Lisa

Hummm...well, you know that everyone is different.

Your reaction time could be extended. You might not know what tomorrow will bring.

(twizzlers were very hard for me to digest, when I did eat them. A bady tummy is understandable.)

It would be helpful if frogleggs could post the blood panel results. Not all positives indicate Celiac. That would be a good place to start.

This this the panel that should have been taken:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

I am glad that your daughter is doing so well.

I wish that I could locate the source, but I understand that up to 75% of the fluids that we consume are absorbed in our small intestines. If the villi damaged, that absorption is hindered. Thirst is very common among newly diagnosed.

Once healing begins, the thirst will subside to a normal intake. Water might be better than juice and all she wants.

The reason that red wine is making you sick again, is because alcohol uses yeast in the fermentation process. Yeast is the active ingredient in wheat which makes breads rise. Fermentation is a process where the yeast breaks down the sugars and converts them to alcohol. If the wine is made from gluten free yeast, then it is probably safe. There are gluten free yeasts sold at the supermarket. It comes in a yellow and white packet.

Also be careful with drinks and soups which contain caramel coloring. Caramel coloring made in the US isn't supposed to contain wheat. Pepsi products do not use wheat in their caramel coloring according to a newsletter which I saw via the internet.

Dairy products and MSG can also produce similiar reactions... headaches, fatigue, indigestion, itching. Unfortunately, I am allergic to gluten, MSG, and lactose myself. If I eat wheat, I suffer for at least 5-7 days. Eating out is not easy for celiac sufferers.

Josh,

Open Original Shared Link Yeast is not a gluten concern.

Wine

Fresh grapesMain article: Fermentation (wine)

Yeast is used in winemaking where it converts the sugars present in grape juice or must into alcohol. Yeast is normally already invisibly present on the grapes. The fermentation can be done with this endogenous (or wild) yeast;[21] however, this may give unpredictable results depending on the exact types of yeast species that are present. For this reason a pure yeast culture is generally added to the must, which rapidly predominates the fermentation as it proceeds. This represses the wild yeasts and ensures a reliable and predictable fermentation.[22] Most added wine yeasts are strains of Saccharomyces cerevisiae, however not all strains of the species are suitable.[22] Different S. cerevisiae yeast strains have differing physiological and fermentative properties, therefore the actual strain of yeast selected can have a direct impact on the finished wine.[23] Significant research has been undertaken into the development of novel wine yeast strains that produce atypical flavour profiles or increased complexity in wines.[24][25]

The growth of some yeasts such as Zygosaccharomyces and Brettanomyces in wine can result in wine faults and subsequent spoilage.[26] Brettanomyces produces an array of metabolites when growing in wine, some of which are volatile phenolic compounds. Together these compounds are often referred to as "Brettanomyces character", and are often described as antiseptic or "barnyard" type aromas. Brettanomyces is a significant contributor to wine faults within the wine industry.[27]

Caramel color in the US is safe, unless otherwise indicated. MSG might not be too good for you, but it's not a gluten concern.

Allergies can come in all shapes and sizes, but Celiac is pretty specific.

Hi! I am a recently diagnosed Celiac and never suffered symptoms before going gluten free. I have been gluten free for about six weeks now and suspect that I have been accidentally glutened. I have had diarrhea for 4 days now and feel lethargic and just blah.............does anyone know how long this lasts??? I used to wish that I would get symptoms so I would know if I accidentally ate anything but not anymore--this is horrible! Also, does anyone know how far back I should look to try to find out what I ate? I started feeling sick on Thursday and am still not feeling well today (Monday)? Any help or advice would be so much appreciated!!!

Welcome to the Club!!!

You have found a wonderful place for information and support. I can't really answer you questions because everyone reacts differently.

Have you checked your old toaster, wooden cutting boards and spoons, meds, vitamins? Gluten is very tricky and can hide everywhere, with lots of traps.

It's interesting that you were symptom free until you went gluten free. There are stages when some become more sensitive to gluten once it's removed from your diet. I was several months into the diet before I realized what "being glutened" meant. I was still healing and any food, gluten or not, would bother me.

My best advise it to continue to be diligent and give it some time. And, read, read and read from this wonderful site.

I am sorry that you niece has had such difficulties at such a young age.

Your nieces doctor indicated that she had some documented damage due to Celiac in her intestines. That is enough of a diagnosis for her to go gluten free.

The great part of Celiac Disease is that the prescription is the gluten free diet, and that costs nothing. There are no prescriptione needed or doctors order to begin the diet. If she needs assitance with that we could be more than glad to help.

There is a possiblity that her other ailments may have been due to undiagnosed Celiac. Perhaps with a dedicated diet, those too might enter remission.

There are many chapters of Celiac Support Groups around the country. If you let us know where she's located, we can post the nearest.

A simple diet change, my change her life.

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Here is a listing that might be helpful. It would be wise to get a second confirmation.

