Lisa

Thanks you both for that information. I just did mine. But, it does make you think a little.

I guess your answers can reflect in your experience/time into the diet and your trust of manufactures to list correctly.

I have to admit that when I was dx'd, I bought alot of gluten free foods. I also have to admit, that they are still here and I don't want to eat/fix/bake them. I have learned to deal without and eat well.

When fresh green beans get labled gluten free, now that's over the top.

perhaps I should have bolded "I'm not recommending this "

True but then it depends on what you mean by each time...

Considerable medical opinion (which I disagree with) recommends gluten challenges of months... I don't see how this is justified... but its still the majority of medical opinion... just because you are eating gluten for a biopsy doesn't change any of this...

The bottom line comes down to what damage is being done and how... and I don't see any medical evidence that 1 slice of bread is doing less damage than 1 loaf... it may or it may not but noone seems to be able to answer this question. What I know for myself is I don't feel any worse for eating a whole loaf than I do from eating a single breadcrumb. That doesn't mean the damage is not worse but neither does it disprove it.

What I see plenty of evidence for is that peripheral diseases are not the product of a single dose but of extended periods of stressing the body. Adrenal impairment is not triggered by eating a single slice of bread but by years of stressing the gland. Cancer is not from a single crumb but the repeated and prolonged enforced cell regeneration of the villi. Yes a single cigarette can give you cancer but the chances against it are billions to one. If you don't somke it can still make you ill but the chance of it doiung any long term damage is almost zero.

From all the evidence I can see the biggest dangers of gluten are prolonged exposure. I have to accept I live in a world where being 100% gluten-free is not possible. From time to time I will be accidentally glutened.

I don't go out EVER and think "oh I'll see what happens" if I don't feel safe I will not eat but even so accidents will happen. I love eating out but I minimise this because of the risks, I don't include anything in my everyday diet that introduces a risk but it is simply not possible to spend 3 weeks on vacation eating out without taking risks.

I do not go out and think "ooh if I get glutened I can have pizza tomorrow" I make very effort in every case not to get glutened. I could elect not to go on vacation but then I'm no longer living... I'm existing.

What I see NO EVIDENCE for whatsoever is that 2-3 days of glutening does ANYMORE damage than being accidentally glutened by a single breadcrumb, some CC or accidentally sipping someones beer on a regular basis.

If I get glutened form a breadcrumb I will be ill for 5-6 weeks with the severity and frequency gradually subsiding over this period.

If I get glutened by a whole loaf I will be ill for the same period with the same pattern of diminishing frequency and severity indeed its an alomost exponential pattern... most toxins follow the same pattern whereby they follow a half-life of expulsion each 50% of what remaining taking the same time to be expelled.

In my opinion I am less likely to suffer long term complications from a heavy glutening for 2-3 days once or twice a year than people who take chances on a regualr basis such as eating McDonalds fries...

All the available evidence points towards the long term damage being cumulative over time and being constantly or near constantly glutened so taking a risk every week eating out is likely to mean I'm rarely ever 100% gluten-free... if I get caught out by CC or some contamination only once every 6 weeks my body is ALWAYS fighting and stressing organs and glands.. If I get caught out 1-2 a year my body has a whole load of rest time to recover, my immune system and organs can settle into doing their normal job without being constantly stressed etc.

Of course I could try and only get CC's the same amount, probably it would be BETTER but by how much...????

My opinion having looked at the evidence is that 1-2 episodes a year or 2-3 days presents a much much lower risk than 9-10 episodes a year by taking risks like eating out or sharing a kitchen ....

Plenty people here share kitchens and get ill... plenty eat fast food on a regular basis where contamination is always a risk. Some people even use the same utensils, drink whisky, use shampoo's or take other risks on a regular basis...

It is my considered opinion that these people are risking their long term health far more than someone who eats gluten for 2-3 days only per year.

I didn't I said "I don't recommend this... " in which way is this telling people its OK?

There are plenty of threads here about McDo's fries, grain alcohol and spirits in general, low gluten wafers which will lead people to believe a little on a regular basis is OK. There are several posts where are simply outright lies such as all distilled alcohol is OK... (which considering some companies actualy say its not because they use wheat derived coloring doesn't even make this a debateable subject... yet they repeat time after time the same old lies and noone ever tells them I truly do not think you should be telling others it is ok. indeed it seems general practice here that they can answer a question with a factually incorrect statement and those whom disagree (by stateing facts and posting links to them) are told not to disagree.... and indeed these people then play a game of replying to every question on alchohol with "All distilled alcohol is safe", refuse to acknoweldge the links safe in the knowledge oif anyone posts contradictory factual information they will be told off. Hence my long absence from this board and its looking like another one now thank-you. (Would you like me to list names?)

"(Would you like me to list names?)", I believe you have done that in the past.

Wendy's actually has quite a few things that are gluten free compared to most fast foods.

Caesar Side Salad - no croutons

Fruit Bowl with yogurt

Spring Mix Salad - no croutons

Taco Supremo Salad

Chilli

Fruit Cup

Burger - no bun

Baked Potatoes

so does anyone know what brands of hand soaps DO contain gluten??

Off hand, I can't think of brands, but alot of the fancy soaps contain wheat and oats.

Char:

You know, the choice is yours to make. I can only assume how difficult it is to feed you daughter things that will make her sick.

