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kbtoyssni

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Latest Celiac Disease News & Research:

Everything posted by kbtoyssni

  1. kbtoyssni
    I would ask your dentist what brand he/she uses and call the company yourself. Then you can make the call on the safety. I've always asked my dentist for the plain pumice with no flavour, but I don't know the brand.
  2. kbtoyssni
    I also don't buy many of the specialty gluten-free substitutes. I do 99.9% of my shopping at the regular grocery store, buying on sale and in bulk when I can. I can't really remember what I used to eat, but I use potatoes, rice and corn tortillas as a base now. It takes a while to figure out how to change you diet to include mostly naturally gluten-free...
  3. kbtoyssni
    If she has gluten sensitivity or celiac she needs to be 100% gluten-free or you might as well not even bother. Celiac is an autoimmune reaction that will occur if you eat a crumb of gluten so low-gluten is doing the same thing to the body as a high-gluten diet. Testing in kids is notorious for false negatives. They just haven't have the time to do a lot...
  4. kbtoyssni
    It depends. I have some friends whose food I will not eat, and because I've always been very clear that I'll bring my own food, they don't even try to cook gluten-free (which is fine with me because it's easier to just bring my own food and not have to deal with the awkwardness of trying to explain why I can't eat the food they tried to make for me). Then...
  5. kbtoyssni
    Just out of curiosity, why a low gluten diet? Why not completely gluten-free?
  6. kbtoyssni
    I agree with everyone that these pills don't allow a celiac to eat gluten. I also wanted to note that they are not FDA approved so these claims do not have to have medical studies to back them up. Who knows if or what kind of studies were done to substantiate the claims.
  7. kbtoyssni
    It wouldn't surprise me if he's celiac and has negative tests. They notorious for false negatives in young kids. Why not try a 100% gluten-free diet? You probably won't see much difference with a mostly-gluten-free diet so maybe try fully committing to it. Lactose is digested by lactase which is produced by the tips of the villi. If the villi are damaged...
  8. kbtoyssni
    I'd try to buy mostly naturally gluten-free foods. I doubt your son will care much if you buy corn tortillas instead of wheat, safe condiment brands, fruits, veggies, meat. Rice pasta is pretty good so I'd switch that to gluten-free. Mrs. Leepers tastes great and is available at Super Target. Bread and crackers are a bit more tricky. I've pretty much...
  9. kbtoyssni
    It seems like most people on here get worse reaction the longer they're gluten-free. But I'm the opposite. I hardly react at all anymore. Which is some ways is really nice, but it's also hard to know if I'm accidentally glutening myself. As for the messy question, I'm super neat. I like my spaces to be clean and open, and I'm constantly taking things...
  10. kbtoyssni
    Here's what I think are suspect: orange juice: unlikely - depends on brand a little potato salad and a dill pickle (the potato salad, dill pickle and turkey were catered): catered is a giant red flag! Was this buffet style - if so you never know who dropped crumbs in a gluten-free dish or double dipped a spoon? Did you confirm with the caterer that the...
  11. kbtoyssni
    I wouldn't let him visit her alone if she can't keep him safe, either. This obviously isn't a one-time mistake. You can go with him to visit or grandma can come to you or you can all meet at the zoo or something. I'm sure it's hard to lay down the law like this, but you may find that insisting and enforcing that he can't visit alone may cause the seriousness...
  12. kbtoyssni
    I think these colon cleanses became popular around the time when processed foods also became popular. If you eat tons of fast food and processed chemical-laden foods, the digestive tract isn't going to be working well (the whole body won't work well). The standard advise of eating well and exercising will allow your colon to do just fine on its own. [Note...
  13. kbtoyssni
    You have to check each brand of flax seeds, peanuts and apple juice individually. Peanuts are often manufactured in the same facility as wheat products and you never know about the flavourings in apple juice. Plain apples are ok. Apples do not contain gluten in the peeling nor should the peeling process introduce gluten unless there's CC at the factory...
  14. kbtoyssni
    I've started air drying a lot of my clothes for the same reason. I live in an apartment so I don't have any control over the dryers - even the cold cycle leaves the clothes almost too hot to touch when they're done! Yes, I have to iron, but I have a place where I can always leave the iron out so it's not such a big deal anymore. Do you have kids? If...
  15. kbtoyssni
    Red Robin has a dedicated fryer (although I still ask every time I go just in case).
  16. kbtoyssni
    I don't think so. Most doctors won't diagnose unless there's a positive blood test or scope which would be negative if a person just had bulimia. A bulimic would also not respond to a gluten-free diet. Having celiac can indirectly cause bulima, though. A good number of celiacs subconsciously know that food makes them sick, gluten is an addictive substance...
  17. kbtoyssni
    Sounds normal to me. It's common to have ups and downs while you're healing.
  18. kbtoyssni
    I don't have any studies to cite, but there was one done where they randomly tested a huge number of people, and they found that only 1 in 40 people with celiac had been diagnosed. So that's 39/40 of celiacs running around still eating gluten. And we all know the long-term consequences of a celiac eating gluten. Silent celiac is a possibility, but...
  19. kbtoyssni
    Yep, that's it! Thanks - I've been trying to remember the name for days.
  20. kbtoyssni
    I've never worried about packaged flours. I tend to buy ones that are packaged well so I don't worry about CC getting in. I do, however, worry about those open bins of flour that you serve and package yourself. That seems like too much of a gamble to me.
  21. kbtoyssni
    The drama's going to be there, no matter when you move out. You can deal with it now and be safe or deal with it later. There's nothing you can do in two months to convince her this is a good idea. Honestly, your mother sounds like she's suffering from some sort of mental illness and is emotionally manipulating you. You have to cut your ties. There's...
  22. kbtoyssni
    If your kid was too sick to walk to the car before, I'm guessing he had a lot of damage. So it could be that he's going to take a long time to heal. But five months is a long time. I would do another look at the diet to make sure he's 100% gluten-free. What about personal care products of everyone in the house, pet food, siblings getting crumbs around...
  23. kbtoyssni
    Most whiskeys have malt added in at the end, so they're definitely not gluten-free. Vinegar - even that made from gluten grains - is generally considered safe since the gluten is removed in the distilling process. Seems that some very sensitive celiacs may react to it, though. OP - yes CC is a huge issue. One crumb of gluten is enough to make a celiac...
  24. kbtoyssni
    A positive blood test is a diagnosis! Some doctors still like to do a scope because it's long been considered the "gold standard" diagnosis even though it's not necessary unless the doc is looking for something else in addition to celiac. As for blood tests being in accurate for children - it's just that kids are more likely to get a false negative. A...
  25. kbtoyssni
    Glad you found your answer! And my first thought is 1% is still a lot of people! You doctor probably has several patients who have it if he's going by those statistics. But I agree with Ursa, the percentage is higher than 1.
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