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Latest Celiac Disease News & Research:
Everything posted by kbtoyssni
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My parents are coming to visit next weekend for my graduation. My mum and I are both gluten-free, plus I'm peanut free and mostly meat-free. I usually cook fancier meals when they come, think main meal plus salad and a vegetable or two. But my mum has recently gone casein free, and I'm having trouble thinking of nicer gluten-free, CF, meat free recipes...
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I'd also feel comfortable just giving them a good scrub. Stainless steal is easy to clean!
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ARCHIVED Celiac Is Beating Me Down...
kbtoyssni replied to Joni63's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When I was a kid, my mother made it very clear that my brother and I were part of the family and therefore were expected to help with the household chores without payment for them. Since we used dishes and the bathroom and played in the pool, there was no reason why we shouldn't help clean those things, too. We got an allowance, but it was also because... -
ARCHIVED Glutened At Work-retail
kbtoyssni replied to soccermom's topic in Coping with Celiac Disease
You could try talking to management about this issue. It might be possible for them to make a policy that workers can only eat in the break room and hands should be washed prior to returning to work. Food allergies are becoming common enough that you can approach it from a point of customer safety. If there's food crumbs all over the place, the shop also... -
ARCHIVED 10 Year Old Daughter Cheating On Her Diet?!?!?
kbtoyssni replied to a topic in Parents, Friends and Loved Ones of Celiacs
Enterolab is accurate for up to a year after going gluten-free. That's why it's such a great diagnosis tool for people who have already gone gluten-free but now want some medical proof. -
ARCHIVED Not Digesting My Gluten Free Food?
kbtoyssni replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also, if the museli contains oats, they may be contaiminated or you may be someone who reacts to oats. In general, potato chips are gluten-free, but it depends on the brand. Same with chocolate. What brand do you want to eat? Dove is fine, 3 musketeers, reese's PB cups (the normal ones, not the holiday kinds). Hersey's isn't great about disclosing... -
ARCHIVED Reese's Peanut Butter Cups
kbtoyssni replied to JustThisGuy's topic in Gluten-Free Foods, Products, Shopping & Medications
The big ones are. And I'm pretty sure the little ones, too. But many of the holiday-style ones (like egg-shaped for easter) contain gluten. -
ARCHIVED Nail Polish Cross Contamination?
kbtoyssni replied to Juliebove's topic in Food Intolerance & Leaky Gut
I have no idea about CC and nailpolish, but you should try selling the stuff on ebay! Then take your money and spend it on different makeup -
ARCHIVED Accomodating Celiacs At Potlucks
kbtoyssni replied to acousticmom's topic in Coping with Celiac Disease
I would never eat at a potluck even if I did know all the ingredients in things. I would be too concerned with CC. I did go to one potluck where a friend had made what I knew was safe food, and he let me take some for me before he put it out on the table for everyone. The only way I'd even consider eating potluck food is if gluten-free food was at a separate... -
ARCHIVED Do Bacteria Cause Celiac Disease?
kbtoyssni replied to Nancym's topic in Related Issues & Disorders
I completely agree. A little preventive medicine would really decrease the cost of health care, too. -
Do it for your children. Do you want to be around to watch them grow up, go to college, buy their first house, hold their first child??? You'll miss out on a lot of that if you don't stay gluten-free. The best gift you can give your children is to stay healthy and be around for as long as possible.
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ARCHIVED Reading Labels In England
kbtoyssni replied to frec's topic in Introduce Yourself / Share Stuff
They do have labeling laws in England, though. So at least gluten free products are labeled gluten-free, and they can be found in any grocery store. The caveat is the the definition of gluten-free is something like 200ppm so things that aren't 100% gluten-free can be labeled gluten-free. This is how it will be in the United States in a year or two as well... -
ARCHIVED When "gluten-free" Really Isn't
kbtoyssni replied to CaptainObvious's topic in Gluten-Free Foods, Products, Shopping & Medications
Woah, that is misleading. It should say something like "no gluten added to supplement that already contained in our dog food". It's pretty obvious they have a VERY different definition of what gluten-free means. I wonder if this is due to last year's issue with contaminated gluten in dog food. I'd focus on the fact that their food does contain gluten... -
ARCHIVED Called The School Because They Were Doing Paper Mache
kbtoyssni replied to holiday16's topic in Parents, Friends and Loved Ones of Celiacs
I don't think it's common, but it's awesome your school does that! -
ARCHIVED Is Cc A Danger From "bird Seed"?
