Jump to content

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Are you doubting your diagnosis? Have you been gluten free since. 3/2015? Have your symptoms resolved? I am a bit confused. When did you get genetic testing? Has the original TTG of 12.7 come down? It sounded like you were borderline or just developing celiac disease. Did you ever find out how many biopies were taken? I really not understanding...
  2. cyclinglady
    You might have a corn intolerance. Many members do. You can develop them at any time. I never knew that I had an intolerance to Xanthan gum (bread additive) until I started eating gluten-free bread. Bothers me but not my hubby. I bake without it and skip most gluten-free commercial bread, crackers and cookies. Avoid corn since you suspect it and keep...
  3. cyclinglady
    It makes sense. I can actually see my stomach poking out under my rib cage. It would pinch too if I leaned over. My spleen is okay. My stomach looks normal now after healing. Do you have celiac disease?
  4. cyclinglady
    I can say that often intolerances are just temporary, but it can months, years or maybe never to overcome. Best bet is strict avoidance (corn is everywhere). I know that milk (I think not lactose related) and other things besides celiac disease can cause intestinal damage in some people, but not sure about corn. Something worth googling. We do have members...
  5. cyclinglady
    I personally would not want to comment without seeing the ranges. Plus, you need to understand that we are not doctors, just folks with celiac disease or NCGI. NVSMOM is great about explaining the tests in detail. Look up some of her posts made this week on this very subject. There is a query box you that you can type her member name in. Or you can google...
  6. cyclinglady
    Ugh! What can I say? That your doctor is an idiot? He is grossly wrong! You did not post any lab ranges (labs vary) but it looks like you have celiac disease. I could confirm for sure if you provide the ranges. But, a result of over 400 has got to be positive! It looks like your TTg tests are low and maybe your doctor relies on just the TTg which are...
  7. cyclinglady
    I did not have tummy issues, just anemia when my doctor ordered a celiac panel. I was "barely positive" yet my biopsies reveal moderate to severe damage. I was shocked. First, because I was not having tummy issues. Second my hubby had been gluten-free for 12 years. What are the odds that both us had to be gluten free (and I knew exactly what the diet...
  8. cyclinglady
    Exactly what RMJ wrote -- panel 2.
  9. cyclinglady
    ?
  10. cyclinglady
    Then I would get the testing. It sounds like you were really consuming gluten. Go eat some bread for me! Let us know how it goes! ?
  11. cyclinglady
    Time. Drink water, eat comfort foods and baby yourself. How long? Everyone is different. Some take a few days, weeks or months. Yes, months! So, If you think you have celiac disease you need to avoid gluten which sets off an autoimmune reaction. It is too late to get tested easily. You would have to do a gluten challenge (eat gluten daily for 8 to...
  12. cyclinglady
    Welcome! It can take a long while for celiac antibodies to go down. One of the contributing factors is that the learning curve is steep when you go gluten free. Have you looked at hidden sources of gluten? Cross contamination? What is going on at school? How often do you eat out? I encourage you to read our Newbie 101 section. You might find it helpful...
  13. cyclinglady
    I am sorry that you are feeling sick. ? There is really nothing you can do but wait until you fell better. Drink lots of water and baby yourself. You will feel better soon! My sleep patterns completely get messed up when I am glutened. I think that is normal.
  14. cyclinglady
    Ha! I was just going to tell you to google the content of your question, but NVSMOM actually keeps this information in her head! Amazing! ?
  15. cyclinglady
    Hi Nevada! You would think that being on gluten free diet for 10 days would not impact the results of the celiac test, but it might. See this link to the University's of Chicago's celiac website (one of the top leaders in the US): http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets3_Antibody.pdf Experts recommend consuming 8 to 12 weeks...
  16. cyclinglady
    There are many certified gluten free cereals that can be found in health food stores. But no matter where we travel in the US, we can always rely on Chex corn or rice cereals found in any grocery store. Hubby doctors them up with dried or fresh fruits and nuts.
  17. cyclinglady
    Just as the nurse hinted.....you have celiac disease! Normally, biopsies (obtained from through an endoscopy) would officially confirm it, but you will have to decide if you want to go that route. Easy for me as it was covered by insurance and I did not have to wait long. Not so easy in countries where there often is a long wait. I also just had anemia...
  18. cyclinglady
    You said that your labs were okay, but did that includ the TTG and DGP antibody tests for celiac? It sounds, based on the symptoms you listed, that gluten might be slipping into your diet. The blood test would confirm it. At least it would rule out celiac disease and you could focus on other issues like SIBO, Crohn's, etc.
  19. cyclinglady
    Sounds strange for me to type this.....but I am happy for you! Now you can take action and get well! Keep us posted on your progress and never stop advocating for your health! ?
  20. cyclinglady
    I don't know because I have not had the antibodies test done for both celiac and thyroid when I have been glutened. I bet there is a link. I was glutened badly in July (confirmed by my GI ordering celiac antibody testing.). I did not ask for any thyroid testing even though I had extreme fatigue. I did become lactose intolerant for about three months,...
  21. cyclinglady
    Excellent advice about the referral to the University of Chicago's celiac website! Usually the genetic test for celiac disease is given after the DGP and TTG tests as a means of ruling out celiac disease. About 30% of the population carry the genes for celiac disease but few go on to actually develop it. Besides the TTG and DGP tests, patients should be...
  22. cyclinglady
    I don't know if antibodies levels correlate with intestinal damage or not. In my case, I was barely positive yet I had moderate to severe damage. Others here have had high antibodies but not severe damage. Everyone presents differently. I can not stress this enough -- KEEP EATING GLUTEN until all testing is complete.
  23. cyclinglady
    Oh, please get check for anemia and vitamin and mineral deficiencies.
  24. cyclinglady
    Welcome to the forum! I am sorry to tell you that with two positives (the middle test is to see if you have an igA deficiency which would invalidate the TTG), you most likely have celiac disease. Do not stop eating gluten until you have had the endoscopy. Ask that they take six biopsy samples as the small intestine is vast and the doctor could miss...
  25. cyclinglady
    Here are some links about getting tested for celiac disease from reputable websites: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link I hope this helps!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.