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Di2011

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Di2011

  1. Di2011
    What clothes wash (liquid) do any of you Australians use? I am getting pretty edgy about whether some of the chemicals are wheat derivates but not having much luck with my research... My skin is still quite a mess after many months gluten free (and a bunch of other things).
  2. Di2011

    ARCHIVED Clothes Wash

    Di2011 posted a topic in Dermatitis Herpetiformis

    I have been trying to clear my DH for many many months with some success Gluten Free. Now that I have been strictly gluten-free for so long, and reading so many recent posts on this forum I am at an end.. except I wonder if there is something in our clothes wash? The only other (harder to determine) options I have left are water supply and any indirect...
  3. Di2011

    ARCHIVED Possible Dh?

    Di2011 replied to DaVille06's topic in Dermatitis Herpetiformis

    I wonder if anyone who has DH on this forum doesn't have another underlying issue, whether it be (super)sensitivity to cross contamination or additional immune reaction with other substance (as suggested such as additional additives, preservatives, iodine, etc etc). Anyone out there reading who has been diagnosed DH but NOT dealing with additional problems...
  4. Di2011
    Mine is just as described in above postings and your photo is similar to how my torso currently looks. I am yet to determine exactly how my current flare occured however contact with hard surfaces (zips on pants for example, scratching etc) certainly make for a painfully itchy flare. I wish I could help. Lots of loose clothing (helps as a female wearing...
  5. Di2011
    This was the worst area for my DH. I am 38 but wouldn't describe it as diaper rash, though his pooping a lot could also contribute to any "rash" he might have. Does he scratch a lot? Given that you are celiac you might have some traction with a dermatologist to skin biopsy for DH. Otherwise I would seriously consider trying a gluten free diet.
  6. Di2011
    Open Original Shared Link
  7. Di2011

    ARCHIVED Iodine

    Di2011 replied to Jaxonthehuman's topic in Dermatitis Herpetiformis

    Iodine was a big problem for me in the early days. Now I can tolerate it in moderation. I am one of the "all over" DH suffers so I think that has a lot to do with it. My theory/hypothosis is that that the more gluten in the system the longer to discharge it and hence how long iodine will have an effect on DH. I ate prawns(shrimps) 3 months ago and immediately...
  8. Di2011
    you should be proud! What a great lad and a great mum!
  9. Di2011
    Ditto for me too. My hands are the last area of my body to be affected. Started at the ankles and worked itself upward. At the moment my upper torso and arms/hands are still affected with general itching elsewhere. But if you haven't had it on your upper thigh/buttocks then you haven't had the worst of it. Avoid gluten in any form (if you don't know what...
  10. Di2011
    I think a lot of childrens DH is undiagnosed for a few reasons: 1. it looks like a single or just a few "mosquito bites" because when more than one lesion they tend to be "grouped" so it appears similar 2. it is intermitent and/or located in one or just a few areas 3. highly dependent on gluten intake ie I avoided it for decades but with higher...
  11. Di2011
    another knock to the medical/pharma industry wanting to research DH but who cares when you itch like us huh?
  12. Di2011
    There are a number of "gluten free" ingredients that effect me which are of gluten product origin (such as xanthan gum etc etc). You might need to be like me and others and research online ingredients in detail. If it says grain/starch (not necessarily but "might" be wheat/barley etc involved in manufacturer) then it is best to avoid. Most of the research...
  13. Di2011
    Oh and by "non-issue" I mean in terms of effecting us locally. Not that it isn't in the news or thoughts of people here.
  14. Di2011
    How interesting to read about you in the West USA being affected by the Japanese problem. Here in Australia it is a bit of a non-issue. I have never read a food product coming from Japan (mostly ours goes to Japan) although I guess some specific Japanese cuisine (seaweed?) might. Can someone please explain to me about the change (tilt?) in the sun? ...
  15. Di2011
    Hi WF, Can you tell us how you were diagnosed with DH, through biopsy or self diagnosed? I am self diagnosed and have head to ankle (still waiting for a calming of my DH after months ). But I definitely need gluten free and iodine low to keep healing. You seem to be very self sufficient in terms of researching your condition and resolution which is...
  16. Di2011
    Your feelings are completely understandable. Don't be too hard on yourself. Your son is incredibly lucky to have you to advocate for his health. You really need to get your head around the fact that this is a life time issue for you and your family. The sooner you see it as a long term / lifestyle change the easier it will be for you to deal with today...
  17. Di2011
    Thinking of you pricklypear From what I have just read Thalassemia is even less known, undiagnosed etc than celiac/gluten intolerance. I hope you have a good doc to help through the coming days/weeks/months. You remember to get those test results and publish here. "some" positive sounds like positive yes?
  18. Di2011
    :D So now you have to tell us how those cookies turned out!!! Did he like them??? If anyone doesn't stock molasses maybe brown sugar or golden syrup is the next best.
  19. Di2011
    :lol: 'witching hour' - I love that.. very appropriate. Yesterday afternoon I had to pack my son off to grandmas because I just knew it was going to be a bad night
  20. Di2011
    Thats 2 now!!! I sure hope forum members will keep adding to this thread and the numbers! Here is number 3: My ex-MIL (yes, ex but she is like a second mum ) had us for early xmas dinner week before last. We not only had the best chicken and salad dinner but she also gave me a gift of gluten-free soap (lemon myrtle - yum!) and chap stick. She was so keen...
  21. Di2011
    I made a boo boo yesterday - I should stick to facebook or forum not both!!
  22. Di2011
    I so wish for a xanthan gum replacement. I suspect there won't be one for the few of us who can't tolerate it... I am coming to the acceptence that pastry and "dough" anything will not be tolerated.
  23. Di2011
    I've heard and read that nights are difficult .. I have a 3pm (or there abouts) problem.. Anyone have a afternoon breakout?
  24. Di2011
    I would be careful with using benzocaine however it does seem to ease the itch. As a parent with a child suffering DH I have something to say... this is the most itchy thing on earth and I hope that others have some alternative or something to say in addition. These things on you childs skin aren't like mosquito bites. For me it is like acid. Toxic...
  25. Di2011
    I think the mouth is an interesting area when it comes to gluten intolerance. I got head to ankle DH in June. Now it is mostly torso to hands. I've always been itchy/scratchy since I remember. I got one mouth ulcer in July when I wasn't as strict as I need to be. I don't have any particular mouth/dental issues.
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