You response from the company as well as your lack of support from the hospital was very disappointing.

A person absorbs most of your water intake through your small intestines. If your intestines are damage due to Celiac Disease, it hinders absorption. Excess thirst is very typical for those with intestinal damage or blunted villi.

As healing takes place, thirst subsides. But, for now, drink like a fish if you feel you need to.

As mentioned, it can be a sign of other issues.

What do the ingredients list on the label?

How wonderful to have all these special birthday wishes!!!

We (my whole family) went to the mountains for the weekend to visit my sister and her family. It was so beautiful and we had lots of laughs.

Thank you my friends

Everyone is different, but my thought is that you reaction time will begin to vary. At times, I have felt a reaction up to 24 hours later.

Now, after three plus years gluten free, I have healed to the point that I do not reaction to gluten on a one time only basis. (possible cross contamination only). I have described it as a car rolling down the hill, slowly getting closer to the cliff, but yet no damage....eventually the car crashed over the cliff and gets all banged up. A silly little story, but it makes sense to me.

Ooops, and no it does not go away.

: It's good to see there are still a couple of old favourites still here

Shirley you mean "old" as in mature and wise????

Wow, this is mind boggling! I've been away from this web site for months...if not a couple of years, and this discussion is still going on! Amazing!

HI SHIRLEY AND WELCOME BACK!!!!! and yup McD's is might important to people.

Neo the invisible puppy..designed to drive us mad. I can't see him Tiffany, but congratulations.

sbj - A good comprehensive post. Well done

Open Original Shared Link

I bet you have a health department nearby. I think you need to see someone.

With all respect, you left out the fact that Enterolab tests for gluten intolerance and without a gluten intolerance, don't suppose there would be such a thing called celiac disease....Take care Mike

Gluten intolerance does not mean Celiac Disease, with all due respect.

Celiac is an autoimmune reaction triggered by the protein found in wheat, barley, malt and rye. Gluten intolerance, is just that, an intolerance, that does not trigger an autoimmune reaction as Celiac Disease does. A gluten intolerance, may be a precursor to Celiac Disease, but they are not the same.

We very recently discovered that our daughter has an intolerance to gluten. She tested negative for Celiac, however. I have several questions.... First, do I push the issue and have another/different test done? It's possible for her to have a sensitivity to gluten without being Celiac, right???

We're starting her on a gluten free diet, and it's going pretty well. Do I need to seek help from anyone--GI, nutritionist, etc???

I don't know how old your daughter is, but general, children under the age of five do not test accurately. She may gluten intolerant without Celiac. A positive dietary response is a good indicator.

Remember, the tendency for Celiac is inherited. You might consider having you and your husband check.

I would like to clarify that Enterolabs DOES NOT DIAGNOSE CELIAC DISEASE. Enterolabs themselves state that.

They CAN test for sensitivities to certain foods and do some gene testing.

There are currently three ways to diagnose for Celiac Disease:

1. Serologic Panel (blood testing)

2. Endoscopy/biopsy exam

3. Positive dietary response

We have had some "traditional" doctors on this site, who also had Celiac and none of them had must confidence in Enterolabs diagnostic/testing abilities.

A person remains conscious for eight seconds after being decapitated.

So you KNOW when your head starts to roll? In that case, eight seconds it a VERY LONG TIME.

Hey!

I received a complementary copy of the Triumph Dining Grocery Guide in the mail, because I do some support work with the Celiac Disease Foundation.

I checked it out and think it's wonderful! I only wish that it were available three years ago. It would be a gift for a newly diagnosed, because it contains over 30,000 named brand grocery products.

I highly recommend it (and I have no business or financial interest in this product). Information on this guide can be found at the Gluten Free Mall (located on this site) or www.Triumphdining.com

...just thought I'd pass it on.

Your doctor is ill informed. You are smart to question him. This is the test that you should have:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Get a copy of your result and post then here. A colonoscopy will not detect Celiac, but it might be wise to have a base line test, especially if you have had issues. That is done through the small intestines with an endoscopy/biopsy, to test for damage due to Celiac, although, no current testing is conclusive.

It is important, should you pursue and endoscopy exam, you must remain on a full gluten diet. If you can accept a diagnosis, based on positive dietary results and your family history, you can begin the diet immediately. Many people here have taken that road.

We can't tell you what to do, only to arm you with facts to make your own decision.

How dose chantex work? I herd some people smoke while they take it and quit a week or two later. Cold turkey seems harsh, but drugs scare me....I wonder what the most effective method is. Anyone know what method has the highest success rate?

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It worked well for me, but it might not be right for everyone.

Yes, "surviving" into the 90's is quite impressive....but for me...the last 12 years of my life I felt like I was merely "surviving".....I want to be "living" into my 90's!! So while she may "survive" just as long with or without gluten....like you said....she wasnt "living" fully.

That is what staying gluten-free is about.....having a life now and "living" to enjoy it through old age.

Thank you Shay for your imput.