Lisa
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Latest Celiac Disease News & Research:
Everything posted by Lisa
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ARCHIVED What Tests Should I Have Done For Celiac?
Lisa replied to SLB5757's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is the panel that you should begin with: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. (you should remain on a full gluten diet for many weeks to aid in it's accuracy) Unfortunately, testing is not as accuracy as we would like... -
Kristyn, I am not from Rocky Mount, but I'm not far. Do you have a Food Lion, if so they have a health food section which carries Pamela's Cake Mixes. Make them as you would a regular cake and I would dare anyone to tell the difference. Pillsbury Frosting often has gluten free choices, you just have to read the label. Wal Mart has many options for...
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ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
Lisa replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Hi Oscar! All though surprised, it's good to see you here!!! You must have some time off from your usual activities. Have fun with the Sillies!!! Congratulations Patti on your Queenship! -
ARCHIVED Anyone Tried Enterolab?
Lisa replied to prayin4achange's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Open Original Shared Link You might find this link informative. It's more current than the 2004 post you mentioned. Here is some information on testing: (the serologic blood work is faily inexpensive) Open Original Shared Link Welcome Jenn. I'm sorry but I don't have any experience with Enterolabs personally. Good luck! -
ARCHIVED Gluten Free Cupcakes
Lisa posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Carolina Cupcakery - Dessert Cafe, in Chesapeake, Virginia is my new find (and friend) I recently has some personal experience with them, when they donated their products and their time to feed thousands of people for an Extreme Makeover: Home Edition project in our area. Not only did they supply many of us with gluten free cupcakes daily as well... -
ARCHIVED Reese's Whipps
Lisa replied to CeliacMom2008's topic in Gluten-Free Foods, Products, Shopping & Medications
Hershey will NEVER disclose the source of their "Natural Flavor". It appears that it's more important to them to protect their suppliers, than the millions of consumer who purchase their products. I will not buy Hershey. (my apology to CeliacMom2008, for my attitude, but this has been an ongoing issue with Hershey. They are very unsupportive... -
ARCHIVED Question About Raw Honey
Lisa replied to julirama723's topic in Gluten-Free Foods, Products, Shopping & Medications
Here's my unexpert thoughts... Since people react to the "protein" found in wheat, barley, malt and rye. I would think that it should not be a problem to be associated with wheat dust. Perhaps during harvest time when the wheat hulls are disturbed, and if it were to "float" into the honey, it might be an issue. People with a wheat allergy, I would see... -
That is always a personal choice you should balance, given the fact that should you have Celiac Disease, this diet is for life. I woud urge you to see a doctor. Internal bleeding is not something to take lightly.
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Welcome! Before you begin the diet, in earnest, you might want to be tested. You should remain on a gluten diet for the optimum in accuracy. This is what to request from your doctor: Antigliadin antibodies (AGA) both IrA and IgG Antiendomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level.
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ARCHIVED Do I Really Have Celiac?
Lisa replied to alliecr's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Don't worry about the diet, we can walk you though it. Could you post your blood work information, and someone can help interpret it. Accuracy in testing is not where we would like, but we have to deal with what we have. Your doctor is correct, biopsies can be hit and miss regarding giving your a conclusive diagnoses. And blood test rarely show false... -
ARCHIVED Heinz-gluten-free
Lisa replied to Roda's topic in Gluten-Free Foods, Products, Shopping & Medications
Super list, even to include our international friends. Thanks -
ARCHIVED Trying To Figure Out Intolerance Vs. Sensitivity
Lisa replied to nw0528's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Nicole, You might be interested in this: Open Original Shared Link -
ARCHIVED Biopsy Results Are In.....
Lisa replied to Sierra's Mommy's topic in Parents, Friends and Loved Ones of Celiacs
You're a super mom, with great instincts. Excellent work! -
ARCHIVED Sprueberg-- A Gluten Free City
Lisa replied to Lisa16's topic in Introduce Yourself / Share Stuff
This reminds me of an utopia community we had here once, a very long time ago. It would be nice, wouldn't it. I think I would like to live several (many) blocks away from the largest per capita number of public restrooms though. -
ARCHIVED Wonder Why You May Be Reacting To Some Wines?
Lisa replied to Mike M's topic in Gluten-Free Foods, Products, Shopping & Medications
<sigh> I was referring to the several links that were provided by me. I am truly sorry about your misinterpretation! -
I'm so jealous!!!
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Ditto on this answer!
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ARCHIVED Wonder Why You May Be Reacting To Some Wines?
Lisa replied to Mike M's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link Commercial yeast is a by-product of the whisky distillers. If you are a yeast producer your by-product will be methylated spirits. -
ARCHIVED Wonder Why You May Be Reacting To Some Wines?
Lisa replied to Mike M's topic in Gluten-Free Foods, Products, Shopping & Medications
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ARCHIVED Wonder Why You May Be Reacting To Some Wines?
Lisa replied to Mike M's topic in Gluten-Free Foods, Products, Shopping & Medications
Mike, I'm not trying to be a pain, but(t).. Before everyone freaks out because they think all wine is contaminated, would you kindly list your sources for this information. I also noted that you said "In my opinion", in the first part of your statement. It's common practice here to research and post support documentation when making speculative... -
It's highly unlikely, in my opinion, that bandaids contain gluten. Reactions to latex or the adhesive are common though. Some one could contact Johnson & Johnson and put an end to this legend.
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ARCHIVED Help! Newly Diagnosed 6 Yr. Old. Some Questions...
Lisa replied to Sierra's Mommy's topic in Parents, Friends and Loved Ones of Celiacs
I still do not understand what you keep refering to as lesions? That is not a term used here. The most severe stage of Celiac Disease is called Refractory Sprue. Are you refering to Intestinal Lymphoma? -
Blaaaah (throw-up sound) Can you find any documentation for that. Egg, being one of the main allergens, could make it critical for some, if undisclosed and that would be required by law. I find it hard to believe.
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ARCHIVED Help! Newly Diagnosed 6 Yr. Old. Some Questions...
Lisa replied to Sierra's Mommy's topic in Parents, Friends and Loved Ones of Celiacs
Woody6, May I suggestion something? I would suggest spending some time walking around this site. It has some very valuable information that you might find interesting. Celiac Disease is not as black and white as you seem to understand. Benefit from the years of experience found here. You might find it enlightening. A review of our Board Rules... -
ARCHIVED Help! Newly Diagnosed 6 Yr. Old. Some Questions...
Lisa replied to Sierra's Mommy's topic in Parents, Friends and Loved Ones of Celiacs
"only ONE gives the lesions on the intestions....." Lesions? That's new to me. Is there another reference that might be more familiar to me? "There are no false negatives with the Celiac Panel Blood Test. A positive Celiac Panel Blood Test means you have one of the 3 types of celiac. "