Now, I'm not against the idea of vaccines.

Do you not know that celiac diseases are caused by ingesting gluten that in turn damages the villa in the intestines (often silently) until so many villa are flattened the celiac becomes sensitized by things such as dairy, soy, night-shade etc. and that the resulting mal-absorption of nutrients in turn causes numerous maladys such as MS, heart problems, nerve disorders?

I expect that mamabear is well aware of the attributes of Celiac Disease to a far great extent than many of us on this forum.

I don't think it's fair to jump down the throat of any profession in general terms and use ALL doctors as a whipping boy for years of anguish. It was obvious in the beginning of this tread that it was going to be a doctor bash by some. Too bad. We have lost a lot of good people doing this very thing.

Tried the quinoa and the taste put me off, ugh, but my intestines loved it.

Try cooking your quinoa in chicken broth. I use HerbOx bouillon granules. I found it quite good, with a tad of butter.

Or from our Irish Dave:

https://www.celiac.com/gluten-free/lofivers...php/t48712.html

irish daveyboyJul 8 2008, 08:41 PM

You know you're a Celiac IF ??..

Your bread looks like a moon rock and tastes like dried out ............ PLAY DOH!

You have written .. "Contaminated" .. on jars of peanut butter and mayo.

You call a dream about eating pizza and chocolate cake ............. ?A NIGHTMARE?

You eat ......Before.... you go out to eat.

You think the words ... "Are you sure it?s not all in your head?... are grounds for murder.

(Especially when they come from your Doctor!)

You can?t remember .....'what crackers are supposed to taste like'.

You compare all of your food to ...."normal-people-food."

You know that Xantham Gum is ... NOT for chewing.

You know that Spelt is a distant cousin of Wheat, but Buckwheat Is not related to Wheat at all.

The builders working on the house next door can EASILY substitute your bread for one of their bricks.

You actually KNOW what an anti-TTG and an IGA blood test are.

You can find "Hidden Gluten" in food labels in the blink of an eye,

and your family couldn't find it even if they had

A MAGNIFYING GLASS, DICTIONARY, and PH.D.

You've had to give a Doctor a crash course in Celiac Disease.

A 5 Course Meal is a 1 Course Meal for you ?.. Lettuce.

You've installed floor-to-ceiling bookcases in your bathroom.

It takes you 4 hours to do your grocery shopping and .......... YOUR EYESIGHT IS RUINED.

You Hyper-Ventilate when passing by the bakery counter.

You've ever deliberately rammed your trolley into a Shredded Wheat display ..... in a fit of rage.

You've ever had to take out a 'Loan' to pay the grocery bill.

Your financial portfolio consists of stock in .............. Two Major Toilet Paper Companies.

You are up late at night trying to develop a recipe for pizza without

Flour, Cheese, Yeast, Tomatoes, Garlic and Oegano.

You can spell Transglutaminase and Dermatitis Herpetiformis.

You just discovered how to make flour out of??? TURNIPS.

Having a Solid Poop!.... is the highlight of your day.

You've mastered saying "I actually enjoy MY food" without your face?....... ?Twitching'

You see someone buying rice flour and you just have to ask them ........... if they are gluten intolerant too!

All your ?Favourite? sites are .......... celiac related.

You've mastered the art of lying when people ask you ............ ?aren?t you hungry?.

You long to look at the contents of other people's fridges and press?s ........ just to see if you can eat anything

You burst into tears of relief at the sight of the words ..... ?Gluten Free? .... stamped on the corner of a product.

Here are some funnies from our own celiac3270 and Bronkobux:

You might be a celiac if...

