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Ciel121

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Everything posted by Ciel121

  1. Ciel121
    Apparently there is a doctor saying the same thing: Open Original Shared Link Don't know. Don't care. I don't drink coffee anyway. Didn't realize I'd have to do citations like in a dissertation. Do you need an M.D. to chat on here? Didn't realize. Perhaps you have an M.D.? No? Is there absolute proof that Dandy Blend has gluten in it? Probably not...
  2. Ciel121
    I'm impressed by Celiacs who try to eat at restaurants or Starbucks. I won't go to any restaurants...perhaps there are 2-3 exceptions, but I go very rarely. They are always restaurants that are off the beaten path. I'm horribly suspicious of chains catering to Celiacs. I'm betting on the coffee itself. I know when I'm around gluten I never feel it. I can...
  3. Ciel121
    Ha, good question. I have Mitral Valve Prolapse and get heart palpitations. I've had numerous trips to the ER over this, and usually not at my request. A doctor sent me to the ER after he gave me Lidocaine by injection at age 21 when I was in college. All started then. It's not comforting when your doctor starts to panic. I remember sitting there with all...
  4. Ciel121
    It's exciting, isn't it? I remember that first week on my elimination diet...ah. I told the doctor it felt like my stomach and abdomen had simply disappeared. I swear I had to look down to see if I still had an abdomen because I felt like a floating head. :-) Great feeling. Congrats to you! Stay with it. I was lucky and my test came back positive, but...
  5. Ciel121
    Um...because I want coffee. Tea gets old. I'm Polish. We drink more tea than the English--much, much more. No more tea. I'm tea-ed out. Sick of it. Green tea, white tea, black tea, darjeeling, Thai tea, jasmine, rooibos... had them all. And the coffee substitutes absolutely do resemble coffee. Have you tried them? Taste much better actually. Don't intend...
  6. Ciel121
    I may have found another option in coffee substitutes. I'm contacting the company now. It's called Ersatz and is not made with barley or any extracts of it at all. It is apparently not processed with anything like gluten or barley or soy. They list it as gluten-free. Very excited to check it out. Thought someone else might be interested...
  7. Ciel121
    So funny! I have to agree that there is something that just makes me paranoid and others paranoid about gluten to extreme levels! This can drive you nuts after a while. I've been gluten-free for 4 years, so I'm not new to this and I have read every book, article on the market and internet on this, yet I am still learning something new every day. What is annoying...
  8. Ciel121
    If barley gluten is not accurately tested by ELISA tests then this is quite a problem because barley extracts and enzymes are used in many gluten free products like Soy Dream and Rice Dream. This was in interesting article: Open Original Shared Link
  9. Ciel121
    No, the chocolate peanut butter is a very different issue. I'm pretty sure I'm allergic to chocolate. I never react to Dandy Blend, but it might be time to toss it. Sad. The woman who posted about it and where I found it has a wonderful web site and is a gluten-free vegan. She is a Celiac, so maybe I'll mention this to her.
  10. Ciel121
    Thanks! I came to similar conclusions as what some people posted. I might be allergic to chocolate, though I'm not sure. My reaction is definitely not from soy because I never ever get headaches from soy. So the black circle logo means it is always certified by the Gluten Intolerance Group? That is what is on the package of this chocolate peanut butter...
  11. Ciel121
    I have been drinking the most delicious and healthy coffee substitute, Dandy Blend. It is a blend of roasted dandelion root (which detoxes) and beets. It is also a blend of rye and barley extracts...I know, I know. Apparently gluten is removed and only the extracts are used and the product is repeatedly tested. I get no reaction to Dandy Blend that would...
  12. Ciel121
    I bought a chocolate peanut butter powder by the brand Just Great Stuff that states it is certified gluten-free and felt sick, so I double-checked the package...apparently it is made in a facility that processes wheat, yet it is certified gluten-free... That is very confusing because I can tell you, it's NOT gluten-free. I got a mild headache compared to...
  13. Ciel121
    Aha, then that could have been it at Jamba Juice...I will stay clear of it. Thanks.
  14. Ciel121
    Does anyone know if wheat grass is gluten-free? I always assumed it was not and avoided it until recently I read an article that stated that wheat grass does not contain gluten. Can that be true? I was even more confused when I ordered a smoothie at Jamba Juice and felt very sick, definitely glutened. Of course I thought it was from contamination from...
  15. Ciel121
    Wow, great idea. A non-processed food diet is ideal, right? Very healthy and great for weight management. I guess that's what I do automatically if I don't have the energy to explain Celiac disease, ha. Also, eblue, tell your family that Celiacs and people with food allergies are officially considered disabled by the government under the Americans with Disabilities...
  16. Ciel121
    Wow, it is even more sad to hear that people have so little discipline that they would give up everything. Hmmm... send her to the army asap lol or better yet to a country where food is scarce. She'll change her mind in no time. We are so spoiled in the U.S. Scary.
  17. Ciel121
    So sorry to hear that this has happened to you. I find that happens to me very often. My family is supportive, but strangers are another matter. My father has Celiac too (I got it from him) and he won't admit to strangers he has it because he's tired of the nastiness. What I don't get is what makes people think they can be nasty to someone sick just because...
  18. Ciel121
    I have that kind of family too (so glad my in-laws are awesome!)...but mine are supportive of my Celiac disease. But still, over the years I've just learned to set my limits with them. Don't let them walk all over you--especially when it comes to your health. I don't lie to my family anymore when they try to be controlling about what I do. I now tell them...
  19. Ciel121
    I was a bit horrified by this article. The industry has it backwards and it seems it always will. The reality is drugs don't fix anything, they just cause more problems. The only ones who profit are the pharmaceutical industries. The reality is we need to eat healthier and adjust our lifestyles--meaning getting rid of gluten in general for everyone (no one...
  20. Ciel121
    I get the ataxia as well if I accidentally ingest gluten. It lasts for a week for me, but at times it can be frightening. One time I had difficulty moving at all and I had difficulty with my peripheral vision. This only happens when I've accidentally had gluten, but I'm definitely not going to give up gluten-free products. I can barely manage on this diet...
  21. Ciel121
    Hmmm...hopefully as progress comes they restaurants will be required to fully fulfill proper meals for Celiacs. I mean they provide ramps for wheelchairs... I'm also concerned about airports and flights because that is a highly limiting situation with no choices and I'm pretty sure airlines receive federal funding. Travel has been really hard for me, so I...
  22. Ciel121
    I read an article recently about a woman who could not attend college because of her allergy to peanuts...and I learned that Celiacs are officially considered disabled. Check out this web site: Open Original Shared Link I know when I studied for my second Masters (in secondary education) they covered this act and I thought of Celiacs, but I never...
  23. Ciel121
    Does anyone use McCormick spices? I've found the most difficult thing about being gluten-free is finding spices that are. I used to use Simply Organic till I called them and found they are not gluten-free, but apparently will be certified gluten-free soon. McCormick is not certified, but their company told me they use separate equipment for gluten-free spices...
  24. Ciel121
    Hello All! Since May is Celiac awareness month I found a cool web site that has banners to display all over the internet like Facebook, Twitter, etc. I posted my banner as my cover page on Facebook. There are banners for Celiacs and those who care about or support Celiacs, even for family members. So lets be heard and make people aware! Open Original...
  25. Ciel121

    ARCHIVED Crusade

    Ciel121 replied to Adalaide's topic in Coping with Celiac Disease

    I found a site that has a banner for Celiac awareness month: www.dsimpsonbooks.com/celiaccoeliac-awareness.html Go for it. :-D
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