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Lisa

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Everything posted by Lisa

  1. I will agree with you that the diagnostic envelope for Celiac Disease is far too narrow.
  2. Hi Alicia and a BIG welcome. If we can help you in anyway...just let us know.
  3. https://www.celiac.com/gluten-free/index.ph...mp;#entry558863
  4. Regarding the gene thing: Open Original Shared Link Genetic testing for celiac disease Celiac disease is a multigenic disorder associated with HLA-DQ2 (DQA1*05/DQB1*02) or DQ8 (DQA1*0301/DQB1*0302). HLA DQ2 is expressed in the majority (>90%) of those with celiac disease and DQ8 in about 8%. The expression of these HLA-DQ2 or DQ8 molecules is...
  5. Here is a listing of a few. All distilled alcohols are considered safe: https://www.celiac.com/articles/222/1/Glute...ages/Page1.html
  6. Hi George, Here is some information on gene testing: Open Original Shared Link Genetic testing for celiac disease Celiac disease is a multigenic disorder associated with HLA-DQ2 (DQA1*05/DQB1*02) or DQ8 (DQA1*0301/DQB1*0302). HLA DQ2 is expressed in the majority (>90%) of those with celiac disease and DQ8 in about 8%. The expression of these...
  7. A customer service rep could answer your question.
  8. Thanks for the heads-up on the label change. Products that are processes on same equipment, do not necessarily contain gluten. Most lines are washed and sanitized between runs. What they are saying, with this disclosure, is that there MAY be some minute traces of gluten. We are finding more and more (due to liability) that many products now are not...
  9. Some people here do not handle Lays products well.
  10. Or your could type in a product and gluten free (ketchup - gluten free) and for the most part, you can find an answer. Life is easier than it used to be a few years ago.
  11. I googled www.butterball.com Open Original Shared Link Do Butterball
  12. Here is something cool. We use it around here because it's bomb-proof and bug and moisture resistant. IPE is a wood composit. You can also get it in simple planking: Open Original Shared Link
  13. Open Original Shared Link
  14. This is the blood panel to request (demand) from your doctor: Open Original Shared Link Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. What are they testing for? "inconclusive" for what?. Also demand an endoscopy exam which...
  15. https://www.celiac.com/gluten-free/index.ph...c=61479&hl= ............ The percentages of people with Celiac, having GI issues as primary symptoms, is relatively low, oddly enough. With over 200 symptoms, chronic fatigue is common in it's association with Celiac Disease, as it is with other illnesses. Open Original Shared Link Exclusionary...
  16. Open Original Shared Link There are also several conditions which may yield false negative antibody results. A false negative means that the patient actually has the disease, but the test result is negative. One of the conditions that may give a false negative result is Immunoglobulin A or IgA deficiency. If a patient has a low total IgA level, the antibodies...
  17. The percentages of people with Celiac, having GI issues as primary symptoms, is relatively low, oddly enough. With over 200 symptoms, chronic fatigue is common in it's association with Celiac Disease, as it is with other illnesses. Open Original Shared Link Exclusionary Conditions; Chronic fatigue syndrome can resemble many other illnesses, including...
  18. Does this sound familiar?: Open Original Shared Link
  19. Have I missed talk of a new Queen (three pages ago)?
  20. I would certainly take the Celiac Blood Panel again. This is what you should request from your doctor: Antigliadin antibodies (AGA) both IgG and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. Some people here have order the stool test from Enterolabs. Although, Enterolabs...
  21. Nikki, It would be a good place to start with the Celiac Blood Panel (not sure what test your dr. ordered): Antigliadin antibodies (AGA) both IgG and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. There is a great deal of information here. Take a walk around.
  22. Jolienej, This is the test to request from your doctor: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. Take a walk around this site and see if you find anything familiar.
  23. It certainly could contribute to the inconsistencies. Children can heal quickly. How did your son do on the three week gluten free diet. A positive dietary response is part of the puzzle.
  24. Thanks for posting this updated list. Panera is always one of my favorite stops.
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