1. The centerpiece on your dining room table is a bread machine.

2. Your bread looks like a moon rock and tastes like dried out Play Doh.

3. Your bread weighs more than any moon rock could possibly weigh.

4. The only way you will eat your bread is toasted.

5. You've paid over $5 for a loaf of bread.

6. You make your own pizza

7. You visit a health food store at least twice a week.

8. You buy most of your food on the Internet.

9. One of your primary goals in life is to create "Fake Oreo Cookies" (and/or Cheerios)

10. There are Garage Sale stickers on all your kitchen food containers.

11. You have argued about and read articles about distilled vinegar and oats.

12. You've disinherited loved ones for putting their knife in your mayo.

13. You've ever been caught licking a discarded Twinkie wrapper.

14. At Christmas, visions of guar gum dance in your head.

15. You are a strictly brand name shopper

16. You've ever had to give a doctor a crash course in Celiac 101.

17. You weep at picnics, parties, receptions and fast food joints.

18. You weep at breakfast, lunch, and dinner.

19. You've ever "brown bagged it" to an elegant dinner party.

20. You have written "contaminated" on jars of peanut butter.

21. You have become friends with the customer service representatives at every company.

22. The customer service representatives at every company recognize your voice.

23. You know the difference between an allergy and an intolerance...and you care.

24. You have two of everything in your kitchen (pots, pans, wooden spoons, etc.).

25. You are afraid of spices and in restaurants, ask for your food "naked."

26. You are afraid of and have nightmares about bagels, pizza, and cake.

27. You make many phone calls from the supermarket.

28. You know what disodium phosphate, tartaric acid, and quinoa are...and care.

29. You know who Danna Korn, Peter Green, and Anne Lee are.

30. You bring many, many lists with you to the supermarket.

31. The first thing you do, upon reaching an unfamiliar location, is pinpoint the location of the nearest bathroom.

-----------------------------------------

32. You have ever tried to explain to a waiter that "it is necessary to use clean pans for you food" and he stares back at you in disbelief.

33. You ordered a salad with no croutons and the entire time its being made you wish you could go back to the kitchen and watch them prepapre it but were afraid to ask.

34. You have taken a poop at all of your friends and relatives houses, even if you just met them...

35. You have explained to people the difference/similarities between Modified Food Starch and Modified Corn Starch at least 50 times (or you know what disodium phosphate is -- celiac3270)

36. You ask Asian restaurants if they have baked or mashed potatoes

37. You ask every restaurant if they have baked/mashed potatoes

38. You've kissed someone who just drank beer and wonder if you will get sick

39. You've kissed someone who just drank a beer and you really wanted their beer instead of your vodka/tonic, wine, spritzer, ......

40. You've responded to someone's post on a website about bowel problems and were brutally honest about your own "issues with bowels"

41. You read this post and laughed because you've "been there"

Oh, just thought of a few more:

42. People think you're on the Atkins diet

43. You've asked for a bunless burger...and been looked at as if you have three heads.

44. You've asked about the ingredients of shampoo

45. You post on this board...that's not funny, though

Thank you for posting

My dd (brain injured) was admitted to the hospital yesterday for some behavior problems. Nothing new and something she needs every now and then.

I knew before getting to this hospital, one we had not been to before, that her gluten-free diet was going to be a problem. So I told the admitting nurse it was really important that they monitor her diet. What a waste of time.

I was admitted once to a small town hospital two years ago. That hospital bent over backwards to ensure my tray was all gluten free. This larger hospital could care less.

Anyone have any suggestion on what I should include in my letter of complaint?

This was posted recently:

Open Original Shared Link

Okay, my parents and I are debating whether I should be tested for the Celiac Disease, but we are not sure just yet. The main symptom that worries us is the fact that I am 18 years old, 6'2", and weight 135 pounds. I do quite a bit of cardio because I play varsity tennis, but I also eat a good amount too (probably the same as an average person) and I still am very skinny. There seems to be no excretion issues or anything related to the intestines. In addition, my grandfather is a Celiac.

So, is it worth it for me to get tested? What would be the procedure if I were to get tested? Thank you very much.

Edit: Also, I wanted to mention that I don't feel sick after eating any gluten-free products, drinking beer, etc. I am quite worried though because gluten is a massive part of my diet.

Hi and Welcome!

You are a bit skinny at 135. As you might know, many people with Celiac can be asymptomatic and only get diagnosed with Celiac as a secondary to another illness. Many people never have the digestive issues.

With a history of Celiac, perhaps it might be wise to be tested. This is what you should request from your doctor:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Best of Luck.

Good for you Sara Beth! If I can help in any way, please let me know.

Thank you both...This is all crazy to me...Its only been almost 2 weeks and I feel like Im probably not 100% gluten free because I'm still learning the little things...Im reading labels but there is SO much out there to memorize that it seems impossible. I dont know how everyone does it!

This might help. ...this is a listing of good companies who will clearly list ALL forms of gluten.

Open Original Shared Link

It might be helpful to look into the www.triumphdining.com Grocery Guilde. It lists hundreds of main stream grocery products that are gluten free. I highly recommend it.

I am beginning to think that a fast is the better route..have given a good weeks effort on research for cleanses, and they all make me nervous.

A much wiser choice.

I enjoy a moderate drink and have read various topics on the suitability of scotch whiskey for those who are gluten sensitive.

