Lisa

Our thoughts are for our friends in Boston and for those injured. May retribution be quick.

Hi.  I'm not sure whether hair spray would contain gluten, but  nasty fumes yes.  I hate anything unnatural on my hair. I would look much younger if I would color my hair...but I have earned every one of my grey hairs.  And I'm pretty sure that eye drops would not contain gluten.  Just the nature of the product would indicate that.

Taking perscribed meds and suppliments can have an interaction.  Recently, a suppliment affected my eyes.  I stopped and back to normal.

Hope your upcoming biopsy is great!

Are you stating that Torani's website is out of date? If so, what is your source?

 

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I  am stating that caramel color and vanilla flavoring are not a gluten concern any more.   If you review the thread, you may find some valuable information that you seek.

EDIT:  Peter provided some relevent links, while I pondered my reply.

I found on Sonics Site their Allergen Menu, basically nothing is safe and as the grills and everything are not cleaned in between you risk cross contamination.

 

Source: Open Original Shared Link

Thanks for the update bbop and welcome!  Sonic is the least of all places I would stop, even for ice cream. <shivers>

I have been having multiple celiac symptoms for going on 2 years. My labs according to my family practice doctor are negative for celiac. She sent me a GI doc in order for him to further evaluate. After my endoscopy he came out and told my husband that it looked very suspicious for celiac disease. However, he only took one biopsy which the pathologist made no note of villi or celiac. So I have been told this is just reflux. Since then I have been on Nexium and had my gallbladder removed yet my symptoms remain. I need a good doc who will listen and take the recommended biopsy so I can get a true diagnosis. 

Many people here are self diagnosed and feel quite comfortable with their choice, and don't feel the need of an  " official diagnosis".

Were you gluten free at at the time of testing?

You can remain on a full gluten diet (if you are not already) and be retested, or go full gluten free and document your results. Positive dietary results can be considered diagnositc as well.

Here is a contact for Rocket City, who can help you find a doctor:

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It's always hard to know, or recognize a glutening in the beginning.  Salad are hard to digest. Cross contamination could be an issue.  Dairy can be problematic.  Or, maybe you are not healed.   And sometimes, we just never know.

Sorry, I'm not too much help.

Not knowing your work environment...could you bring in a personal microwave?

I was a bit careless yesterday, and for the first time in a long time something rose up and bit me    I am really miffed with myself because who needs to feel like #*&T when they could be out having fun

Hope you feel better today. xxxooo    Today is tomorrow. Feel beter  Mushrooms!

Hi Tamber, again.

I just wanted to say welcome again, and it's okay to want to cheat. And one cheat will no kill you, nor another cheat. I know many people in my small town who cheat, although diagnosed.  It's all about choices.

When I do get careless, it takes a day out of my life, listless on the sofa and I'm confined to home ( and I suffer less than others).  AND, why waste a day and why waste a day of good health.?

Go for the good stuff and live well.  And you know, what's right for you.  I am confident you will choose wiselyl  You will make the right choice.

I suppose I get enough gluten through unaware cross contamination.  Adding to that, just doesn't make sence.

I just wanted to repost this. It looks as though this is an example like Peter was looking for. It isn't "hidden" in that they clearly state on their website that these flavors contain gluten, but you'd NEVER know if you only looked at the label. So, on the label, it is hidden. It may be rare, but it does happen.

That is old information, and their website is out of date.  Caramel coloring/flavoring and vanilla flavoring  are no longer considered to contain gluten.

We just called Kraft because I've been sick for the past 3 days after eating Kraft cheese. My husband spoke to them and they told him it is NOT gluten free. They said IF the ingredients show 'Color' or 'flavor' or 'Spice it' could contain trace amounts of gluten because they get those ingredients from another source.

..and that would be a clear violation of the law.  If wheat is used in a product, by law, it must be listed on the ingredient listing or allergin statement.  Kraft had a great policy and lists all forms of gluten.  Perhaps, you contacted an uninformed customer relations representative.

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Is not the same thing as udis . After all that work making gluten free meals, I was eating wheat bread!

Not to sure I understand...Rudi's makes gluten free bread.

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Of course it would be listed in the title and ingredients - Chocolate malt milk - milk, cocoa, cane sugar, malt flavor or just malt

 

Malt/barley are not listed on the top eight allergins.  Any disclosure of barley/malt is volutarary at this time..  Perhaps we are mis-understanding each other Kareng.

... chocolate malt flavored milk. That would be a no- no but the malt would be listed in the ingredients.

...but malt is not required to be listed, if an ingredient. Any listing or disclosure would be voluntary at this time (unfortunatly).  Best to call the company to verify.

How were you tested for Celiac Disease? This is the test ( full panel ) that you should have been tested for Celiac:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

Although other food intolerances are common, often times it's only discovered when gluten is totally removed from your diet.  It does sound like you were allergy tested.  Celiac is not an allergy, rather an autoimmune disease. And it's offen is triggered by an illness, stress, pregnancy, etc...

