Lisa

Does it make a difference if maltodextrin is derived from corn?

I bought some NuStevia White Stevia Powder today thinking it was just plain Stevia. Well it isn't, and I am kicking myself for missing the other ingredients.

TIA!

Maltodextrin in the US is derived from corn. If otherwise, it would be listed "maltodexrin (wheat)" It would not be a gluten worry.

Sorry I am not good with these forums. I can't find it.

https://www.celiac.com/gluten-free/index.php?showuser=2

Here is Scott's contact information. Under his picture, click on "Send Message".

Has anyone else had any problem with Activia? It is made in a facility that also has wheat products but, I've never had a problem with it. In fact, it made me feel a little better.

Open Original Shared Link

I have always chuckled at the Dannon created term "Bifidus regularis". But I haven't tried it.

Above is a Consumer Report on Activia.

Are Spanish Olives gluten free? How about the Pimento inside of them?

Thanks!

It should not be a gluten problem. (except for those highly sensitive to trace amounts of distilled grain based vinegar)

Hi Charlie,

Too late for this weekend, but I HIGHLY recommend the Triumph Dining Cards and you can find them at the Gluten Free Mall on this website.

Remind the chef that you can also get sick from cross contamination. If a utensil, preparation or cooking surface for foods I can't eat, please clean it before using it for may food. Also, if water or oil is used to cook foods I can't eat, please do not use it to cook my food.

When I eat out I try to look for something broiled or steamed (salt and pepper) and steamed veggies, rice, backed potato, salad (I bring my own dressing just in case). I usually find something I can eat, if it's just a salad without dressing.

My favorite locally is Steamed Shrimp with Old Bay and Steamed Broccoli. It's messy but wonderful.

Good luck.

https://www.celiac.com/gluten-free/index.ph...c=54285&hl=

You can find more information here.

The gluten free diet can be very complicated,as you may be finding and cross contamination is a very real factor. If gluten is your problem, I would suggest you keep a food diary so you can potentially identify any issue.

If you need some help in menu planning, shopping or nutritional balance, there are a lot of experienced people here. We have many people here with multiple food intolerances. You're in good company.

There are different things you can try but quite a few of us who have been in a similar situation of being unable to eat hardly anything without getting some kind of reaction have been following the Specific Carbohydrate Diet (SCD) with some success as it removes the commonly troublesome foods and focuses on good wholesome foods that encourage healing. It is gluten and dairy-free by its nature (although it does permit a little dairy at a later stage when the gut is well into the healing process).

If it is something you might be interested to look at there is a thread on this section that you are welcome to come and 'pick our brains' on, and the official website is 'breaking the vicious cycle'.

When like us you are already on a very limited diet because of food intolerance anyway, and the Medical Profession has been unable to come up with any answers, there is little to lose by trying and the possibility, as we have experienced, of much to gain!

I have been following it for the last 10 months and although I still have a way to go, I can now tolerate a lot more foods than I could 10 months ago!

It is possible that you might find a dietitian who is 'clued up' about food intolerance (although I have never come across one personally!) but I have seen that some nutritionists and practitioners are actually recommending the SCD to some of their patients as they have seen good results too.

More on the SCD diet can be found here:

https://www.celiac.com/gluten-free/index.php?showtopic=54285

I don't care if they are off topic and its my thread

There is much more to this story than is being told. For those with a political tone and don't thing the previous Republican administration did enough to fund medical research...well as a true fiscal conservative they shouldn't have in the first place. However I firmly believe that the overall cause of Celiac's...the liberals

Eric,

As the original poster, you might already know this but, politics do not fare well here. It usually generates quite a bit of emotion to be discusses on a site for Celiac Disease. We tend to avoid topic that might be controversial.

Regarding the history of Celiac Disease, this link might be of interest to you. No liberals were mentioned in this article.

Open Original Shared Link

According to what I understand, we absorb 70% of our fluids in our small intestines. Many times excess thirst is a symptom of undiagnosed Celiac or early on the diet.

Perhaps that contributed, in part, to your constipation and once healed, it will be "relieved".

Welcome to the Club! If we can help you in any way, please feel free to ask.

Open Original Shared Link

I don't know if you're in northern or southern Virginia, but these good people can help you, or direct you to someone who can. Good luck.

Hi Dylan,

Can you go back to your doctor and get your meds "tweeked" a little bit. Maybe your meds are "off" a little bit and adjusting them a little could make you feel a lot better and less anxious and obsessive. You remind me so very much of a dear friend. Often times, his meds needed adjustments and after that he was able to do a lot more every day life things (like talk to girls)

That could be the problem with your eyes and the buzzing in your ears. (My friend has static in his brain too). Sometimes something simple can make a BIG difference.

How about that for a go?

We share a common denominator as we have come to this place, but we have arrived with varied different attitudes about the health care we have experiences. Many have had wonderful experiences and others, quite the opposite.

Some times we need to remember this when we post on a forum directed to everyone. I need to remind myself quite often.

Hi Jonine,

Assuming your sons have a gluten issues, it takes time and 100% accuracy in removing gluten from their diet. Non food product can hide gluten as well. Scratched pots and pans, used toasters, wooden cutting boards and spoons, lotions, lipbalms, meds and vitamins and even some school supplies can all be sources of gluten. And dairy can mimic gluten symptoms, so it's recommended to go dairy light or eliminate it for a while.

Keep a food diary for a while. That can help you isolate a potential problem.

It's very complicated in the beginning. I hope you find your answer.

Most people who visit this forum have been ill with various digestive issues for many years.

To me it's common sense to be tested with a colonoscopy and endoscopy exam to rule out more serious concerns, if not for a baseline test for the future.