What brands of Scotch whiskey are acceptable?

https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

www.triumphdining.com or through the Gluten Free Mall on this site.

Check out the grocery guide. I highly recommend it, at least in the beginning. Product ingredients change frequently and lists can become inaccurate without warning.

I think that there is a fear that we are like the canary in the coal mine. Or are they the ostrich with it's head in the sand? Is the food that they are eating really safe? They want to feel that it is and that we are crazy. The test that shows the presence of gluten in the food that they eat must be wrong. You must be a company plant to make money off sick people.

All I know is that when my son or I get sick, I test. I find the food that has gluten in it and stop eating it. We get better. That is enough for me.

I have tremendous concern for the people who frequent this site, that companies take advance of marketing their products to frustrated people sick and tired of being sick and tired.

The reliability of this product has been in question and it is outrageously expensive. I also have concerns for the new members here seeking primary information, may feel that ALL food they consume should be tested with this product, sensitive or not.

I do tend to be a bit overprotective, toward the people of this forum and I apologize for that. It has been indicated that it's none of my business what people choose to do. No, it's not my business, but a new member to this site should receive both sides of a discussion on a public forum, to make an informed decision.

If it works for you, GREAT!

Hi Christina!

We all understand your frustration. Here is a list of people in your area who might be able to direct you to a proper doctor:

Open Original Shared Link

This is the test to request from a doctor:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

The Celiac Serologic Panel should cost you far less than what you quoted.

Good luck!

You can't think of one product that is gluten-free safe??? How about Banannas, Oranges, Potatoes, these are the first things coming to mind, if I put much time into it, I'm sure I'd come up with many more.

Jeremiah,

My point was, to take REASONABLE precautions. Celiac Disease does not have to be a Ball & Chain you drag around with you for the rest of your life.

The easiest way to deal with it is to learn to read labels, don't rely on lists, trust your own judgment and accept where you are.

Hi Jeremy,

I certainly understand your confusion. Consistency is new to the medical world regarding Celiac and it's associations.

I don't recall your blood work results, but if you doctor considered it positive, that in itself is a diagnoses. A biopsy can confirm that diagnoses or establish a diagnosis. Neither are as accurate as we would like at this time.

If your blood work was positive and you have a positive dietary result, I would remain on the diet and consider yourself to have a diagnoses of Celiac Disease. As your doctor mentioned, biopsies can be hit or miss.

Hope this was helpful.

Lisa,

I would think it highly unlikely that Planters woud use one of the top 8 allergens on their product. But, I don't have a supporting link for my thoughts.

I ordered grain from them and tested it and it was positive at a level which would have made me sick.

What type of test did you do that indicated "positive" at the level that made you sick?

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Is AMARANTH gluten-free?

YES! Amaranth has been tested by a certified AOAC food analysis laboratory (ELISA tested) and is certified gluten-free. Amaranth is recognized by the Gluten Intolerance Group, the Celiac Disease Foundation, the Celiac Sprue Association, the American Dietetic Association and other groups as gluten-free.

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Could you list in a typical day what you eat that you know to be 100% safe? Thanks in advance.

I can't think of any consumable product that would be considered 100% gluten free safe, one which would be free of contamination in the production, harvesting, shipping and marketing. Tomatoes grown in your backyard, only touched by the sun and your hands could be 100% gluten free.

There is no guarantee that the stock person didn't stack the broccoli in the box with one hand and had a bologna sandwich with the other.

Take reasonable precautions.

Thank you for this!!!!! This is a great source. Everyone should have this information available!!!

I am sorry that you are feeling bad.

You might have allergies to something in the house. Mold certainly could be making you ill. Don't think you can get glutened by mold. Gluten is the protien found in wheat, barley, malt and rye.

Hi, I currently live in Costa Rica and my niece was recently diagnosed with celiac disease. We happen to have relatives currently living in Kendall, FL, and I was wondering if there was a support group we can contact and can help us out? My sister in law is traveling to Miami during the fist week of March and we wanted to take the opportunity to look for stores that offered gluten free products (since currently in Costa Rica the options are very limited) in the nearby area? Anybody can help us out?

Thanks!

Open Original Shared Link

Here is a start.

Good luck

Is it gluten-free?

I have heard that it uses a wheat vinegar but all the gluten is removed during the fermentation process.

Distilled vinegar, regardless of the source, is considered safe for Celiacs to consume. Although, some very sensitive to trace amounts, may react.