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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    Maybe you could post what brand of supplements you take, and we could give you input if they give us problems. I *think* I've heard that a low thyroid can still be a problem, but it often gets ignored because it's technically in the normal range. Lots of tests are like that. Normal ranges are based on an average of many people, so the low side of the normal...
  2. kbtoyssni
    There are I think five types of anti-inflammatories. One is the advil/ibuprofen/motrin category - the stuff you get over the counter. If one doesn't work for you, it's likely that the others won't either. Mobic is another type. It's a prescription drug, once a day. Relafen is another prescription drug. So if ibuprofen isn't helping, you might ask your...
  3. kbtoyssni
    I did think about this. If you're buying chicken breasts or whole chickens with the guts taken out, there *should* be no CC. But I'm not so sure that the intestines and stomach never get cut into so there's definitely a risk there. I'm not sure if there's a final washing step at the end of the process that would reduce this risk. Maybe the solution is...
  4. kbtoyssni
    I wouldn't be concerned about the mushroom containing gluten, but I would make sure I washed them to avoid CC. Same with chicken. If a chicken eats oats, it metabolizes the oats and turns it into energy which in turn builds the muscle we eat. It's no longer in gluten-form.
  5. kbtoyssni
    You could also feed your son only gluten-free foods. It's not going to be harmful for him, and it will certainly be safer for you.
  6. kbtoyssni
    If you were diagnosed via blood work, then there was really no reason to do a scope. I'm going to agree with your doctor here. I'd guess your lingering problems are from occasional CC or other intolerances.
  7. kbtoyssni
    I don't think it sounds abnormal to have five days of stomach pain from gluten.
  8. kbtoyssni
    Is the sauce made fresh in the store? If so, it could be CC. Or the mozerella might be CCed. And while it's unlikely that the sauce contained gluten, you still have to check just to be sure. If you don't know, don't eat it! It could also be not gluten-related. Tomato is very acidic, and cheese can be difficult to digest so maybe it's the combo of...
  9. kbtoyssni
    I always call the reception place myself. It's easier for me to talk to the chef than it is for my friends to try to relay the message. You should know where the reception is being held so getting in touch with the caterer shouldn't be too much of a problem. Most wedding dinners are held at nicer places and can easily accommodate. But after talking to...
  10. kbtoyssni
    You might want to look into the Zone diet for before races. It's about making sure you have 30% fat, 30% protein, and 40% low-GI carbs in each meal. It seems a bit more sensible to have a good mix than just carbs before a race. My brother was a solid JV cross country runner in high school. His senior year he started doing the Zone diet and PRed at every...
  11. kbtoyssni
    If your blood work was positive, then you have celiac. Your biopsy could have been negative for a few reasons: you didn't have much villi damage (yet!) or the doc didn't biopsy the damaged spots - it's easy to miss the damaged spots if you think about the few small biopsies they take versus the surface area of the intestine. Intestinal damage will increase...
  12. kbtoyssni

    ARCHIVED Vent

    kbtoyssni replied to MDRB's topic in Coping with Celiac Disease

    I agree with everyone who said this sounds like dysfunctional behavior. And in that case, all the nice, tactful ways of dealing with the situation won't work because your mother will never change. It's a waste of your time to try to convince her not to do this because it's just what she does. As hard as it is, you need to distance yourself from her. Tell...
  13. kbtoyssni
    It might also be that it takes you some time to feel the affects. If I get a tiny amount of gluten, I often don't feel anything. But a while back I was accidentally eating a CCed product and after a few weeks started to feel really yucky. Also, if it's a lactose problem, you may be able to handle a small amount but can't digest the larger amounts.
  14. kbtoyssni
    Gluten intolerance or celiac would not show up in a skin prick test because it's not an allergy. It's an autoimmune disease so you'd have to diagnose based on intestinal damage, blood test, stool test, or dietary response.
  15. kbtoyssni
    I usually bring my own food and still socialize. People ask questions, but it more of a genuine interest rather than a "why aren't you eating, try this" accusatory thing. I sometimes bring food to share, but I always serve myself a large portion before putting it out for everyone.
  16. kbtoyssni
    I've had mostly good luck with American Airlines. I always confirm my meal will be on the plane when I check in and also when I get to the gate, and I've never had a problem with my meal not being there. They do, however, have a habit of including a four grain cracker with the meal - and three of the grains are gluten grains! Of course, it's individually...
  17. kbtoyssni
    That's a great article! It's what I wish all celiac articles could be - the mention of the negative tests but positive dietary response, the non-traditional symptoms, and the positive outlook at the end!
  18. kbtoyssni
    I say I have an allergy when talking to people I don't know well. It's not necessary to get into the technical difference between how my body reacts to gluten versus an allergic reaction, either way it makes me sick. And everyone knows what an allergy is. If people start asking questions I'll mention it's auto-immune and that my body starts attacking itself...
  19. kbtoyssni
    I don't consider them the same. Brain fog is more the inability to concentrate, to understand written and spoken words, to remember anything. It's a feeling of your mind not working properly. Lightheadedness is different, but certainly still a symptom of celiac. I'd had a lot of trouble walking in a straight line pre-gluten-free. I'd walk down hallways...
  20. kbtoyssni
    If your daughter is sharing her food with other kids, that could mean other children's gluten fingers touching her food. Even if you do find out the potatoes are gluten-free, I wouldn't let her trade for them because of the risk of the other gluten food on the tray getting crumbs in the potatoes, too. Maybe you could occasionally send food with her to share...
  21. kbtoyssni

    ARCHIVED What If?

    kbtoyssni replied to Danno's topic in Related Issues & Disorders

    I occasionally wonder what if. What if those two or three doctors I went to for non-traditional celiac symptoms had caught this earlier, before I got really sick. Luckily I was only a bit sick for eight years and really sick for one year so I did miss out on some things, but not as much as some people here. But I always come to the conclusion that I'm...
  22. kbtoyssni
    You might want to mention the addictive properties of gluten to them. I used to eat a ton of gluten foods, but I realize now it was mostly because I was addicted. Now I could care less about eating gluten-free breads, donuts, pizza, etc. You going back and forth certainly isn't going to help you case. But if your friends aren't being supportive when...
  23. kbtoyssni
    My peanut butter got taken away from me last weekend. Made me very mad. At my local airport, there are signs stating that some liquids are allowed on the plane if you have a doctor's prescription about a medical condition. I called TSA to ask about this policy, and the guy assured me I could take soup and my liquid-based pre-packaged Indian food on the...
  24. kbtoyssni
    Maybe you can tell her that she still does have a choice. It's just the consequences are different now. Could you take your son to a support group? Maybe being around other teenage celiacs would be helpful. Or let him join this board and post in the teenage forum.
  25. kbtoyssni
    Great thread! I tried doing a search on gluten-free, gluten-free meals, but that thread never came up.
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