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Claire

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Everything posted by Claire

  1. Claire
    Oh you lucky people! You can eat gluten-free bread . Whole Food does make good bread. Others too so I hear. I cannot eat yeast - so there goes all the breads - except - I just found Kinnickinick yeast free Tapioca and yeast free rice breads. It is not too good cold but heated slightly it improves. However it makes very good toast - toasting it frozen...
  2. Claire

    ARCHIVED Would You Believe?

    Claire posted a topic in Doctors

    Today I had an appt. with a GI specialist (new to this area - formerly with NIH). I was uneasy because my GP had written what I considered a prejudicial referral. I did as I always do when going to a new doctor - I wrote up a case history - not too long but thorough. I filled out the required office forms and then included my history. He sat down and...
  3. Claire

    ARCHIVED Cure For Celiac Disease!?

    Claire replied to bobhayes1's topic in Doctors

    Buyer Beware! Celiac is a genetic disorder. There is no cure for a genetic disorder. Someday there may be a valid and safe intervention but at this time the gluten free diet is the one and only way to go. Claire
  4. Claire
    Here are some recent Celiac stories: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Nothing earth shattering - but not too shabby. Celiac is beginning to be noticed. Even if they don't get it all right - it is better than silence. Claire
  5. Claire
    If foods are regularly in your diet there is no need to eat them prior to the test. Antibodies hang around for a long time. Claire
  6. Claire
    Hi again - I think they probably would but I would still suggest some reading on the threads here to get a feel for your subject so you can put together an appropriate survey - one that isn't too log=ng and perhapss asks provocative questions - the thing that will make your project stand out. Don't forget - there is humor even in disease - and this one has...
  7. Claire
    Hi Betty - Perhaps you are expecting too much too soon. It took years for your body to get so messed up. It will take time to heal. Symptoms will not disappear right away. Food intolerance - especially dairy - may be at fault. Most celiacs have some - even many - food intolerances. These can make you every bit as miserable as the gluten reactions. ...
  8. Claire

    ARCHIVED Osteoporosis

    Claire replied to Jen H's topic in Related Issues & Disorders

    Most insurance companies cover the scans once every two years. The reason for that is because none of the drugs being given produce measurebale results in the short term. I know a lady who is taking the most aggressive bone building program there is - regular injections plus meds. She is only being scanned once a year. There was no additional bone loss...
  9. Claire
    Hi Gant - Suggestions for you - first that you sit down, take a deep breath and write an outline of what you want to accomplish - what SPECIFIC things you want to know. Then use the search feature on this site to followup on the specifics - e.g. symptoms - tests - foods - doctors - specialists - about gluten - etc. Celiac is a complicated subject ...
  10. Claire

    ARCHIVED Autoimmunity

    Claire posted a topic in Related Issues & Disorders

    This entire site is very good. I have just used this excerpt for a teaser. Claire AUTOIMMUNITY Autoimmune diseases are strongly associated with wheat gluten -- Celiac Disease is just one of many such autoimmune diseases. Roughly 10%-30% of general autoimmune patients are also classic Celiacs. As much as a third of autoimmune patients have...
  11. Claire
    Celiac is not forgotten. Here are some recent news stories. Claire DIETARY NEEDS ARE TOP OF THE MENU DOCTOR'S ORDERS Open Original Shared Link DISEASE AFFECTS ABILITY TO CONSUME GLUTENS Green Bay will host convention on Celiac Sprue Open Original Shared Link CELIAC DISEASE AT A GLANCE Open Original Shared Link GETTING AT TRUTH OF FOODS...
  12. Claire
    These sound like good ideas for children. Any ideas to help an adult losing weight rapidly? I am Gluten-free Casein-free and cannot eat soy in solid form, cannot eat most fruits except in very small quanitiy - no fruit juice except in very small quantity. I can't seem to find any food - that I can eat - that has any calories. I eat well and healthy...
  13. Claire
    I am casein free because of the similarity between the wheat protein gluten and the milk protein casein. I have an ataxia - gluten effects ataxia regardless of the cause of the ataxia. The immune system attacks body cells that resemble (at the molecular level) the ingested reactive food. Thus the immune system attacks the brain cells - which are similiar...
  14. Claire
    Hi again - Note this paragraph: "Peptide fragments and amino acids cross the epithelial cell membranes by active transport. Inside the cell they are broken into amino acids that then enter the capillary. Gluten enteropathy is the inability to absorb gluten, a protein found in wheat." I have not heard the gluten enteropathy stated this way! The body...
  15. Claire

    ARCHIVED Zonulin

    Claire posted a topic in Related Issues & Disorders

    The Zonulin research is of interest not only to Celiacs but to anyone with the intestinal permeability problem. Claire Open Original Shared Link
  16. Claire
    Thanks. Shared this with a newbie to gluten-free - not celiac but lupus. She is overwhelmed as all newbies are. This site looks helpful. Claire
  17. Claire
    How fortunate you are! I know how disappointed I am every time I luck out - again. An answer is a blessing. Maybe I need a trip to NE - lived there for many years before coming to PA. So glad for you. Claire
  18. Claire
    I toast it frozen. Works real well - no breakage. I have to use the yeast free variety but it makes amazing toast. First yeast free bread I have ever found that was worth the time to unwrap it. Claire
  19. Claire
    I am so pleased when a post is helpful to someone. Thanks for telling me. Yes I do have ataxia. I have both gait and balance problems. The gait problems particularly have been worsening over the past three years. I cannot maintain a straight pursuit - rather veer off to the left and have to keep righting myself. I don't exactly go where I intend to go...
  20. Claire
    You might check these out. Claire Gluten sensitivity is an important cause of apparently idiopathic ataxia and may be progressive. The ataxia is a result of immunological damage to the cerebellum, to the posterior columns of the spinal cord, and to peripheral nerves. We propose the term gluten ataxia to describe this disorder. Open Original Shared...
  21. Claire
    Hope the following will be of help: Causes of Leaky Gut Syndrome / Intestinal Permeability • Chronic stress • Intestinal infections • Small intestine bacterial overgrowth • Environmental contaminants • Excess alcohol • Poor diet • NSAIDS and other medications Testing The standard test for leaky gut syndrome is the mannitol ...
  22. Claire
    UltraClear makes several highly recommended products. As for the Leaky Gut - you definitely do not have to have celiac disease to have this condition. I have had the LGS for many years. I do not have Celiac. I may or may nnot have gluten sensitivity - not tests results on that. With LGS you become increasingly more intolerant of food until almost everything...
  23. Claire
    I had the test several years ago. I will be having a new test in a couple of weeks. Glutamine is said to be the best 'gut' healer. It worked for me but I am no longer allowed to take it so I will probably have problems again. Claire
  24. Claire
  25. Claire
    I am repeating myself here but will offer this suggestion again in case it was missed. I have mulitple food intolerances. When I went totally gluten-free last summer they bloomed like summer roses! I was really having trouble eating much of anything. I have recently started isolating foods - eating often but one type of food at one time and allowing...
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