skoki-mom
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Latest Celiac Disease News & Research:
Everything posted by skoki-mom
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ARCHIVED Concerned For Teenaged Daughter
skoki-mom replied to Ursa Major's topic in Parents, Friends and Loved Ones of Celiacs
Your daughter is at an age when she needs to be learning how to take control of her own life, in all aspects, not just her diet. I feel for her, I really do. No one likes to feel different, and she is at an age when fitting in is so important and kids are starting to do things like eat out without their parents present. My kids aren't teens yet, so I am... -
Just wanted to say welcome I never had symptoms, so I can't answer your question from experience, but it seems to vary from person to person.
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I wouldn't stress about it! Sounds like it will be a great party
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Hi and welcome to the board. I can appreciate, as a mother, how overwhelming this must be. While I don't wish for any child to be ill, in some ways I envy your son because he will grow up on a gluten-free diet and never know what he is missing, lol!! I was dx at age 35, giving up all my favourite foods at that age has been hard, I have to battle some cravings...
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ARCHIVED Birthday Cake Help Needed
skoki-mom replied to paw's topic in Gluten-Free Recipes & Cooking Tips
You can definitely use shortening as an icing base. I use shortening instead of butter for icings that I use to decorate sugar cookies and stuff. It stays stiffer than butter, but should work fine! -
Thanks for all the tips! I have had a freaking busy day and have barely slept (I worked nights last night). I plan to get some of the stuff you recommended and keep it on hand for the next time! In the meantime, my cashew problem seems to have passed on it's own, and just be grateful you were not downwind! I love cashews, but I will never eat that many...
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Stomach ache is not related to gluten ingestion, because I am always very careful. However, I'm pretty sure the huge Costco sized jar of cashews I have been pigging out is to blame Bad idea, I know, I won't do it again. In the meantime, I've heard both Tums and Gas-X are off limits, so is there anything I can take to make my gut stop aching?? Lori...
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ARCHIVED Confused About Icing Sugar
skoki-mom replied to aberglund's topic in Gluten-Free Foods, Products, Shopping & Medications
Roger's icing sugar is gluten-free -
ARCHIVED Thanksgiving Turkey
skoki-mom replied to ruddabega's topic in Gluten-Free Recipes & Cooking Tips
My first Thanksgiving went really well (it was just a couple of weeks ago). I made stuffing out of gluten-free bread, and I used the gluten-free flour mix in Bette Hagman's Gluten Free Gourmet cookbooks as a replacement for regular flour in the gravy. My sister and I both have celiac disease, and my parents are pretty accommodating, so that is a bonus!... -
ARCHIVED Celiac With No Symptoms?
skoki-mom replied to emerac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi E, Yes, it is very possible to have it and not have symptoms. I am one of those people, so I know exactly what you mean! I ate a diet very high in gluten (especially while I was awaiting my biopsy, lol), and never experienced any digestive troubles. -
ARCHIVED Response From Parmalat Canada
skoki-mom replied to Felidae's topic in Introduce Yourself / Share Stuff
That is mental! They are saying there is gluten in their *milk*???????? -
ARCHIVED Asymptomatic Kids ?
skoki-mom replied to Siobhan's topic in Parents, Friends and Loved Ones of Celiacs
Hi Siobhan For what it's worth, I am a completely asymptomatic person with celiac disease. So, it is possible to have it and not have any symptoms. I am 36 and I was just diagnosed about 2 months ago. I was concerned about my 2 daughters, and my GP and my GI were both very supportive about getting them both tested. My youngest seems to have a bit of... -
ARCHIVED Come And Rant!
skoki-mom replied to fisharefriendsnotfood's topic in Coping with Celiac Disease
One of the peds residents just finished her rotation in our unit and left 3 big boxes of cookies in the staff room for the nurses. Then, because it's Sunday and Dr. Hasan was on, there was a big box of Tim Horton's donuts in the staff room too. Need I say more??? -
ARCHIVED Small Intestine Biopsy Scheduled
skoki-mom replied to Baston8005's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good for you for getting the biopsy. I know not everyone had a good experience with theirs, but for me, it was honestly a total non-event. I was supposed to be resting the rest of the day, but I had just moved so I spent the afternoon unpacking in my basement. I was told pretty much the same as you, that I should expect it to come back positive. So... -
ARCHIVED All Or Nothing?
