Lisa

Love your picture Mikey. Am I the only one old enought to remember?

Popcorn and popcorn oil are OK. The best selling toppings (Flavacol for one) are gluten-free but I can't guarantee you every place has them. In general, popcorn should be one of the safest things you can have.

richard

Stranger , we miss you.

Tavi/sally - - the name change always confuses me.....Tavi the bum, sounds exotic! R-ville never gets hotter than 85. Today - Fresno - we are 113, heat index 123, and outdoor burial in full sun. so......my post will be short.

I am just beat, spent, brain-dead, heat-exhausted......a very tiring day and tiring week. I had a huge epiphany at the funeral....do I have the stamina to share it now? It was not a happy epiphany...about how gluten ---> depression ---> mania robbed so many years of life from me, decades, really, as I felt tortured and sad even in early childhood.....and I hardly know soem of the people who've been in my life forever (like Grandma Rosie - my nieces' grandma, not mine - but I hardly knew my own either). I mean, I have been SO up and down emotionally and physically my whole life, and so over-drugged by every doctor.....malnourished.....mixed wtih occasional bouts of heavy alcohol consumption.....I just wasn't fully "THERE" most of the time wtih my family and many others. I caused much tension, trouble and worry in my family for so many years. They at times grow weary of me, yet have always been accepting and forgiving. They see all the difference now, and are telling my mom about it......but it was just this sad realization of how much I really didn't personally KNOW this tiny spitfire of a woman who died, because I was often too hyper to talk to her.....how dear she was and how little time I spent with her over the years, as I was either too hyper, too depressed......or drunk. Or absent entirely from family events, partying with a more lively bunch.....(I have the nicest family but I am quite different than they are - rather eccentric and very artsy and quite outspoken! Able to curb that mostly now, thank god, as was getting quite sick of self).

So, I got pretty sad, came home and collapsed......cool shower, down to the skivvies, lying on thte couch with the fan blowing.... sorry, TMI......

Oh SO sorry fellow residents that this is a sad post..... It will be better tomorrow. I do have the rest of my life to make up for lost time, I was BLESSED to find out the diagnosis at 44, as friends point out, instead of much later....I still DO have incredible, lifelong friends and some newer ones, and a family who loves me....I just mourn the lost years, and the damage control I am now doing.

Thank you to all of you who sent PM's and posted encouragement here...means the world.

and Meggan - - what a blessing. I don't even remember exactly the surgery she was having - someone please post. I know it was heart-related - - my little brother was the first open-heart surgery at our Children's hospital here - quite a stressor. I am SO glad it went well.

I think I'll be back to my old self tomorrow, carrying on the magical development of our wondrous cult farm. You guys are awesome, I know there are things I forgot to address tonight, but am SO tired and spent, will hope to have all my marbles back tomorrow....

thank you and bless you all. You add enormous entertainment to my life, daily.

Love - - -

Susan:

There is one thing that I have learned in my 51 years...........is that yesterday is gone and, as you said, when the sun rises in the morning IT IS A BRAND NEW DAY. Every day is a new start, no matter what yesterday gave you. Every 24 hours is a new start. Sometimes we don't take advantage of that.

Get a good night sleep, and tomorrow will be the beginning of a new day with perhaps, maybe a more confident Susan. That's up to you Babe. Love ya... Lisa

B:

The cubbord is empty. But will guzzel the h20. Gotta be clear of mind and keep up with the mischief in Rachelville

Lisa

So glad, sniff, sniff.

Lisa

Ok, well I'm suppose to be Mayor of Rachelville. What the heck is going on here. No issues, ok that's cool.

Lisa

Judy:

No more pills any more ..........for about 5 days. Scan back and see how I tappered off. Apparently, many recommed that it takes 4 weeks..........well, super woman that I am did it in two weeks.....crap.

I'm find during the day and feel very good, sort of revived. Around 4 or 5 in the eve., I get the dizzies. Turning my head too fast, or plain old turning my head. Very swooshy feeling. Clear of mind, not emotional, just swooshy in the eve. I assume this too will pass........Oh, the "shockers are gone" yeah. (check back posts on that one).

I know I will be ok. I do think that my posting can be helpful to people who are taking anti-depres. or any other SSRI's. It's good when your on it, but please consult a doctor before you decide enough is enough and choose to go off it. Please take is seriously. Comming off is not easy.

End of lecture.... Judy, just sent you a pm.

Lisa, I'll check in tomorrow.

Hah, Mrs. Mayor: Well, Rachelville don't seem to have any problems to deal with other than bats and spiders.

Do we need to call a public forum to discuss the need to bannish both or work with the arachnids and flying mammals. Shoot, we can have a spider farm and feed all the biting insects to them at a far end of Rachelville and by the time the flying mammals are out at night, we will be in partying with the best made gluten free pizza on the planet, and toasting the communion of all of Rachelville.

