Lisa

Ken,

Don't know if you have this list. Perhaps it may be helpful.

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I took Simvastatin for a few months and did not like it at all. I quit it and tried to make dietary changes. I've got one of the hereditary issues.

I knew I'd find Alex here. I've come to wish her a very HAPPY BIRTHDAY. Wish you great wishes to come true, sweet girl!

...and how is everyone?

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Here is a link with some information. I am not familiar with any store in particular, but eating gluten free in Maine should not be much of a problem. Find any lobster pound and pig out.

I would shop while you are there, but bring some bread and pastas of your choice. Most grocery stores have a great deal of gluten free foods. Just gotta know how to read labels.

Don't forget to visit the Owl's Head Museum and take a Schooner ride in Camden Have a wonderful time in Maine (said with the greatest envy) AND the greatest restaurant in the entire world is Harraseeket Lunch and Lobster in Freeport. Nothing could be finer.

Enjoy!

Hi Ken Ritter,

I am south west of Hampton Roads.

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Here is a link to the Celiac Disease Foundation Support Groups. The Chesapeake Tidewater Celiacs Chapter is large, active and nationally recognized. What they don't know, can't be known.

Trish Cryer, pcyrs@cox.net, can help you out. Tell her that Lisa from Celiac.com sent you.

Hi,

Are there any bottled drinks that are safe for us? I had read a post that Smirnoff Ice was safe but it says Malted beverage? I did email Smirnoff and they said it was safe because its distilled from corn.

any advice would be appreciated.

Wendy

https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

Here are a few.

It took me a good six months to get a handle on the diet and to see a marked improvement. The digestive response is the first to show improvement, but the neurological ones can take up to a few years to totally improve, in my case due to malabsorption.

It does take some time for your body to recover, just as it took some time to get to your diagnosis.

Be patient and diligent.

I think that it's not the baking, nor the bread aisle, but the short time that you have been gluten free. Your body does go through and adjustment period.

You have been on the diet a VERY short period of time. The learning curve is steep with regards to knowing what is safe and what is not. Don't forget to check your toiletries, lip balm, meds, vitamins....shared toasters, wooden spoons and cutting boards or scratched pots and pans can all hide gluten.

(Not knowing your history) Allow your body time to heal and to ride itself from gluten.

Hey Laura!!! I hope you have a wonderful day and all your wishes come true!!!!!

And, thank you for your contribution here!

Didn't anyone see "Super Size Me"??? They let those McD's fries sit out on a counter for MONTHS, and they did not rot. They did not mold up , NOTHING. Those things are not food, whatever ingredients they have in them, so I wouldn't eat them even if they were 100% gluten/dairy free. They are still poison to this body and if they can't degrade after months of sitting out, what makes you think your damaged intestines are going to have a fun time? LOL.

Yes, this reminds me.....TEN years after my daughter graduated from High School, I tackled her storage closet in her room. Yup, there in her book sack were about a dozen french fries in perfect form, just as if they were ordered that day. Bet they would have tasted as fresh.....(oooh, shivers).

In the US the web site said that the fries have wheat in them and they have made my sister and myself sick. We both have celiac disease.

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Don't they cook the fries in the same oil as the chicken nuggets and hash browns?

They do not use the same oil for the McNuggets. McD's has dedicated friers for the french fries.

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It's a matter of personal choice whether or not you want to eat them, but using the most sensitive commercial test, there is no detectable gluten in McDonald's french fries.

Thanks for posting this link Colleen.

Happy Birthday Janet! You always make me laugh (your sense of humor, that is).

May all your wishes come true.

EDIT: Well......Happy Anniversary to Ya! May all your wishes still come true.

No debate here!

So some trace wheat is ok for Celiac's. I was not aware of this. I thought any wheat was bad no matter the amount.

Unfortunately, I have a meeting and do not have the time to post support information for my statements. The government has to have a measurment for products claims to be considered gluten free or not. I believe it's 20ppm. (parts per million)

With that said, anything less than that amount may claim to be gluten free by US labeling law.. That does not mean that those who are super sensitive would not react to that amount of gluten. There is no guarantee that any product can claim to be 100% gluten free unless you butcher your own meat, fish and grown your own crops.

I am sure others will post. Sorry for the rushed answer.

Cadbury is a Hershey Product. Hershey has a history of non disclosure as to the source of their "natural flavors". Hershey products are NOT my shopping list.