skoki-mom replied to JenM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, he is apparently a Senator from Illinois or something. He was one of the second place Powerball winners, and on the lottery claim form he put his net worth at $2.5-$7 million. How you can be unsure of $4.5 million is beyond me, but whatever!!!! -
ARCHIVED All Or Nothing?
skoki-mom replied to JenM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that millionaire Senator should have to give his $850 000 to charity! How unfair is that ??? I know it's everyone's right to buy a ticket, but I hate it when rich people win! Just like it sucked when J. Lo's mother won the lottery! -
ARCHIVED Gastritis And Cd?
skoki-mom replied to Tangerine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I also showed gastritis on my endoscope. However, like my celiac disease, it gives me no problems or clinical symptoms. I didn't really ask about it, I guess I am just thinking it will also get better on my gluten-free diet. I have read that gastritis and celiac disease commonly go together. -
ARCHIVED Well I Just Found Out I Have Celiac Disease
skoki-mom replied to Baston8005's topic in Coping with Celiac Disease
Hi there! I'm kind of late responding, but wanted to welcome you to the board I'm sure by now you have read all the posts and now know why you need to go on a gluten-free diet. However, I noticed in one place you said you wondered if there was any way to find out what the damage is to your bowel. The answer to this is yes, and I can't believe your doc... -
ARCHIVED Trying To Make Sense Of It All
skoki-mom replied to dfish's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It would be helpful if you could have an allergy test for barley, rye and oats as well. I agree that while wheat free is probably what you need, you will likely find that means pretty much gluten free because of the mixed grains in so many things. Most breads, for instance, even rye and stuff, also have regular wheat flour in them. -
Well, I had a great experience at Tony Roma's last night! When I told the waitress I was on a gluten-free diet, she immediately told me the menu items that were gluten-free (all the ribs, woo hoo!), and the one's that were not, the chicken. She verified the ribs weren't marinaded as well. I had original baby back ribs, a baked potato, and she checked on...
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ARCHIVED All Or Nothing?
skoki-mom replied to JenM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is the sort of thing my nurse's brain has been telling me as well. It just doesn't make sense that an intoerance can turn into celiac disease. That to me sounds like saying if you eat too much sugar you will get diabetes (my mother used to tell me that as a child!). However, I am certainly no expert on this, but the explanation your doctors gave you... -
ARCHIVED Almost Gluten-free?
skoki-mom replied to JenM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Jen, I was where you are less than 2 months ago. Well, the exception being that I have a conclusive diagnosis of celiac disease. The limitations of the diet are overwhelming. But, it's one of those things you just have to do. It gets a little easier every day. Is there stuff I wish I could have?? Oh yeah, but then I think of the risk factors, and remind... -
ARCHIVED Test Results Are In
skoki-mom replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have in some places seen the terms Celiac Disease and gluten intolerance used interchangeably. However, in other places, I see them used quite differently. celiac disease causes definite measureable damage to the villi of the intestine. A gluten intolerance my cause similar symptoms but not the same type of damage as celiac disease. celiac disease... -
ARCHIVED Gastro Put Me On Gluten Challenge
skoki-mom replied to Wandering Hermit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey Hermit, If something more conclusive is what you feel you need, then I don't think you need to justify it to anyone. I had + bloodwork, but I opted for the scope because I really had to know, especially since I have no symptoms of celiac disease. As well, I needed to know conclusively because I have kids, and an accurate family medical history is important... -
ARCHIVED Test Results Are In
skoki-mom replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Honestly, I don't know how they test for intolerances. It would not test + for an allergy, because it's not an allergy, and it would not test + for celiac disease because it's not celiac disease. While the symptoms may be similar, an intolerance will not damage your villi in the same way as celiac disease. Sounds like I am making you more confused, sorry