Gosh, I would like to be in Rachelville right now...........bla.

I feel like a druggie, though not. I don't feel bad, I just feel weird. Didn't want to do it in the first place. From now on, let everyone use their gut feeling about taking perscribed drugs.

Mrs. Mayor, heck, a walk in the park. What I do here is a pain the the buttox.

Glad to accept the Position.

Lisa

TWO WEEKS!!!! For real? I suppose now the next effect would be the crying and tears, which will totally freak Jim out. I wonder if sometimes these are medical advancements?

Don't like this feeling.

Lisa

My doctor is very aware of it. We did the 24 hour stool collection (boy, that was fun, pooping into a paint can) and it turns out that the volume of diarrhea I have is more than double the amount of the "high end" diarrhea volume numbers of most people.

How long has this being going on? Over a decade.

Also, when they recently did the barium test, the technician said I was the quickest "rapid transit" person he had ever seen, meaning 20 minutes waiting, got up on the table to take the second picture, and the stuff had already gone straight through me.

Prednisone did absolutely nothing to correct the problem. I go for the biopsy again on August 16th to see if there has been ANY villi improvement at all. We are hoping there is since the recent bloodwork numbers showed my antibodies at 13 - well within range.

Personally, I think my ongoing problems are a direct result of the collagenous colitis that we can't get under control, not the celiac disease, but I guess the results of the villi will give us a better understanding.

Also, I seem to be having more back problems and I have found a correlation between when my bowels are too full (of water and gas) and back pain. When my back is bad, it feels like something is pressing up against the nerve and I could barely walk, but after doing some postural positioning on the floor, getting things worked through my system, the running to the bathroom for the ultimate "explosion" with massive amount of water and gas, then I feel immediate relief not only in my stomach but also my back. So I am convinced that my bowels (or something else) is pressing up against my spine. I will talk to doctor about it when I go in on the 16th.

Now you know why he has labelled me as "refractory", but I haven't resigned myself to that yet......

Oh, the GI is the top GI specialist at St. Michael's Hospital, here in Toronto. Apparently, he's one of the best in the country...... I definitely am a mystery to him.....

That's what I love about you guys, I can always count on the people here for support and love!

Hugs.

Karen

Karen

For years I was suffering from cronic back pain, lower back. Then, I was dx with IBS and the DR. said that it was two things going on and unrelated. Don't go to him anymore. Since gluten free, guess what....no more back pain, unless big time glutened.

Don't know if that helped. You know more about all this stuff then me. But I hope you do better soon.

Lisa

Update and question:

It has been two days and the "shocks" are gone, but the light headedness, vertigo, or dizziness are very active in the early evening.

Anyone know how long this withdrawal from Lexipro will take.? It feels like when you are drunk, cross your eyes and sway you head around.

This is the pitts How long will this last? Any one know. PM me if you want to be private.

Yikes, Yuck,

Lisa

I can not tell you whether the products are gluten free, but I suspect that they are not. (or aleast most of them).

Vincent:

Thanks, and have been hopfully watching for every post.

Have you heard anything from Debbie W, from McD's House yet?

Lisa

Lisa--Andrea had the latest list of positions/jobs--a bunch of pages back. I'm Vice President, work in the design dept., and help Andrea with the teaching (specializing in the teenagers). I seem to be a lot more productive in R'ville than I am here in NJ!

Well. guess I'm well beyond the curve. I just can't keep up with , well just can't keep up. My life runs alot slower than the Rachelville posts...but I have enjoyed them.

Ok, been trying to follow the commings and goings of Rachelville

Who is the Mayor:

Who is on the City Council:

Who is the Town Planner:

Who is the Town Manager:

Who is the Sheriff (if one is needed):

Who is the Ag. Agent:

Who is the Town Cryer:

Who run the local newspaper:

Who is the Vet:

Who is the DR.: Rachel

Who runs the farmers market:

Who is on Geese Patrol:

Who handles the entertainment:

Who are the hunter and gatherers:

Who are the Farmers:

Who are the Dairy Farmers:

Ok, enough of that. I would like to know before I relocate. What would be year round weather be like, and how is the housing market.

Lisa

As you said, If you want to be tested, please stay on gluten or your results will not be accurate for Celiac.

August 4 is just around the corner. You can do it.

I will set my clock and be with you in spirit. xxoo

The dishwasher should do it's job.

Kraft will list if it is wheat, rye, barley...

You should be ok.

I would not use scratch up pots and pans, even if I was not celiac.

Ok Good Morning:

Up and about for about a hour and seem to feel so much better. The PM still lingers, as to the late morning sleep. I thought everyone got up at 10 .