I think a gene test would be the thing to do. And return to gluten free. I hope with this decision will relieve you anxiety.

You sound like a very good mom.

Thank you for this information, the title Campells made me read this post, this awful cold weather has got me in the mood for some soup.

Warm up with your two choices. I was disappointed in their list, but at least they have a list.

This is very confusing to me, so please excuse me if I don't phrase my question accurately.

I have lost a recognizable cognitive ability, most likely to malabsorption over the years. When I get accidentally glutened, I suffer more from neuro isses, such as strange gate, a deliberate concern in walking, fatigue, the shakes and speech problems including a very dry mouth.

Now to my question. As in a patient with heart problems with blocked arteries, the arteries can and frequently RE-ROUTE to allow the blood flow. I have seen this and it does happen. (not me)

Would it be possible, for the brain to RE-ROUTE, the damaged or white matter, to other parts of the brain to compensate for the lack of the other? If the heart can do this, why can't the brain do it as well.

To end my question, I have experienced some very strange things lately. (My spelling isssue have not be resolved, much to my regret)

Very curious about your thoughts.

Lisa

Thanks Jo.R for your reply. It's always nice to get an acknowledgement when you're posting something that will be helpful to some. It does not always happen. I think sometimes we need to brush up on our etiquette.

Well, I haven't been gluten-free for about a month. Even if it's negative I'm going to go gluten-free, I feel better.

APPLAUSE...coming from my house!

As promised, I will post (came snail mail):

Chunky Soup:

Chicken Broccoli Cheese 18 oz

Select Soup:

Savory Lentil 19 oz

Prego Pasta Sauce:

Traditional Sauce all sized

Three Cheese Sauce 26oz

Musthroom 4lb 3oz

Organic Sauces All

Swanson Broth:

Lower Sodium Beef Broth 14oz

RTS Beef Broth 14.5oz

RTS Chicken Broth 14.5 & 49.5oz

Natural Boodness Chicken Broth All sizes

Vegetable Broth 14oz

Organic Broths All

Swanson Canned Poultry:

Premium Chunk Chicken Breast in Water all sizes

Premium White and Dark Chicken all sizes

Mixin' chicken 5oz

All Campbell's Tomato Juice

All V8 Vegetable Juice

All V8 V-Fusion Blends

All V8 Splash Juice Blends

V8 Splash Smoothies:

Orange Creme all sizes

Peach Mango all sizes

Strawberry Banana all sizes

All Pace Red Sauces:

All Enchilada Sauces

All Picante Sauces

All Thick & chunky salasas

All Thick & chunky Flavored salsas

Organic Picante (mild and med)

..........hope that will put a brief bit of pleasure to gluten free munching.

Fritos are gluten free in the US.

Smilie:

Tell us about yourself and how did you finds all of us here?

What is you survey about?

What class are you taking?

What is you subject for you class project?

Thanks for posting that. What is the date of issue for this article. I gotta buy it!

Hey Lexis:

Europe is far more advanced than in the States regarding Celiac. Your dining options will be more available to you.

If I recall, there are several people from Italy and many frequent travelers. I am sure that they will post soon.

McCormick will list if wheat is included. I always feel comfortable with McCormicks when I read the ingrediences. You should be good to go.

Compliment gratefully accepted.

But what is Solgar 5-htp? Perhaps others will know.

I would like to sneak in here an add something.

We have had several doctors (who were celiac) post here and offered a great deal of medical support and guidance. They have spent hours here posting with no compensation other than supporting fellow celiacs with their knowledge.

Although, many of us have had very bad experiences with many doctors (myself included), I appreciate the ones that truly want to help. I share you frustration about not getting the answers needed for good health, uneducated on celiac and rude office staff. We've all been there.

Unfortunately, some doctors that have posted here don't stick around very long or go undercover. One doctor here continues to send personal messages to people with issues on their off time.

I would like to offer appreciation for that and offer them an environment that is encouraging. We're talking family here and all connected by common bond.

Ok, end of soap box.

Lorna:

Welcome to the Board. It is my understanding that once diagnosed with Celiac, you have it for life. It does not go away. You may have experienced some sort of odd remission, although, I have never heard of it.

Hair loss is definitely on symptom of celiac disease as well as thyroid disease, which also can be associated with celiac. I feel your concern. Hair loss can be very tramatic

My hair had thined considerable, but it appears to be growing out a little after being gluten free for a year and a half.

If you choose to be re-tested, remember to remain on gluten as for the tests to be more accurate. If you choose not to be tested, you can begin the diet immediately.

I wish you well in whatever you choose.

Hey, you can send him a bill for 50% of the cost. Don't let him get off that easy

Good for you Jerry. You're converting the world, one personal at a time.!!

How's your brother doing? Is he still trying the gluten free diet.

Lisa

momma goose youre hot!

Thanks, I'll pass that on to my two daughters!!!!!

I am not familiar with that. Sorry I cannot help.

If a product indicates wheat free, it is not a guarantee that it is gluten free.

My prediction:

Colts 27

Bears 20

Lisa

Zip, nada...After my biopsy I had to get on the internet to find out what Celiac Disease was.

I am not too familiar with Thyroid issues, but I do think that you may need some medical advice from your doctor. Yes, thyroid problems are common in people with celiac,