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Di2011

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Di2011

  1. Di2011
    Us Aus/Kiwis must hold the record for this forums longest running and/or biggest nr of posts record!!
  2. Di2011
    I feel like I owe them big time. I buy their products almost exclusively (for my son & I). I can't eat much salicylate (sals for short) which includes corn so I can't eat much processed food but my sons palate has recently adopted the gluten-free thing (is it the texture or flavour or both that wheat free does to food??). I'm going to start ordering...
  3. Di2011
    I am hoping my timeline gives you an idea of our experiences: After 12 months of head to toe DH I am finally seeing something approaching significant improvement. Instead of waking up with my hands and fingers covered in 3-4 dozen new lesions it is down to about a dozen new ones a day and not as severe as they were. Early days: I had to go low dairy...
  4. Di2011
    Mine are often amber also. Okay .. now going graphic some more: all have a little white dot bit that when it is out the itching/pain stops. That bit is evil.
  5. Di2011
    Open Original Shared Link
  6. Di2011
    Open Original Shared Link I've avoided oats completely for many many months due to being cc'ed early on. But I thought I'd 'test' Freedom Foods after first responding well to their non-oat products (a real surprise) and then reading this on the box: "The oats in our Crunchola are grown in Australia especially for Freedom Foods and transported in a...
  7. Di2011
    Gosh - sounds like you are lucky to have a doc who is reasonably informed and flexible. You are very lucky!
  8. Di2011
    Many of us have had DH is strange places. It doesn't surprise me that you suspect DH (or at least gluten) is response for you eye condition. I'd go down the simple road. Stay off gluten. If someone wants to know (including future medical staffers) tell them you have DH which is a skin related condition associated with celiac disease / gluten intolerance...
  9. Di2011
    Hi Kyle, You sound like you could be in Australia? Where do you live? I was overweight my entire life due to gluten. In hindsight I would describe gluten as an absolute poison in my body. Lots of things have resovled since I've been gluten free. AND I am a healthy 65kg (struggling to keep my calories up to stop losing weight... who would have thought...
  10. Di2011
    One of my "denials" for a long time was mushrooms. I've eaten them like crazy for most of the past 11 months but finally realised, recently, that I should have taken another posters information seriously. Some are cultivated on beds of wheat straw. For a while I even peeled and stemmed them but the past few weeks avoided them altogether. Definitely (in...
  11. Di2011
    I've had to spend almost 12 months carefully testing each and every new product I've re-introduced. It is incredibly had but been worth the trouble. I've learned that I had a salicylate (known as 'sals' for short) sensitivity. It is know to cause many of the similiar symptoms that gluten causes in celiac/gluten intolerant people. It is a minefield to try...
  12. Di2011
    Freedom Foods are one of only three gluten-free brands I can handle. (the other two are Thailand produced rice noodle). I have DH and super-sensitive so I respect Freedom Foods for their commitment to having a no-CC policy. If it wasn't for them I'd be in big trouble (wrt calorie intake). Their Apple and Cinnamon Crunchola is yum.
  13. Di2011
    I have not read throughthe whole thread yet but I just saw cramberries.. anything dried fruit has been bad for me!
  14. Di2011
    Hi all, Hope you are all well (or improving!). I'm a member with Freedom Foods and received an email from them today which included this info: Allergy Awareness Week begins 14May and the following promotion will be running in support of this event: Coles and Woolies are stocking Freedom foods at 20% discount. Coles: 16 - 29 May Woolworths...
  15. Di2011
    Celiac is what is wrong with you. It ain't easy. Many of us have additional allergy/intolerances. I wonder it this might be the case for you? It isn't until you take out the worst (gluten) that the others become evident. What is your history? Are you diagnosed? How long gluten free etc??
  16. Di2011
    I'm on the second half of being convinced about sals being my problem. When I say "fruit" I mean banana and apple. I've found fruit juices a problem so am avoiding them. Banana and apples (as I've read) appear on the 'low' end of sals content and I don't seem to have any reaction to these two. Avocado was (gluten free) a go-to food but I've taken them out...
  17. Di2011
    What a lovely post Peg. So nice that you have joined us (despite the fact that none of us really want this problem). Be sure to ask whatever questions or for any advice that you need. Di
  18. Di2011
    Yep.. definitely time for you all to get tested. You should also consider talking to any of your own siblings, if you have any. I'd wait until the kids are diagnosed (it seems so likely to be celiac!) and then give them the whole story of what your kids have been through - pictures and all. You'd be amazed how many unusual (but what I thought for 38years...
  19. Di2011
    Hi Irish Heart, At the moment food full stop is pretty boring so anything to assist my intake will be interesting My diet is so basic (meat/veg/fruit/rice)! Any ideas about what I can re-introduce is interesting to me at the moment!!!! Thank you for the info
  20. Di2011
    I live in Australia. It seems that here hugging is a pretty normal/acceptable kind of physical response to meeting friends/family. It is family dependent but I wonder if hugging is or is not a normal response within other cultures?
  21. Di2011
    Hi all, I wonder if there is anyone in this community who is also salicylate sensitive/intolerant and would be willing to provide me with some ongoing support for the next few weeks. I have read and bookmarked many sites / lists etc but this sals thing is so much more complex than going gluten free. Thanks in advance, Diana
  22. Di2011
    I had GI and DH flares on corn. I only realised the link, though, when I started getting the nerve shocks in my feet (which had stopped very soon after going gluten free). I knew I hadn't been glutened. I never eat out and rarely eat any processed foods (even gluten-free). GMO sucks. Excuse my language - I rarely swear. There is too much crap on the market...
  23. Di2011
    Wow.. this rings close to my experience with maize. My GI system and DH went crazy for a few weeks after I'd had a lot of corn & popcorn over a couple of days.
  24. Di2011
    Sals are big problem for me too. Raisins were my first obvious candidate and then corn became another and both are on the high sals content list. BTW I believe sals effect me in a 'cumulative' way. The more I eat over time the worse the DH gets unlike: Iodine which was a temporary flare trigger in my earlier days but now I can tolerate it in moderation.
  25. Di2011
    I think you're sons case would warrant a request for an immediate appointment. Insist on it. It looks very much like my case (though I'm 39:) in its early days. I thought I was getting mosquito bites in the middle of a freezing winter. Now almost 12 months later my all over "bites" are finally beginning to heal. Hopefully given your sons age he may respond...
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