Yesterday eve must have been the peak of withdrawal. Vertigo seems to have left, headach gone for now, and zaps don't seem to be around. So it seems like I am on the back side of this.

Let me try to answer some of your questions:

Dr. put me on lexipro soon after dx, which I was very resistant, since my daughter was put on paxil and did not like what I saw. Started with 5mg and it seems to make me bla, and felt that it took my personality away....just feeling dull. So he said try 10 mg and that seem to make me feel calm and peaceful. I grew to like that (considering hubby is very high strung and hyper, retired and always around )

After a year, after the wedding, I thought that it was time to stop, since I had a handle on the diet. But, most importantly, my insurance would not pay unless I used their mail order service, which would be difficult. I could not get a refill until my previous was out. It would not guarentee an uninteruped service.

So, I started to half my 10mg to 5mg over a period of maybe two weeks, then every otherday, then I had no more about 5 days ago. It took about 72 hours for the withdrawl effects to start.

First feeling very achy from the waist down...legs just ached. Dizziness started, then the shockers (thanks Judy for that Info), with a bad headach, contact lenses and eyes were very cloudy. Yesterday, I layed on the bed without even watching The Young and the Restless (I have to keep up with Karen). Just plain quiet was nice.

So, today it's appears to be much better. And just knowing that there were so many people looking out for me, I and sure that it speeded my recovery.

I'm not sure what the days will bring. I guess I have to learn about how I will be without lexipro. I would recommend that those who are considering going off, discuss it with a doctor before, as I never expected the response that I experienced.

Thanks guy, how comforting to know you all are there. I'll check in as the day progresses. xxoo

Lisa

Boy you guys get up early. Tyl PM has done a great job. After breakfast, I'll be back. Thanks for checking in. Back soon.

Lisa

Love all your post, all my best budds.

Zipp out tonigh. Check in the am.

MAYOR, howly cow, I have enough issues here. Maybe Rachelville, won't have any issues.

Sweet dreams all. See you in the am.

Lisa.xxoo

THE MAYOR: Well, Karen, that is an elective post. Consult your constiuents. But remember,I am a bossy Biach.

No, the sensation is with a lack of terms "a little electrical small zapp" , not hot, just a buzz feeling.

A small electrical tickle

Good to know all my girls are here, as well as a good lawyer. (just in case)

Feel better now that I am home. I told every one that I had a a very bad head cold, and as much as i enjoyed it, I should go home. bla bla bla

The sensation is soooo weird. I feel that there are little jolts all over my body from time to time. I wonder if I could lite a litebulb

Everyone has been so helpful, as I was a little, well alot freekin out about what was happening.

Last night I had the most vivid dreams that I could not even dream about relaying...but so very much disturbing. It still creaps me out in the day time. Terrible things about family and stuff. oooh.

If this is what controlled drugs do............adious for me jack.

Patti. Jim is here and I made him read some postes. He fusses, but, first to be there when I am in need. Don't worry about that.

(This is so weird, my body feels like there are little firecrackers, without the heat, just the pop, in mu muscles)

My better thought is that I will reget this post when I wake up in the morning.

I apparently made a mistake on going off Lexipro too fast. Maybe my unfortunate experience will help some one else. It was wonderful when on it.........apparently, hard to get off.

As I usually sign off, and going to bed: to Patti, Karen and Bronko and the rest of the world, thanks

and everyone else........

......when I come off Lexipro, can I come and visit Rachelville.?

Good Night, Love you guys. Talk to you in the am.

Lisa

I google "going off Lexapro" and this is what I got:

Open Original Shared Link

It talks about several of the things you mentioned.

Hope this helps!

Holy Cow, after reading your site you posted, I know where I am. Thank goodness tomorrow is Monday, and I can call my doctor. It is so strange that parts of my body are :jumping" It's something that I can't explain.

I think that a Tylenol PM might help. Who knows, I have never been here before.

thanks for your research, I own you one.

Lisa, I don't know anything about Lexipro, so I don't know if that's what is causing this. I am worried about you--are you home alone? Is your husband there? I would call my doctor and see wht he/she says. I know it's Sunday, but I think you should get a professional opinion.

Hopefully someone familiar with the drug and it's side effects when weaning off will see this.

If not, please call the doctor

I'm ok. I had to go to dinner around the corner, short but sweet. I will explain to them later, or tomorrow.

I tried to step down from the Lexipro from 10 mg to 5 for a week and then one 5mg every other day........well that didn't seem to work.

I truely can't imagine going off drugs like coke, or crack..........

Would a Tylnenal PM help me tonight to sleep.

Have to be at someones house for dinner, but I bet it will be short one for me. Be back soon. Yeah, worried about me too.

Lisa