Oh ....and Welcome!

I've been gluten free for almost 2 months and some symptoms have subsided. However, I can only eat one solid meal a day. I'm still relying on bananas and boost to keep me going. I know my intestines are in ruins and it will take time for them to heal. Anyone else in the same boat? If you were and have gotten better, how long until you could resume a normal diet?

After two months gluten free you should be feeling some relief (although I don't know your history in your previous posts).  Review your diet and keep a food diary.  Have you checked your meds, shampoo, lipsticks, or do you share equipment in your kitchen.

Begining a full gluten free diet is not as easy as some assume. It can be pretty complex and the learning curve is steep.  And a non balanced diet, is not good, as well.

You should eat meats, fish, fresh veggies, and fruit.  Potatoes and rice are good too.  Any simple product is good (ie. one ingredient).  And make sure no gluten gets past you.  Good luck and hope for a more rapid recovery.

Yes you should be cautious, probably more so since your daughter does not show obvious signs of a reaction.

If you are just starting out, I would recommend Gluten Free Shopping Guides such as Triumph Gluten Free Shopping Guide or Cecelia's Gluten Free Shopping Guide.  Both can be found here at the Gluten Free Mall.  They are published annually and they will get you started on safe products.  But, please note that products can change their ingredients without notice, so do not depend on any listing for any extended period of time.

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Hey I am wondering if there is a healthy version of Worcestershire sauce out there. I am making a liver pate that calls for it but all the brands had a lot of HFCS and mystery ingredients like "natural flavors". Well I couldn't find a good one so I'm going to sub Organicville BBQ sauce in the recipe. But for future reference it could be good to know, thanks!

I'm not sure what you criteria is for "healthy" worchestershire sauce is, but Lea & Perrins is gluten free (In the US - not in Canada, unless ingredients have changed).

(Posted the same time as Karen, but she's quicker on the draw than I )

This is the FULL spectrum of serological tests you should have had,  They talk to each other, so to speak:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

With a positive biopsy and fatigue, vitamine deficiences and unexplained rash...  all  point to Celiac Disease.  The genetic testing will only tell you that you are in the 30% of the general population that MAY or May Not, at sometime in your life develope Celiac.  And yet, it's also a piece of a puzzle.

Beging the gluten free diet, is also diagnostic.  When all your testing is exausted, begin the diet and document you recovery.  But, I suspect, you are a member of the club already.     Welcome.

Yes,  let them know that you require a gluten free meal option, when you make your reservation.  I would also suggest that you have some snacks with you, in case there is an error.  Or buy something after you have passed security.

Hey Pam and Welcome!

Eating simply will help you recover more quickly. Meats, fish, fresh veggies, rice, potatoes, and fresh fruit.  Season with salt and pepper.  Shop on the perimeter of the store and stay away from processed foods, for now.

As you feel better, add more items to your menu, one at a time.  Avoid dairy products for a while until your body heals (it can cause you the same issues as gluten)  Dairy products can be added back sucessfully later.

But, to your question.  It depends on the level of your damage to your intestines.  If you caught it early, you may experience a quick recovery, if not , a delayed recovery.  But a full gluten free diet is required, so be dilegent.  And good days are ahead of you!

Feel free to ask any question.  And, again, welcome to the Club.!

Wow! Sixteen subjects. How did they get so many? Seriously, that is not a big enough sample to convince me of anything.

Do you have a link to the actual article that you can share with us?

Perhaps not Peter, but I found it interesting.  And pleased that ongoing research is paving the road for all of us.  Sometime, small successes make large impacts.   I would also like to see a link to the study.

Most jarred saurkraut sold in stores has gluten in it - or at least I remember being really disappointed 9 months ago when I had to get rid of mine because it had gluten, and then being even more disappointed when I couldn't find a safe brand... I haven't rechecked that though. 

 

Red cabbage is often contaminated too - I have a jar of Kiihne red cabbage in the fridge for hubby that has glucose-fructose from wheat (according to the label)... no idea if that's safe but I chose safer rather than sorry.

 

Hope you feel better

I have never seen jarred sauerkraut that contained gluten. Generally, it's just cabbage, water, salt, juniper berries and carraway seeds.

I think they sometimes inject a gluten water mix to give you a nice moist product.  Beware.

 

Diana

I have never seen an unstuffed turkey that contained gluten of any form.  Why don't you contact the producers of Perdue or Jenny-O (for example) and get back with us about your theory?

we ate a frozen turkey a few weeks ago. only salt and pepper on it. My husband started feeling weird right away. my daughter- age 10- had brain fog all night and could not add or subtract simple problems. then husband had full blown gluten symptoms. lasted for 3 days!! it was awful. I called the store and the plain frozen turkey had gluten in it.  so...gluten could have been in the actual turkey for you, not the stuffing!

I have NEVER met an unstuffed Turkey that contained gluten.  What brand was it? What store was it?

Perhaps you were mistaken as to your husbands source of gluten.