To have an endoscopy/biopsy post positive serologic testing is a personal choice, and in my opinion, a wise one. But not necessarily as a confirmation for Celiac Disease, where a positive diagnosis was made with the blood work.

Thanks Jess- SA-WEET!!!!!!!!!!! Free glam

eight lobsters!!!!!!!!!!!!! OH LEEEEEEEEESSSSSSSSSAAAAAAAAAAAAAA.........

I CAN HEEEEEAAAAAAR YOU!!!! ...best God-giv'in food on earth. (verygreenjealous face) Enjoy at least ONE for me

Yes, guess it goes to show that us Yanks can put on a wee bit of pomp too! A proud day indeed.

Welcome pupok! Whiskey is a no-no as far as I know. Any wheat, rye or barley derived alcohol would be a possible problem. Some people say that any distilled alcohols are ok but I don't think that is correct personally. There are potato vodkas that should be no problem. And tequila could be ok but as with everything else it is nessacary to check each food before deciding. You can do an internet search on most foods and the word gluten to get info. Or try the maker's website and do a search on gluten there, or call / email them.

https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

Please note that ingredients in the products on this page are subject to change without notice. The products on this page were safe when last checked. It is up to you to verify that the product remains gluten-free by checking the ingredients yourself, or by contacting the manufacturer. All distilled alcohols are gluten-free.

Armagnac - made from grapes.

Bourbon - Makers Mark

Brandy

Champagne

Cider - fermented from apples or other fruits. Some are safe, however, many add barley for enzymes and flavor.

Old Deadly Cider

Cognac - made from grapes.

Gin

Grappa

Kahlua

Kirschwasser (cherry liqueur)

Margarita Mix:

Jose Cuervo.

Mr. & Mrs. T.

Martini:

Club Extra Dry Martini (corn & grape).

Club Vodka Martini (corn & grape).

Mead - distilled from honey.

Mistico:

Jose Cuervo Mistico (agave and cane).

Mixes & Cooking Alcohol:

Club Tom Collins (corn).

Dimond Jims Bloody Mary Mystery.

Holland House - all EXCEPT Teriyaki Marinade and Smooth & Spicy Bloody Mary Mixes.

Mr. & Mrs. T - all Except Bloody Mary Mix.

Spice Islands - Cooking Wines - Burgundy, Sherry and White.

Ouzo - made from grapes and anise.

Rum

Sake - fermented with rice and Koji enzymes. The Koji enzymes are grown on Miso, which is usually made with barley. The two-product separation from barley, and the manufacturing process should make it safe for celiacs.

Scotch Whiskey

Sherry

Sparkling Wine

Tequila

Vermouth - distilled from grapes.

Vodka

Wine - all wines, including port wines and sherry, are safe for celiacs.

Wine Coolers:

Bartle & James - their wine-based beverages (EXCEPT their malt beverages - read the label carefully!).

Boones - their wine-based beverages (EXCEPT their malt beverages - read the label carefully!)

Good heavens, there are MANY studies out there, much more recent than what Dr. Fine quoted.

Here is one, fromFinland, published in Gastroenterology November 24, 2008:

BACKGROUND & AIMS: The diagnostic criteria for celiac disease require small-bowel mucosal villous atrophy with crypt hyperplasia (Marsh III). However, mucosal damage develops gradually and patients may evince clinical symptoms before histologic changes appear. Endomysial antibodies are specific in predicting forthcoming villous atrophy. We hypothesized that patients with mild enteropathy but positive endomysial antibodies benefit from a gluten-free diet (GFD) similarly to patients with more severe enteropathy. METHODS: Small-bowel endoscopy together with clinical evaluations was performed in altogether 70 consecutive adults with positive endomysial antibodies. Of these, 23 had only mild enteropathy (Marsh I-II) and they were randomized either to continue on a gluten-containing diet or start a GFD. After 1 year, clinical, serologic, and histologic evaluations were repeated. A total of 47 participants had small-bowel mucosal lesions compatible with celiac disease (Marsh III), and these served as disease controls. RESULTS: In the gluten-containing diet group (Marsh I-II) the small-bowel mucosal villous architecture deteriorated in all participants, and the symptoms and abnormal antibody titers persisted. In contrast, in the GFD group (Marsh I-II) the symptoms were alleviated, antibody titers decreased, and mucosal inflammation diminished equally to celiac controls (Marsh III). When the trial was completed, all participants chose to continue on a life-long GFD. CONCLUSIONS: Patients with endomysial antibodies benefit from a GFD regardless of the degree of enteropathy. The diagnostic criteria for celiac disease need re-evaluation: endomysial antibody positivity without atrophy belongs to the spectrum of genetic gluten intolerance, and warrants dietary treatment.

From what I conclude from this study is that patients with mild enteropathy (intestinal disruption) but positive endomysial antibodies (from serologic testing) react well to the gluten free diet.

No argument from me.

It has always been stated here that positive blood work IS a diagnosis for Celiac Disease, regardless of a positive biopsy.

This might be informative:

Open Original Shared Link

This might be helpful:

https://www.celiac.com/gluten-free/index.php?showtopic=35803

Hi ranger,

Perhaps this link might offer some humor to your current situation. As evident, we have all been there:

https://www.celiac.com/gluten-free/lofivers....php/t5928.html

(and yes, be diligent and patient, it may take weeks or several months.)

This just crossed my path from the National Foundation for Celiac Awareness. For those with stories..

3. The NFCA is developing a program related to women's health and wellness with a focus on reproductive health issues. Our goal is to escalate the recognition of celiac disease as a factor in several health issues facing women. Personal stories are an effective tool for relaying the true impact of this autoimmune disease. We invite you to share your story concerning women's health with us. Please send your stories to Nancy Ginter at ginter@CeliacCentral.org.