There has been VERY EXTENSIVE discussions regarding McD's Fries. Please do a search here for additional information.

The CDF, GIG and CSA have issued statements that have declared the amount of detectable gluten in McD's fries to be rendered safe for Celiacs.

The arguments can continue into eternity, but the bottom line is that it's a personal choice. I choose McD's fries.

hi can you eat cheese and yogutes?

thanks caroline

Some cheeses and yogurts are gluten free. Yoplait Yogurt and cheese in it's natural form is fine. (In the US)

Your immediate reaction does not mean an immediate reaction to what you just ate. A gluten reaction can begin within 15 minutes to over 48 hours. Everyone is different. A food journal is an excellent idea.

Also, it takes time to heal. If you have been gluten free in your meal, but wearing lipstick or gloss with wheat germ oil, you have not been gluten free and it has hindered the healing process. Reaction to gluten free foods can mimic gluten when the gut is not healed. You can react to everything that you eat until your intestines have healed a bit.

When I have problem, I go back to the basics. Simple meals and researched product that I am 100% certain.

If you have any question regarding products, please feel free to ask. Here is a listing of companies who will clearly list all forms of gluten to include barley, malt and rye.

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Copy this and take it to the store with you. Go easy at Whole Foods (Whole Paycheck) and stick to breads and pastas ( Whole Foods Prairie Bread is wonderful) .

See, it does get easier.

I've noticed when I eat products with sorghum I have an asthma attack. I begin to wheeze, cough and am unable to catch my breath. Anyone else have this issue? It seems like my pool of available foods to eat is shrinking daily....

I live in a rural farm community where sorghun and wheat are grown. Because of your post, it made me wonder if wheat and sorghum can be cultivated and processed in the much the same manner that oats are grown and processed and subject to cross contamination.

There has been much talk about oats not being safe due to this facts and most are considered not gluten free. Could sorghum be added to this discussion? Sorghum would not contain the offending protein as in wheat, but cross contamination with wheat would be likely.

Any other thoughts?

Good Grief, I have had my share of tears, staring at a menu blubbering in front of my helpless husband and a totally bewildered waiter. Grocery shopping and getting down right mad as hell. The first loaves of bread I bought ended up as great substitutions to arm weights.

This too shall pass. Sometimes I had to remind myself how sick I actually was and that served as a reality check for myself.

Try to revisit your diet, shampoos, vitamines, meds or any other things that can get into your mouth. Remember that shared toasters, cutting boards, colanders and some utensils can be a great place for hidden gluten. Keep your diet simple until you have healed and then you can expand your diet.

Explore new things gradually and you will realize that there is a world out there where there is no need to feel deprived. In time you will realize that life is good and that there are other isssues to devote you time to, other than food.

Have faith and chin up.

Evie, Welcome here!

Your DNA test were positive which indicates that you MAY be predisposed to a gluten intolerance, allergy or Celiac.

These are the tests that you doctor needs to order (all of them):

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Should these test be positive, that in itself is a diagnosis. An endoscopy/biopsy can also rule in Celiac Disease. But, it cannot rule it out due to the inaccuracy of both tests. As stated, there are some false negatives, but no false positives.

An endoscopy can also look for other issues in your small intestines. It might be good to test if you have had a history of digestive issues.

Should you need to go gluten free, know that it's not the end of the world. You need to be a quick learn in the beginning, but soon it becomes second nature. I do not feel deprived in the least.

Read as much as you can from this site. This is the best source you can find. Good luck.

Sarah,

I make a similar recipe.

Broccoli florets

mayo

balsamic vinegar

sugar

cooked bacon crumbles

craisans (lots)

chopped onion

And, you're right. It's great for summer dinners and the longer it sits, the better it tastes. Thanks for posting.

For those at work and no access to TV. Tim Russert has passed away at work from a massive heart attack.

My heart is sick. We have the pleasure of knowing Walter Cronkite and I put Tim in the same category professionally and personally. How can we elect a new President without him? Tony Snow said that Tim had "GUSTO". Yes, he did.

What a patriot! I shall miss him terribly.

Not sure if this is the right place to post this, but I am wondering if anyone knows which Hershey's chocholate bars are safe in Canada? Mostly I am wondering about Oh Henry, Skor, Eat-More...etc.etc.....

Please help...I am in need of a chocolate bar!!

Best thing to do is to contact Hershey and inquire about their policy regarding "natural flavors".