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Di2011

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Di2011

  1. Di2011
    Hi Jess Your photos look a lot like my DH. I am not officially diagnosed. I find avoiding gluten in food is not the only fix. Avoiding bakeries, bakery aisles, and watching who is eating what at a cafe/restaurant table I am sharing with others... Among other seemingly crazy things. Last week, after a year of being mostly itch free, I thought I would...
  2. Di2011
    I abide by all the previous comments. It doesn't seem to be commonly shared on here but for me gluten avoidence is in any crumb. Shared kitchens, equipment, plates, cutlery.. All have been a day.. week.. (Sometimes more) of itching, digestive upanddown and sleeplessness etc! If you can't figure out your problem .. Rethink - where is the source. Not just what...
  3. Di2011
    I joined this forum over 2 years ago.. With an email address I no longer use. I don't itch any more. About time I came back and helped out others - like those who stayed, and helped, when I itched head to toe, night after sleepless night for a year or more.
  4. Di2011
    Oh and one final tip: don't work in a bakery
  5. Di2011
    Hi all, I haven't been on the forum since May so it is nice to return with some good news. In May of 2011 I was working in a bakery and after about 6 months I became ill with another sinus infection. I had a few days off sick. First day back at work and six hours later the aweful itch which had started at my feet had made it's way all the way to my head...
  6. Di2011

    ARCHIVED Dh

    Di2011 replied to Di2011's topic in Dermatitis Herpetiformis

    this forum via mobile is better but new to me
  7. Di2011

    ARCHIVED Dh

    Di2011 posted a topic in Dermatitis Herpetiformis

    I've been offline for a.while. My DH has been stable. For a.while. I itch every day but I work etc. as if I've not.
  8. Di2011
    I'm trying to get touch phone savvy but taking time
  9. Di2011

    ARCHIVED Dj With Kids

    Di2011 posted a topic in Dermatitis Herpetiformis

    I've been off this forum for months. My Dh has been okay for a while. Tonight my 9 y/I shows me a wild patch of itchy lesions on his inner elbows.. Not the first signs for him but makes his next 30 years different to mine
  10. Di2011
    You are so right squirmingitch. We've all learnt the hard way, haven't we ?! sigh.. It took me a long while to come to terms with the fact that not eating out (cafe/restaurants and friends/family homes) was going to be for a lifetime. I still occasionally yearn for an easy, yummy, clean-up free snack or meal. But the memory of how bad that all over itch...
  11. Di2011
    I've worked in a supermarket and you are absolutely worthy of being concerned. The regular flour in particular is packed to be exploding flour. Lots of paper bags full of powder which are packed in paper/flimsy bags packed to break. Full stop no argument. In our "true" gluten free environment gluten free is kept away from gluten free. But we a long way...
  12. Di2011
    I'm in Australia so product availability seems to be different. I am sensitive due to my DH. I have tested many "enriched" products much to my skins distress. I now stick to rice only ingredient list that are sourced from Thailand. Here in Aus we have many of these and Thailand doesn't have a history of want/need/forced introduction of wheat based ingredients...
  13. Di2011
    theresa56 Welcome to the forum!! You are one of our rare "diagnosed" DH celiacs. We'd would be incredibly indebted if you told us your 'celiac/DH' journey in detail... if you are willing of course. Many if not most of us are officially undiagnosed so there is no, one, similar story that we share with new comers to our DH posts. Your story could be enlightening...
  14. Di2011
    I'm with our great (and mostly officially un-diagnosed) posters above Stick with the referal to the Uni. Take lots of photos (LOTS of them) starting right NOW. And keep taking them as lesions appear, change, and heal. You seem to be in your early days so photos might tell a thousand words. Write a novel if you have to of your history and current diet etc...
  15. Di2011
    Public and friends/family BBQs were a constant source of cross contamination in my early days. Let us know how you reacted, if at all. Hopefully you are not as sensitive as me !!!
  16. Di2011
    I am 39, single mum of one, Liam who is 9y/o. I broke out with full blown head to toe DH in May last year. I'd been working in a bakery for 9 months with growing and growing GI/neuro symptoms I didn't recognise at the time. I feel ill with another sinus infection, in bed for 3 days, went back to the bakery for first shift and six hours later was covered...
  17. Di2011
    My theory on sleep/resting & DH: When we are awake and busy we still feel the burn, itch etc don't we? But if you are in the middle of a work meeting/sale, your child(ren) is crying out for a bottle, the pile of ironing is only halfway done, the lawn is getting mowed, you need to get the yourself or kids ready for training/sport, you are playing/watching...
  18. Di2011
    They may have been your downfall but now you are on the up and up. So many questions answered for you
  19. Di2011
    Lucky you razzle You should put up a new DH post and let people know the doc's name and location. ((I checked with moderators and there is no problem with doing so))
  20. Di2011
    One of my rare Sundays I can get to a Coles tomorrow. Will hope to get there tomorrow and let you know:)
  21. Di2011
    Many of us also have DH flares when eating to many high salicylate containing foods ("sals" for short). Baths I could tolerate a bit better warm than having warm shower "hitting" my skin. I used Epsom Salts in the bath - don't know if it helped (certainly didn't hinder) and been used for centuries for skin/stress relief so may be something to it - who...
  22. Di2011
    Yey !!!!!! Your skin is looking pretty good. No doubt your GI will come around in time too. Mine was perhaps opposite to you ??? My GI/neuro started clearing up almost immediately. My DH was full blown so I am a year down the track I still have spots appearing around my body and although I've had two whole days this week (so so excited!!!) of itch free, the...
  23. Di2011
    Hi RashyA, I broke out in head to toe Dh after nine months working in a bakery. 1 year gluten free and my DH is now what is probably considered 'widespread but healing' and "normal presentation". 12 months ago it was literally head to toe. The only place it hasn't been is the soles of my feet (touch wood). And I've seen it on me in every way that posters...
  24. Di2011
    Wow .. wow .. wow.. this is a much different story than any other people post on here... at least in my time on here. Please be sure to (if you are willing of course) post the derms name and clinic. There will be others that may be able to access him. I checked with the forum moderators a few months ago and we are allowed to share names of docs etc ((don...
  25. Di2011
    My DH does/has looked just like these pictures. I am self-diagnosed and recovering gluten free. STRICTLY gluten free and with a constant watch out for salicylate overload. One crumb ("super sensitive" - lots of "natural" gluten free and many production lines are off my eating list) and my DH tells me I've had gluten. The brainfog hits me next and lasts for...
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