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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I think you need to ask your GP for the complete celiac panel. Kids can test out differently especially toddlers. The DGP is better for some unknown reason. You can google that and take it to your doctor. I only had the DPG IGA come back positive yet I had moderate to sever intestinal damage. It is how I yest even on follow-up testing! My TTG tests...
  2. cyclinglady
    A new Crockpot. My current one is about 30 years old!
  3. cyclinglady
    You can check out our "What is for dinner?" thread which contains lots of ideas. Think simple though! I have pork with green chiles in the crockpot. I will shred it and serve it as tacos. The leftovers get put into the freezer in little freezer bags. We have tacos about once a week. My family can prepare them when I go to orchestra practice. I cook...
  4. cyclinglady
    Those Fritos brand chips are safe -- but they are junk for anyone (yes....I buy chips.....) I purchase corn tortillas that say gluten free, but no mention of how they process them. This is when you call the company directly and ask (or ask here but the response could be slower). I live in California and I know from calling that those tortillas are...
  5. cyclinglady
    Sorry you are sick! Your gut is damaged and processing many foods is going to be hard for a while. I bet one of those gums is bothering you. It may be all or one. I found in the beginning that xanthan gum set me off. It never bothered my hubby who had been gluten free for 12 years. It was just a "me" thing (intolerance). I switched to products with...
  6. cyclinglady
    It is normal to grieve! Going gluten-free is hard but it gets better! You are not alone! When you get a moment to yourself, sit down and make a plan. You have to create a safe environment and lay down the law at your house. your kids need to be tested. All first degree relatives need to be tested. Check out the University of Chicago's celiac...
  7. cyclinglady
    There are over 300 symptoms of celiac disease. Best bet is to get a celiac blood panel. Your child must be consuming gluten daily 8 to 12 weeks prior to the blood draw in order for the tests to be accurate. If the rash is DH it needs to be biopsied. Read our DH section as DH is tricky to diagnose. Welcome to the forum!
  8. cyclinglady
    Yikes! I would find another doctor. A positive is a positive! Not every test on the celiac blood panel needs to be positive. I tested positive on just one and yet biopsies revealed moderate to severe Intestinal damage. Here is the complete list for the celiac panel. You could ask for it or get another doctor to run them: -Tissue Transglutaminase...
  9. cyclinglady
    Unless you are on your way to becoming a Type 1 diabetic (autoimmine, adult LADA), you can prevent or delay full-blown Type 2. I would recommend reading Blood Sugar 101, a nice website that explains diabetes, all the types, testing, etc. I guess if your doctor messed up on celiac testing, I would not place much faith in his abilty to manage diabetes...
  10. cyclinglady
    Ugh! I wrote a huge post, but the forum went down the other night. Anyway, in a nutshell: Could be your thyroid. When I was hypo in my 30's, I never had heavy periods or flooding. My thyroid antibodies were as high as 4,000 never dropping below 2,000 back then. I never gained weight either....go figure. This only occurred (flooding) when I was...
  11. cyclinglady
    Looks negative to me (you have to use the range your lab provided), but.....your doctor should have told you that you should have been eating gluten daily for 8 to 12 weeks prior to the celiac blood test. On top of that, you were only given the screening TTG test which catches most (about 95%) but not all (folks like me!) here is a link to the University...
  12. cyclinglady
    Always, always get copies of your lab results! Check your hemoglobin and ferritin (iron stores). When I was severely anemic I could not catch my breath. You could ask for other vitamin and mineral levels too, so that you can supplement (gluten-free of course). Mostly you need time.........to heal.
  13. cyclinglady
    The alignment of your test results (posting) is off, but I think your score was a 40. That appears to be positive. Why would the GI say not to come back?
  14. cyclinglady
    Just clean your raw produce to wash off bacteria, fungi and the extremely rare risk of gluten and you should be safe. Nothing in life is 100% and that is why I stated "should be", but we have never been glutened by raw produce purchased from any supplier. We have been at this for 14 years! ?. . I would worry more about bacteria from raw produce over gluten...
  15. cyclinglady
    Give yourself months to a year! Nikki gave you excellent advice! Be sure to talk to your doctor about your breathing problems. Has anemia been ruled out?
  16. cyclinglady
    The TTG and the DGP tests are pretty specific for celiac disease. You need to take a serious look at exactly what celiac blood tests were given. Did you have the IGA deficiency test as well (it is a control test)? Were you consuming gluten daily for 8 to 12 weeks prior to the blood draw? This is the complete panel: -Tissue Transglutaminase (tTG) IgA...
  17. cyclinglady
    When I was first diagnosed, I thought I was getting glutened. Turns out that I was reacting to xanthan gum found many gluten-free products. It did not bother my gluten-free hubby but he had been gluten-free for over a decade and no longer had a damaged gut. I switched to guar gum in my baking products. For newbies I think a whole foods based diet is best...
  18. cyclinglady
    Welcome to the forum, Bikegirl62! Ugh, like so many of us, we have suffered for years and were unable to get a correct diagnosis. I hope you feel better soon and are able to get back on your bike! I took almost a year off my bike after I fractured my back doing nothing two months after my celiac disease diagnosis. Get a bone scan as osteoporosis can be...
  19. cyclinglady
    Welcome to the forum Kmogi! ?
  20. cyclinglady
    Chances are the blood test is not wrong. ?. Member, NVSMOM, can rattle off the statistics (you can search her posts). The biopsies should confirm the blood test, but remember, the small intestine, if spread out, is the size of a tennis court. It is easy to miss damaged areas. Getting a celiac diagnosis is overwhelming! There is a grieving process. ...
  21. cyclinglady
    Very unlikely that the results were impacted by your being hypo, but I am not a doctor! (I do have celiac disease and Hashimoto's Thyroiditis.) Keep eating gluten until all testing is complete. The next step is typically an endoscopy. At least four to six biopsy samples should be taken. The good news is that you will start to feel so much better once...
  22. cyclinglady
    If the vinegar is distilled it is safe. Malt vinegar is not safe. Read this by a reputable source: Open Original Shared Link if a company dusts the inside of a toothpaste tube (for what benefit I can not imagine) it would have to be disclosed as an ingrediant. Why did you ever hear of that?
  23. cyclinglady
    You can disregard the AGA tests. Some countries do not have the newer DGP tests. Some insurance companies will prefer just the TTG test with the IGA deficiency control test. It is used as a first screening and catches most celiacs. Not me. I tested positive on only the DGP IGA test. I was lucky my doctor ordered the complete panel otherwise my diagnosis...
  24. cyclinglady
    -Tissue Transglutaminase (tTG) IgA and (tTG) IgG-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG-EMA IgA -total serum IgA and IgG (control test)-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are taken VERY IMPORTANT: Keep eating gluten daily until ALL testing is complete...
  25. cyclinglady
    Finding a doctor who is knowledgeable about celiac disease? See if there is a celiac support group in your area and ask for their input. Search the Internet and actually call doctors and talk to the front desk. I found my new GI because the directory supplied by my insurer stated that he specializes in celiac disease. Right there in print! it sounds...
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