kbtoyssni replied to toomuchagony's topic in Coping with Celiac Disease
I would get gluten-free food for the caged birds. The outdoor ones it depends. Maybe you could wear a mask while filling feeders or get another family member to do it? -
ARCHIVED How Do You Work With A Restaurant?
kbtoyssni replied to a topic in Coping with Celiac Disease
Thought of another tip: I try to ask about ingredients as early as possible. The waiter will probably stop by the table three times before you officially order. If I can start asking about ingredients on the first or second time he stops by, he can work on finding ingredients without holding up the rest of my group ordering food. -
ARCHIVED How Do You Work With A Restaurant?
kbtoyssni replied to a topic in Coping with Celiac Disease
One other thing - gluten-free menus at chain restaurants are probably pretty good. But at little local restaurants, you should still ask about the gluten-free status of these items. I was at a local restaurant that had fried tofu on the menu. This seemed a little suspicious to me since I knew their egg rolls were not gluten-free. Turns out the tofu was... -
ARCHIVED How Do You Work With A Restaurant?
kbtoyssni replied to a topic in Coping with Celiac Disease
When I send food back I always say "please make me a new one because now there might be crumbs in this one which will make me sick." If you get a chance to look at the food that you're sending back try to remember a distinguishing feature (like there's two tomatoes on one side of the plate) so you know if it's a new one they bring out. And when the waiter... -
These don't seem like friends to me. I don't expect my friends to completely rework their life for me, but I do expect them to at least consider if I can eat somewhere and if I can't to warn me so I can bring food. Have you told them how much this bothers you and that you don't feel they're being supportive? If you have, then I would phase them out...
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This allergist sounds knowledgeable about allergies. Many wheat allergic people can eat spelt (HAK1031 explained it well) even though the spelt protein is similar enough to wheat that celiacs can't eat it. HOWEVER, allergies and celiac are two very different things. I have no idea if this allergist will know anything about celiac. If she's just an allergist...
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ARCHIVED How Do You Work With A Restaurant?
kbtoyssni replied to a topic in Coping with Celiac Disease
You also have to just get over the fact that you're asking additional questions and special ordering food. If you're embarrassed about this, it's going to be hard for you. I often check menus before I go and know exactly what I'm ordering before I go. To avoid making a "scene" I either sneak out to go to the "bathroom" before ordering and talk to the manager... -
It could also be that you get very mild reactions. I also had mostly chronic fatigue and joint/muscle pain as symptoms. My joints have been really painful recently, and I finally discovered I was eating some packaged Indian food with CC issues. It took a few weeks of eating the stuff for my joints to get really bad. But that doesn't mean it wasn't doing...
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ARCHIVED Those Of You On A gluten-free Diet And Retested
kbtoyssni replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You'd have to feed that kid gluten for a looonnnngg time to hope to get a positive now. Like a year or two??? It's stupid to make anyone sick for a long period of time just for an official test. Especially a kid who is still growing and developing right now. You could try enterolab testing - that's still good for up to a year after going gluten-free.... -
ARCHIVED Severely Glutened?
kbtoyssni replied to kim26's topic in Parents, Friends and Loved Ones of Celiacs
It's hard to know. Many nachos are gluten-free, although CC is always a possibility. I don't get very strong reactions to gluten now, but I do pick up every bug going around when my immune system is already compromised from gluten. When I'm not glutened, I rarely get sick. -
ARCHIVED Going To An Allergist - Should I Ask For Any Tests?
kbtoyssni replied to 3groovygirls's topic in Parents, Friends and Loved Ones of Celiacs
An allergy and intolerance are two very different reactions. You could test for an allergy, but you're right that it won't tell you anything about potential celiac. Although it might not be a total waste to do an allergy test just in case. If she did have an allergy, she still may or may not have celiac. Sounds like you're not worried about an allergy...